I fall in the category of "legally blind" as my BCVA is 20/200 and I suffer from achromatopsia due to cone dystrophy.
I don't feel that I need a cane for navigation so much, but more to be readily identified as someone with a visual disability. Most people don't recognize that I have a problem until I either A) tell them or B) they see me try to read something.
When I do ask for help, I feel like people think I am either lazy, stupid or simply claiming to have a disability just to receive special treatment. Even though I am usually wearing sunglasses (thanks to the achromatopsia) many people just think I'm high or "trying to be cool".
I don't know. What are your experiences? Does anyone else struggle with this?
modulus7 points
There are small, light, almost symbolic canes precisely for cases like this, for people who don't really need to use it as an orientation tool but to identify as blind. I think it would be reasonable for you to get one.
Bob_0119 [OP]5 points
It's funny how I never knew such things existed. I guess I always feared that a cane was simply for those with no-vision, so I just assumed they only had a single purpose. After reading your response I looked it up and they are called "Identification canes". As I read more about them, and blogs from people who use them, I realize this was precisely what I what looking for! Thanks!
Unuhi2 points
Ambutech has some, if you are in North America. Inclusivestyle / Fashioneyesta has some youtube stuff about her customized canes. Iʻd say get an ID cane, and add a little bit of bling you like to it. That way itʻll be nicer: imagine some day someone starting a discussion "wow, thatʻs a really cool cane". :)
I've so far only had the courage to give compliments about pretty walking aidss only. There is this older lady that has a pretty pink or green (canʻt remember) cane she uses for walking (she still drives). I mean, I need to be pretty close to anyone's cane to see any detail of it. :( I have no clue how many people even customize theirs; I think it should have always a little something extra so it's yours, and you are not defined too much by it.
mrg3rry4 points
Yes, there are a few types of canes... A Mobility Cane which is the one with the big nob at the end, use to safely navigate around your community. An ID Cane, it's a thinner cane with a pencil tip, it’s lighter than the Mobility Cane.
I am legally blind, I have RP and I’m 40, up to three years ago I would not use a cane because of the stereotype that is associated with it. My close friend s and family knew about my eyes and the people I work closly with knew but I did not advertise that I was legally blind to the public.
I work in a call center environment and the grey walls and carpet and filing cabinets started blending together, my depth perception was starting to go as well as my field of vision. Now I carry a mobility cane everywhere I go, I use it like a walking stick (which is wrong) and when I am in an unknown places or crowds I use it like the way it should be used. I also have an ID can but I prefer the Mobility Cane because there are times when I have a hard time seeing.
I know so many people that should be using their canes but choose not to due to the stigma of it makes them weak and vulnerable. They would rather hide the fact they can’t see and physically hurt themselves. I am a big advocate for the visually impaired to use a cane, it is a symbol of independence. Hope this helps
Bob_0119 [OP]3 points
Are you sure you're not my doppelgänger? I too am 40, work in a call center! Much like you, my friends, family and co-workers know about my visual limitations. I felt awkward telling my wife I was ordering a cane. It's not that I bump into things or trip on stuff, but sometimes when I'm at a store or other unfamiliar location I feel stupid asking for help finding things especially when I know there are signs everywhere that I just can't read. I will sometimes either wander around until I find it, or simply just leave. When I do ask for help, I hate having to explain my visual condition just so (I feel) people don't think I'm illiterate!
mrg3rry1 points
I could be your doppelganger... Sorry for the delayed response, i mainly read reddit and not all the time, i'm very active on twitter though @mrgerry...
Unuhi1 points
Guys... Iʻm about your age, worked with server stuff in some callcenters and now i just kind of voiceover on/off everything and moved to braille. I haven't told my husband about the "selfiestick".
Stigma, eh? I have to see a sighted shrink because ... I forgot. Something about the voiceover and braille stuff.
Wanna chat some day?
I went to this web accessibility meeting and got lost on the way - couldnʻt find a tall building iʻd been to because I had no clue what it looked like. I mean, Iʻd been there before...
Bob_0119 [OP]2 points
that's funny about the "selfie stick". I've decided to get an Indetifying cane. It's weird how self-conscious I'm feeling about it. I mean, it's not like my parents and sister don't know I am legally blind, but at the same time, I'm not sure they'll understand my reason for wanting to carry one. Much in the same vein of why I asked whether *I* should get one.
They've always been supportive and have always helped me get whatever I need, so I don't really know why I feel so uneasy with how to talk to them about it.
Unuhi2 points
Because when you see someone with a "selfiestick" ... Either 1) they are a confident guy who knows how to use it 2) the same but a girl (an easy target) or 3) you get that odd vibe ("this person is terrible with their o&m skills or cane technique", or "wait... I should probably use one of those". But at least calling it selfiestick and customizing it with something makes it less of a "look at me, Iʻm disabled" thing.
matt_may1 points
Early 40's here, RP. For about a decade I supported the apps used in the call centers. I've run into many similar issues. People who'd get mad at me and tell me, "I waved at you and you didn't wave back." People who thought I wouldn't shake their hand. And these were people who knew I had visual problems!
Unuhi1 points
People wave at me? From the cars? ... Sigh. Fat chances of me seeing - as also to keep consistent i tey to focus on safety eyc. So to not fall on thosebrown painted firelanes in front of home (cough) etc. I tell people to come to alk to me and introduce themselves; "i donʻt drive" "you have a nice puppy", "i canʻt cross that big road" etc. No polarized glasses usually for me - safety...
