I was diagnosed with macular dystrophy ~18 years ago while I was a teen. Centre part of the eye does not see and that blind spot grows over time and your vision worsens. Because it is gradual, you learn to adapt and in most cases you don't really notice it. It is tougher when you are in a transition period where your life is not settled. Going from high school, to uni then to work is tough because you have to address the issue of your sight loss and this is where you encounter barriers, discrimination especially when looking for work, love etc.
Your situation is however a lot more manageable because you are in your 30s, have a partner that loves you, and a career in IT. For starters You are in the right career for someone who is losing their sight because accommodations are easy and adaptive tech aids readily available. (I use Zoom that comes with a Mac) Now if you were a doctor, pilot, cop, or drive for a living then I would worry financially.
Also, when I got diagnosed almost 2 decades ago, research into degenerative conditions was already looking into implanting regenerative stem cells. They have done testing with animals in the meantime and I'm happy to report that 12 Sep 2014 in Japan,
$1 Clinical trials could go on for up to 10 years before they perfect the procedure and address any risks and complications.
Hope this helps