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Blind and Visually Impaired Community

Full History - 2013 - 11 - 05 - ID#1pxpa3
4
My son, 8, will begin cane training next week...I want to throw up... (self.Blind)
submitted by Harmoniously
My son is 8 years old and in 3rd grade. Vision 20/400. Ocular albinism. His teachers met with me today to discuss their decision to teach him to use a cane. I love this child more than anything in this world and I absolutely want the best for him but when they told me that, I felt like I wanted to throw up, I know it's selfish and horrid but I'm just being honest.
There is such a stigma around being blind. People are so ignorant, but I don't have the energy to educate them all. I feel like taking him around with a cane is just going to invite the masses to stare and gawk and comment. Right now he gets around pretty well with me and even on his own in a familiar place, so his blindness is like our little secret. It rarely even comes up. But now i don't feel like we 'll have a choice. Please understand I would never let my son know how I feel about all of this and I will encourage him to use a cane and any other tools out there to help him be independent and mobile. I'm just anxious about the stigma around it and and the unwanted attention. Maybe I'm still trying to accept the fucking unfair reality of this stupid genetic mutation and it's impact on my incredible, perfect little boy. I guess I could just use some encouragement...
iLarsNL 8 points
Hi, my brother is blind. Whenever we are out and he is using his cane, nothing really happens. I only notice kids staring sometimes, but i guess that's normal, because those kids probably don't know what's up with my brother. It might also be because my brother has a schisis.

So really, the only people that will be staring are kids, because they see someone who's different. I don't really mind it, and obviously, my brother doesn't see them. If you find it annoying, you could always tell them to "take a picture, it'll last longer"

Good luck :)
buschic 3 points
damm right, when people stare, I can tell sometimes, I look towards the paused breathing or smell of breath & say "here I'll smile pretty so you can take a pic, hell share it on facebook if you want, it'll last longer!
Harmoniously [OP] 3 points
Ha ha yeah maybe I'll try that :) and you're right, kids are much easier to forgive for gawking, thanks for the input.
buschic 5 points
Really op?

How selfish of a person are you??

How dare you LIMIT your sons potentional of INDEPENDANCE just because of your fear of stigma!!

Seriously!!

a white cane is our INDEPENDENCE!

what a shitty shallow parent you are, go smash yourself into a fucking wall a few hundred times, go tie a black sock around your head, so you cant see, then try walking around the house, the streets you live on, how well do you get around without seeing where your going!!

As a blind person my entire life, I'm so angry that you could even think of limiting your sons potential!!

I'm in a power wheelchair, am hearing impaired, legally blind & have mild Aspergers & learning disabilities.. I have had over 25 surgeries & procedures to try to save my sight, but 10 yrs ago, quit, now I just accept my eyes as they are.

I have been on my own since age 15!

Without my white cane, I can not go anywhere on my own, as I cannot see well enough to get around without it..

Also a white cane lets people know that you cant see well, it also will help if we bump into someone, or trying to get on a bus, lets the driver know that we need our stop called out..

Try looking up STEVIE WONDER, hes completely blind, uses a white cane (when not guided by his staff/family), & is massively successful..
http://www.steviewonder.org.uk
or
http://kjlhradio.com
Harmoniously [OP] 1 points
I appreciate you passion and honesty here. You are right I am selfish but I assure you it is In a way that I want to protect my son from stereotypes and ignorant stares and comments from strangers. I will absolutely be allowing and encouraging him to use a cane, guide dog or anything else that helps him. We live in a society that openly mocks blind people with comments like '"the blind leading the blind" still used regularly.
The day I found out about him needing a can was shocking and unexpected, so I posted this but I hope I made it clear that those are my opinions and feelings. They don't change the fact that we are going ahead with cane training.
I'd love to hear some input on teaching him I've gotten a few messages from folks but I'm sure you have some great insight because of your own experiences. The school has only given him four 30 minute lessons. It not really enough to make it useful yet.
buschic 3 points
hey sorry for the enraged post, but to hear this kind of "i want to puke" mentality, just made me want to punch my computer screen, its reality, dont sugar coat his needs, but ALSO dont sugar coat his abilities, he needs the freedom, the support of you & his family in general.
On the public attitude & staring, just try to ignore it, people are idiots & will stare at ANYTHING that is different, no matter what you do or say, I've been bullied my entire life, as i never had a safe childhood or supportive family/parent.
Keeping it really real, your son will figure it out, that your discomforted, just dont be, I know its hard, but your going to need to be strong for him for a while, hes going to have lots of questions & fears at first.