SerialRepeatCustomer1 points
side random question! Im going to go out on a limb and assume you use a tool like zoomtext or magic to make computer work do able. How do you go with hot desking / changing location of your work station? It's common with my call centre work stuff.
mrg3rry2 points
Very delayed response, we all have our own laptops and designated seats... When I worked in a call center i had my own computer and designated seat and managment made sure no one used it.
kissitallgoodbye1 points
Call centre employees with rp unite! Haha
I use mine on the floor because people dont like pushing their chairs in and the trash cans get moved a lot. But I have my training classroom memorized
Unuhi1 points
Heh. I have the selfiestick in my purse. I like to use the braille stylus as a weapon - so itʻs always ready for my hands if i need to poke at something.
Nighthawk3213 points
You should get an identification cane. A lot of visually impaired people have them.
geoffisblind3 points
I use a full length mobility cane to compensate for my restricted field of view and the fact that my vision is virtually unusable in bright or low light situations. I find it useful to be able to locate curbs and other obstacles in my environment. However having the identification has been an equal advantage. The extra ID can come with it's disadvantages, I am trying to figure out how to get people to stop randomly grabbing me in public to try to help. I posted about that a couple days ago. Other than that I feel much safer in traffic, cars are more aware, people are more aware, and I don't run into as many things. It's good all around.
Bob_0119 [OP]2 points
I read your post, and it's what got me thinking. I know it's not much, but when I used to work for a cab company, we used to cover "passengers with disabilities" during training. I used to make it a point to not only explain how they should never grab a blind person, but specifically why they shouldn't in a way I felt they could understand and relate.
It comes from people automatic nature of "wanting to help". I used to get soooo upset when people would see me reading something (because I pull it so close to my face that it looks like I'm sniffing it) and off-handedly ask "have you ever though about getting glasses?"
SerialRepeatCustomer3 points
glasses? Why hadn't I **ever** thought about that? After all these years.....!!!
Bob_0119 [OP]1 points
lol, that's exactly what I used to think. "Well thank God for you, sir. you'd think that after 30+ years of struggling to read things and having to sit ridiculously close to the TV that I might (even if by accident) wander into an optometrist's office, but no; never even occurred to me! You've changed my life!"
SerialRepeatCustomer2 points
i frequently also have people suggest laser surgery. While I totally get they mean well.....it's a bit inconsiderate.
Unuhi1 points
Sigh... Yea I don't mind showing people how I use my iOS stuff. I mean it's 3-clicks, 4-finger taps, swipe swipe, taptap, headphones. Rotary stuff. Braille screen input. Pretty much all of the accessibility/vision stuff on. and languages.
No; guys... See this magnifying glass pendant from Maxiaids? ... Yea, it's... Decoration. Uh, yea, reading glasses? Just why would I even think that when I can nail the eyechart with my fingers? Kind of like why would I keep my eyes open when they hurt? (Very blank stare here; sorry can't do any eye makeup, can't see facial expressions either)
mallorypallory3 points
I work with students with visual impairments. Quite a few are taught to use canes not for navigation sake but for use in the community. People are much more aware when they see someone with a cane. Even if you're just holding it by your side
Unuhi1 points
How should I get started? Either people donʻt see me at all, or then they go direct to "is that in braille?" (My tattoos, and yes) and "are you legally blind?" (Why yes, you... Female voice with average shape, light colors and some other detail I might pick but will forget) I mean I run alone. Always the same route. I don't feel confident just starting to casually use or practice close to where I live. Even when it feels like a safe area.
mallorypallory3 points
I just saw someone else comment about ambutech canes which are the type of canes we use. All of my students use folding canes. I would look into getting one of those. I'm not a mobility specialist or anything so I would look at the other comments because they're full of good advice! I think the first step is making yourself visible while traveling. Its true that most people and drivers pay VERY little attention to pedestrians.
Bob_0119 [OP]2 points
I ordered a folding Ambutech Identifying cane and a telescoping one from ILA as well. Thankfully they're not terribly expensive!
theimpossiblesong2 points
OP, after reading this thread I'm now realizing that I need an identification cane as well so Thank you everyone! :D I'm 23 and from a country where disability laws basically don't exist but now live in Canada and have been dealing with all of these issues especially the glasses thing! And then there's the whole, People thinking I'm rude or mean because I'm almost never the first person to say hi- I've been called a bitch For this numerous times. I've never been one to broadcast my condition because I wanted to maintain my independence and be "normal" but after reading about all of the ways it's helped I think now is the time. The only thing I'm worried about is people thinking that I'm faking it because, While my family and friends know, most people have no idea that I'm legally blind unless I tell them. Has this been an issue for anyone?
Bob_0119 [OP]1 points
My friends, family and coworkers have all been really understanding. I had the same concerns you do at first, but realize that it's not like my low vision was some great secret. I used to cringe whenever I saw myself on the security cameras at work, especially when I pulled stuff right up to my face to read it, or pushed my face right into a computer monitor.
I have had people ask me about the cane, largely because it's not real long and I'm not swinging it or tapping it. They never ask in a "you're faking it way" more of a friendly/general concern "how much can you see" kind of way. My biggest worry was from the people who knew me the longest, but once I explained the purpose of an "ID cane" they have been real supportive
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