Welcome to /r/Blind! Please tell us why you are here.(self.Blind)
submitted 8y ago by SophiaDevetzi
Welcome to /r/Blind!
Please take a moment and tell us why you are here.
Are you or someone you know blind or low vision? or are you just curious?
majinalchemy9 points
I can see right now but my mom has retinitis pigmentosa and is losing more sight every month. It's genetic so I have a 50/50 shot at it and I get paranoid a lot at night when I feel others can see things more easily than I can.
romanj359 points
Hello. I am fully blind and I'm here because being here is admitting I'm blind. I wasn't born blind and had full sight for the majority of my life until 10 years ago. Even then, it slowly faded off over time. I'm here because my wife, who sees perfectly, sometimes doesn't see, she doesn't fully understand. I'm here because she has to work full time, and while I wish that I could work full time it keeps her happy knowing someone is at home, waiting for her to come home and be happy she's arrived. I'm here with questions, and sometimes answers because even though I'm nowhere near the smartest man on the planet I'm still hoping that what I have to say, or write, will matter enough to someone else. Most of all, I'm here to make frineds, be a friend, and in doing that leave with the hope that my being here helped someone else or just simply made them smile.
Faldorn7 points
I am in my 30s and have been diagnosed with optic nerve atrophy (unknown cause). I subscribed to this subreddit when I was originally diagnosed to help me cope / ask questions when I was first scared about how I would get by if I were to lose all my sight. It helped!
Lion_the_Bunny1 points
Hello, fellow ONA haver! If you ever want to commiserate, shoot me a PM : )
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Cognitive_Caharin6 points
I am blind, and I currently work as a rehabilitation teacher for high school students who are blind, teaching independent living skills and advocacy. I do this while pursuing my Master's.
b24336 points
I'm sighted but my fiancé and her brother are both blind. I joined to keep up with news people post and to lend advice whenever possible.
Lust4Me4 points
My son was diagnosed with RP last year.
thatsnotgneiss4 points
I was born with full sight, but started going blind at 28. I'm now in my mid 30's, and am legally blind. I'm here because a few months ago this was the only connection I had to the blind community. I'm currently in vocational rehab studying Management Information Systems.
JustDL072 points
Hi. I'm a sighted person. I'm here because I want to understand what it means to be visually impaired. I'm an architecture student. One of the 3 aspects of architecture is venustas, which is the beauty of a structure. I want to make a building that redefines the concept of beauty. A famous blind architect inspired me to continue my research on therapeutic music learning institute for children with visual impairment, a study on the benefits of music to the visually impaired. I didn't even know he exist until I started my research. He said that the blind see a more beautiful world than a sighted person. I want to understand the beauty that he see and I want to impart his perspective to my country, which lacks an inclusive community for the visually impaired.
96tears2 points
I am a aid for a blind student who was born with septo optic dysplasia. I'm going back to school soon to be a teacher of the visually impaired. I'm in need of advice, experiences and ways to help my student accept and cope with blindness as well as info about academic skills/modifications. I think this subreddit can be a great community for all of us here!
aam221 points
Do you have any background with the visually impaired community?
Color and contrast are your best friends, make sure you know what they are for your student and makes things pop for him or her. Reducing glare will also be a good option.
96tears1 points
Yes, but they have complete vision loss so I needed help finding the best way to organize their large braille copies into one binder that's easy for them to carry.
aam221 points
That's a task in it self. Braille tends to not be portable.
If s/he has the opportunity to have books in a special shelf, organize the shelf with the student. Make sure it is logical for him or her and have the student go to the book case each and every time to look for the materials s/he needs. I have placed objects that are relevant to the material in front of each section so that Student can double check. You can also use different textures for each subject and use the same texture on a schedule the student will eventually learn.
To cope, depends on the age. But, talking about is on the first days always helps. Answering questions from the rest of the students and explaining how they all need to work together and let the student be independent (to the extent he or she can), is very important. Never assume Student can't do ___ but offer help if it seems fit. I'm always encouraging independence from my students, it's extremely important for later in life.
I'm not sure if any of this helps. I hope is does. :)
96tears1 points
You bring up a lot of good points! The braille binder with divided tabs is what we're going with for any paper work. Their books sadly have to go in crates this year due to the room not having space for more bookcases/shelves. The independence thing is huge. I need others to learn the "helpful but not doing it for them" balance like I've had to learn. It's also difficult to talk openly about things like helping and any modifications when my student is embarrassed and hates being blind at the moment :(
RandomGrenade2 points
I am here because recently my little brother who is 16 years old woke up with the vision in one eye a bit blurred. He had recently gotten a cat and was scratched and is actually allergic so our first thought was maybe cat scratch fever. Once the eye specialist checked him out, he said he doesn't think it is CSF because there are no lesions but ordered a test anyways because he has to be sure. So now we are waiting a few days for some blood work results and then an MRI will be taken. We were told that there is a slim chance that he could have a disease that causes blindness in both eyes and as of now there are no known treatments for this said disease. Hard information for my brother and all of us to take but we are remaining optomistic that it is something else like bacteria or something causing his optic nerve to be swollen. I am asking for any info or anything related to his type of situation because this all came completely out of nowhere. Thanks in advance.
