When i was 21 I was told I WILL be blind before I turn 30, I am 41 and still have pretty good vision. I also have RP.

I do not see RP as a sentence of becoming blind as there is no cure as of yet, but I have adapted it to my life style and not adapting my life style to it...


RP is tough because not two people with RP will have the same ee sight...

You should see if there any goups in your area such as the Canadian Council of the Blind, unless you not in canada, being around others going throuth vision losss will hlp, you can learn from others and even teach others...

At least you are lucky that a vector for a cure is already under $1.

Hi. I was just diagnosed with RP. They won't tell me how much time I have. I am a painter. My medium is oil. I oscillate between feeling like I am running a race with time in which I furiously paint and hustle to find a new direction in life that will be able to support me, and feeling like I am deflating. All the air just escapes. I collapse in a sad heap on my couch and I do anything to not listen to the voices of doom in my head. I play video games, listen to hours upon hours of ASOIAF theories, and drink (or smoke). And when I can't drown out the doom, I cry and go to sleep.

Some days I wake up and I feel like I am unstoppable, like I am happening to RP. Cause if this is happening it is happening my way, I am going to be in charge, I am going to live my life on my terms. I happen to life! Life doesn't happen to me!

......

But of course there are the other days.... I hate those days, and RP and the future and lost dreams and the fear. I hate it all.

I don't have a single shred of advice. I just want you to know I am there too... and a song recommendation for you, when you are feeling down: "The Heart of Life"

You aren't the first to go blind, you won't be the last. At least you aren't in a wheelchair or mentally retarded or fully paralyzed. I know loads of blind music producers. I'm a blind rapper. Technology is your friend. I buy groceries online with peapod. I read the NewYork times every morning. Lately I've been on reddit. I have a guide dog. Make the adjustment, you'll be fine. Stiff upper lip.

What are your hobbies that are sight related?

I knew a guy in SC who had RP. He kept working, with aid of a CCTV-like gadget to enlarge things. I think he also kept his hobbies of woodworking and religion. IDK how he managed the commute.