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Blind and Visually Impaired Community

Full History - 2015 - 11 - 10 - ID#3sc0z5
3
Trying to help a newly blind patient (self.Blind)
submitted 7y ago by aishel
Hi all, I'm an occupational therapist that works in a traumatic brain injury unit. I have a patient that was unfortunately shot in the head and as a result, has a traumatic brain injury. The bullet also hit his optic nerve, so he is now completely blind (he reports being able to tell if the light is on or off, but that's the extent of what he can see).

I'm wondering what resources are available that I can pursue for him. He does have cognitive deficits but is able to walk relatively well. Do we work on getting him a white cane? Does he need to wait until he is in an outpatient setting before he can get the help he needs?

Any help is appreciated.

Edit: I'm in the USA, east coast.
Unuhi 2 points
In addition to NFB that's already mentioned - wonderful people to get one started and find new friends - check what other resources are available in your state.

AFB might be good too if they have more local activity.

DARS, department of blind services.

And hadley.edu for courses to learn new stuff, plus an NLS account for audiobooks.

Learning braille and to use computers and smartphones (voiceover, talkback, nvda) with just voice and typing will make a huge impact too.
There are a few good facebook groups about blindness, tbi and ptsd related stuff. Those will also be very helpful - if it's too much to take it all in maybe you can also help him ask questions in them.
Social networks are important especially if he used them before.

Service dogs will be something to consider too. First basic cane and life skills though. Then explore the dog schools - Leader Dog, Guiding Eyes, Fidelco etc.
Getting a service dog can take 6-12 months easily, and for the application heʻll need a video that shows him having good cane skills.

Youtube can have good videos for learning if you get a chance to explore. TommyEdisonXP has a wonderful sense of humor and he shows many little tricks and tells how blind can do many random things in life (cross a road, draw, identify money, use an ATM etc).
aishel [OP] 1 points
Thank you, these are great ideas!
rumster 2 points
First things first - https://nfb.org/free-cane-program
Also contact the NFB to find out if they have a center for training near him. They're is specific training with walking that might need an expert. Lot of them are probably in your area!

I also suggest if possible he signs the process on at least being put on a wait list for a service dog.

Goodluck keep us updated through his journey
aishel [OP] 1 points
Thank you! Turns out NFB is right here in Baltimore where I am! I'll be pursuing this further.
rumster 1 points
Wonderful. Ask for Danielle Capreau and tell her Rum sent you.
geoffisblind 2 points
I really have no clue what the timeline is on getting certain kinds of help after an event like this with regards to safety. Orientation and mobility training on a white cane will be really important when he is safe to walk, you will want an orientation and mobility specialist to help with this. I would also start looking into accessible technology, learning how to use a screen reader will be important for making sure he can still function on a computer. Maybe start looking into learning to read Braille? You can also get in touch with some local non-profits/ the Department of Social Services Rehabilitation Services for the Blind as they will probably be able to direct you to, or provide you with more resources. I am not an expert on any of these things but those are the things that jump out at me in terms of getting back on his feet.

 

I hope everything works out, these kinds of situations are horrible but I'm glad there are people like you who can help others get back on their feet after these kinds of traumatic events. Best of luck to you and your patient :)
aishel [OP] 1 points
Because of his cognitive deficits, he's not quite ready to look at accessible technology and his memory is very poor, which is why I also don't think he's ready to learn Braille. I'm trying to focus on the basics like walking so that he can get to/from the bathroom.

Thank you for your feedback!
fastfinge 2 points
Hi:

It might be helpful if you said what country you're in. Things differ wildly from country to country; different organizations, different governments and laws, different funding methods, and so on.
aishel [OP] 1 points
Good call, thanks. I edited my post. I'm located in the USA, east coast.
aam22 1 points
The first thing to do is contact the Division of Blind Services. This is the state agency that is in charge of locating or providing services to people who are visually impaired. The name differs from state to state, but it's basically the same office. DBS (or what it's called in your state) will pay for all services and they even have a fund to buy adaptive devices s/he will need.
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