Lion_the_Bunny2 points
I have a degenerative disease called optic nerve atrophy. As of right now I'm legally blind, and the degeneration of my optic nerves has slowed, but it will pick back up as I get older. It's a terrifying thought. I come here for empathy - I'm 28, and was diagnosed at 8 years old, so it's been hard finding people my age that are dealing with the same issues. I also find paths to new technologies, new developments in vision-giving, that I'm (obviously) completely fascinated by. I've recently helped someone I met through this subreddit by giving him some information about vocational rehabilitation, and it was amazing to get to share my experiences and advice! So thanks r/blind, for aleviating a little of the loneliness I sometimes feel.
HidayaMalkia2 points
25. visually impaired. was looking for a place to ask questions and learn about other peoples experiences and learn from them. also i am contemplating on creating my own forum that is linked to my blog
Unuhi2 points
I've had my eyes fixed beyond repair. High myopia, astigmatism, now not-so-age-related MD and whatnot; I'm tired of people poking at my eyes - and asking what's wrong with them. I don't care. When I know where I am, especially in daytime, I don't bother with the stick. Other times I use blindsquare to get somewhere and still get lost. I can usually pass for a regularly-sighted person when I fake the eye contact thing. Other times people ask about how I keep circadian rhythms and if my husband's blind too. (Uh, just color?) I love voiceover and all things braille. And it's "a bit" frustrating sometimes to play around the regular or fixable-sighted people. So I went about it quite a bit - and try to show that what my eyes can't see is not a big deal. Eyesight? Sorry, I prefer vision. I don't need my eyes open for that.
weables2 points
My wife was a premature birth, and one result is a condition that affects her eyes and could one day leave her blind. She's already lost vision in one eye, losing the other is a real possibility.
Puba12281 points
I am sighted but I am curious of how blind /partly blind cope and continue on with life !
Slatters-AU1 points
I'm 33 male who is legally blind. I use a Guide Dog for mobility. I work full time and have a lovely wife and four wonderful children.
I'm here to try answer any questions that I can, especially for users with young children/teenagers/young adults or have relatives or friends with recent vision loss.
I found my school years incredible difficult, and if I can explain tips and tricks, coping mechanisms or even just show someone that you cannot let your disability stop you then that's what I hope to contribute here.
carpe_diem19771 points
My son is 12 and had optic atrophy. As he gets older more and more challenges arise. He and I are full of questions.
SometimesIAdult1 points
I'm new to Reddit, in my mid-twenties, and have been blind since birth. I was born four months premature and have no sight in my right eye and can see limited colors, shapes, and objects with my left. I read Braille and can read print if it is enlarged a lot and brought right up to my face, so I generally only mess with printed text if there is no other alternative. For me, having sight is like being in a foreign country; I have all this stimulation from the din of chatter around me, but I can only pick up on a few basic things here and there, so I just tune most of it out. Color is a bit like the difference between hearing a musical note (knowing that it is high or low) and having perfect pitch (knowing exactly where on the scale a note falls). I can see colors and know that they are different from each other, but I can't tell you what colors they are. I do like red, though, and can generally pick it out—someone told me once that red is one of the first colors infants see, so that could be why. I'm open to answering any questions and sharing my experiences with you guys. This is my first self post (I think that's what it's called) on here, but I hope I'll get the hang of it soon.
penelaine1 points
I am a sighted person that recently began working as a full time assistant to a woman with 2% vision after an occlusion took her sight three years ago. I'm here to find new ways I can best be helpful to her.
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jay761 points
I work in web design and optimisation, with some of my responsibilities being around accessibility issues.
Whilst I have the technical skills to achieve government mandated levels of accessibility I do not have ready access to the people my work affects the most.
I'm hoping to be able to ask questions of you all around what the web means to you, how you access it, the issues you might have with it and the solutions you've come up with.
bobsmo1 points
Hi. I am sighted. I build game apps and websites. My latest game is for blind and visually impaired folks. Its called Open Field Echo Sounder. here is the link
http://www.smolenski.com/openfield/
Race to GPS located targets anywhere in the world. Walk to the center of an open field and the virtual targets will be randomly placed around you. Listen with headphones to find direction to the targets. Tweet your best time after finding all six. Optimized audio game app for blind and visually impaired. Play on Android or iOS phones.
blind_devotion081 points
Hey everyone. I've been legally blind since I was eleven. (Retinitis Pigmentosa in both eyes) and I saw a post from here that was posted on r/disability. Glad to be here.
IfUnlikedEquipShirt1 points
I would like to write a story about a blind man, so I came here to get an idea of what it was like to be blind. If you could tell me how your life is that would be great. Thank you!
aam221 points
I'm an Orientation and Mobility specialist. Here to help if you need me! :)
crickettekeeper1 points
I'm legally blind, lost the majority of my sight five years ago at 22, & just trying to get back in touch with the blind community
fods_fods1 points
my mom lost her sight suddenly 1 year ago at 55 years. 100% blindness due to infection, I am trying to find improvements for her life
aam221 points
Call the Division of Blind Services in your area. They contract out to agencies (or provide services themselves) and provide you what she needs.
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