Do you live in the USA?

IF you DO, PLEASE contact the AFB
http://www.afb.org/default.aspx

They are a GREAT resource, as is the NFB https://nfb.org//

IF your in Canada, CNIB has great stuff for kids..
http://cnib.ca

IF your in England or Europe at all, RNIB is your spot to go.
http://www.rnib.org.uk/Pages/Home.aspx

if he is not learning disabled, 4 30 minute lessons TO START is ok, on average that is a good amount to start with.

Please keep in touch..

Hugs

Em Daigle

buschic@gmail.com
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[deleted] 2 points
Hey dude.
Whilei find several of your comments a little offensive, I understand where you're coming from. As a young dad (to non visually impaired / blind kids), I really appreciate and recognize your commitment to your little fella.
His cane is a key. When you've got a key you've got acesss. It's access to his independence. A key to him learning about his true self value and learning about his environment.
In the future when I need a cane, im going to rock it and own it, like I do with being bald. It'll be a part of my life. Although I have a low opinion on life, I chose to rock it and roll. I read a book by $1. A blind guy who claimed Mt Everest. What did you do today!?


autowikibot 2 points
[](#autowikibot)*Here's a bit from linked Wikipedia article about* $1 :

---

>

>**Erik Weihenmayer** (born September 23, 1968) is the first blind person to reach the summit of Mount Everest, on May 25, 2001. He also climbed Mount Ararat and completed the Seven Summits in September 2002. He is the author of Touch the Top of the World: A Blind Man's Journey to Climb Farther Than the Eye can See, his autobiography.

>After becoming blind, Weihenmayer rejected canes and learning Braille. He wanted to prove that he could continue just as he did beforehand. He tried ball games, but eventually gave in to his disability, so he learned to wrestle. In high school he won the National Junior Freestyle Wrestling Championship in Iowa. He started using a guide dog afterward. Then he attended Boston College and graduated as an English major. He became a middle-school teacher and wrestling coach.

>With Sabriye Tenberken he climbed with teenagers from the school for the blind. A documentary film based on the project, Blindsight, was released in 2006. Another documentary, Fello ...
`(Truncated at 1000 characters)`

