Blind and Visually Impaired Community
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I need help finding experts (self.Blind)
submitted 8y ago by GrumpyFinn
Hi.
I have autosomal congenital cataracts. The gene comes from my father, who got it from his mother, and it goes back a few hundred years. I see about 4% of 2020 normally, with my left eye being my stronger eye. I became pregnant in January, and over time my left eye has changed. I'd never experienced blurred vision in my entire life, but now my left eye is so blurry that I can't even make out shapes. My vision is supposed to be stable and not change my whole life, so I'm really scared now. The eye doctors here aren't really sure what to do because they have no experience with my condition. I know there are experts and researchers with published reports on it, but I need help finding them. Can anyone help me? They may be able to give me answers. I'm scared. Thank you.
I have autosomal congenital cataracts. The gene comes from my father, who got it from his mother, and it goes back a few hundred years. I see about 4% of 2020 normally, with my left eye being my stronger eye. I became pregnant in January, and over time my left eye has changed. I'd never experienced blurred vision in my entire life, but now my left eye is so blurry that I can't even make out shapes. My vision is supposed to be stable and not change my whole life, so I'm really scared now. The eye doctors here aren't really sure what to do because they have no experience with my condition. I know there are experts and researchers with published reports on it, but I need help finding them. Can anyone help me? They may be able to give me answers. I'm scared. Thank you.
jogajaja 1 points
Hello-
You may want to post this over in r/optometry, because there are lots of optometrists there who may be able to recommend someone for you. I can tell you that there are great doctors in Boston and at Vanderbilt, if either of those are near you. Otherwise, posting this over there will probably yield you better results. Good luck. You will be okay, OP.
You may want to post this over in r/optometry, because there are lots of optometrists there who may be able to recommend someone for you. I can tell you that there are great doctors in Boston and at Vanderbilt, if either of those are near you. Otherwise, posting this over there will probably yield you better results. Good luck. You will be okay, OP.
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