---

$1 ^- **^Erik ^Weihenmayer ^speaking ^at ^conference ^in ^2007**

$1 ^| $1 ^| *^(/u/ZipZapFlash can reply with 'delete'. Will also delete if comment's score is -1 or less.)* ^| ^(**Summon**: wikibot, what is something?) ^| $1
homegrowncountryboy 2 points
I spent right at 4 months at a blind school getting training, as I'm new to being legally blind and i seen this happen with the parents all the time. The best thing you can do is just step back and let him go at his own pace and try all kinds of new things, I know it will be hard but it truly is for the best. You wouldn't believe the amount of parents that did more harm then good to their kids by always doing everything for them over half of them didn't even know how to wash some clothes or even properly clean their room. It was so common that when you first arrived they had somebody come to your room and supervise over you while they had you clean it because they had to find out if you knew how to clean up for yourself. The new kids that came in were so hungry for knowledge on how to do everything themselves and be independent so they can go out and be free since they have been sheltered their whole life. To the people staring don't worry about it I'm 6 foot 4 and look like an NFL linebacker and they still stare at me most people have never been around anybody that is blind and they are just curious I know I was when I first got to The Blind School and was surrounded by all kinds of blind people.
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ProxyTeeth 2 points
I think it's important to ask your son how he feels about using a cane. His take on the situation will probably help guide your perspective and emotions more. Perhaps he is having difficulty at school getting around and whatnot and hasn't expressed it yet. Or maybe he does feel uncomfortable with a cane in public. Personally I don't really see the negative stigma so much in society, but obviously I'm not in the circumstance your in and have no idea what it's like to be a mother of a child with an unfortunate genetic disorder. If he decides he would like to learn using a cane, (this is crucial) make sure you get him an extremely $1 cane. There are some really awesome hand crafted ones. No need to look at it from the negative side, I'm pretty sure my 3rd grade self and probably most other 3rd grade males would find it basically kick ass and eccentric.
Harmoniously [OP] 1 points
Great idea I hadn't realized there were different styles. Will check into this.
mrg3rry 2 points
I understand where you are coming from. I was diagnosed with RP in my early 20’s, My vision has gradually gotten worse over time. I turn 38 soon and up till about two years ago I would not use my cane. Like your son in famlure place i had no problems getting around. But I started using my can because at work and in the public i started having issues with my peripheral vision and color contrast. I have walked into many filling cabnets and walls and people, I have tripped on many stairs and curbs. When i am out with family or friends that have better vision than I , I use my cane like a walking stick. When i am out on my own and don’t feel comfortable with my surroundings or in a crowed place I use my cane the way I was trained. So your feelings are understandable, there is a stigma around people that are different. Thie thing is you have to accept your son’s disability. Talk to his teacher and go learn with him, A white cane is not a crutch it is a tool and if it makes him feel better or safer having it then so should you. Find local support groups like “The Foundation for Fighting Blindness”, or if in Canada “The Canadian Council of the Blind. You are not the only parent that has gone throught this, I think loosing your sight is the worst thing in the world, but if you don’t embrace it and learn to adapt it to your lifestyle not adapt to the disability, the disability will win and life won’t be all that it should be. Hope this help.
Harmoniously [OP] 1 points
Thank you for the inspiration. It does help me even just to know others are dealing with the same issues. Kudos to you for handling low vision with tact and grace. I honestly aspire to be a rock for my son through these types of things to help him maneuver around his disability. There are so few resources out there, even less scientifically accurate information on how to raise a child with low vision. I sometimes get overwhelmed. The Suck it up buttercup attitude of some of these other folks on here only shows their ignorance and lack of knowledge. I'm not just raising my son to be a mediocre man with low vision I'm raising him to be the absolute best version of himself, regardless of this disability. If he wants to be an astronaut, future president, or a NASCAR driver, I am compelled to believe he still can. Just waiting on science and technology to catch up with us. I will never accept mediocrity.
RockinTheKevbot 2 points
I work for a company which provides community housing for adults with developmental disabilities one of the guys who I care for is blind and he is the first blind person whom I've had real contact with. He uses a cane in public and to be honest I am amazed every time we go somewhere. The way he uses his cane is awesome! I've never noticed anyone staring in public outside from kids who seem to be looking just out of curiosity. Every adult we've encountered haven't looked at us any more than anyone else.
Harmoniously [OP] 1 points
That's great. My goal for my son is complete independence too. Sadly I've only ever seen two people out and about with canes and that's been years ago. I openly admit I've had very little exposure to other blind folks.
SeptemberJoy 1 points
Late to the post but hi! How is your son going with the training?

I have albinism (OCA) and started using a cane when I was 16. Would definitely have benefited from one earlier - and probably would have felt less self conscious about it.

I now get around with a giant black Labrador. I much prefer my guide dog to my cane. Are you involved with NOAH or any of the parent groups on FB? They might be some support/reassurance for you.

Your son is going to find his way in the world and thrive. I know other people with albinism who are doctors, teachers... personally I've just finished my masters in screenwriting and will be starting my PhD this year. It's not going to hold him back.
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[deleted] 0 points
Holy shit, You are disgusting.
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