charliemyheart 3 points 6y ago
My suggestion as a person with hearing loss, and who is blind (my vision in the field sense is similar to yours, but my central is 20/400). Braille is and will be your saving grace. Learn it and learn it well.
Get comfortable with traveling, find someone who is willing to teach you not just routes, but how to travel without routes (NFB centers are great at this, but if you aren't the US, find someone who teaches in their style, it has given me freedom that nothing else can).
Talk to others like yourself either online or in person.
Get training, now while you still have some vision, try to find teachers who are blind, sorry @KillerLag in many ways sighted trainers will never understand what it is like to be blind.
-shacklebolt- 1 points 6y ago
Some general questions:
- How are you getting along right now? Are you getting along alright at school and home? How do you usually communicate? How do you read? Do you travel alone, go grocery shopping, etc? What are you struggling with? I'm asking to get a better idea of where you're at in terms of adjusting to your recent vision loss.
- What are your hobbies and interests?
Some thoughts:
- Looking at your post history, you talk about how your O&M instructors "teach you routes you have to take" and that you feel very uncomfortable in unfamiliar environments. Are you also being taught how to plan trips, orient yourself, gather information, and make corrections when traveling to new places? Do you have a smartphone with GPS that can help you? Are you able to effectively use it with speech, large print, or a braille display? Are you able to ordinarily communicate with people you encounter on the street for directions using speech, a communication device, or a print-braille communication card? Can you work with another O&M instructor if you're not getting all the tools you need or aren't being encouraged with the mindset that with the right skills and training you can live and travel independently?
- Do you sign? If not, there's [groups]
(http://www.ableaustralia.org.au/what-we-do/deafblind-services) that can help you learn Auslan as a deafblind person. Depending on your vision, you might be able to view it normally, view it closer than usual, use a hand to track the other signer, or use fully tactile (hand over hand) sign. I'm not going to lie, there's a pretty big bridge of misinformation to cross with the Deaf community and blindness, but it's only going to happen if people are out there and doing it. There are many Deafness-specific events that would be pretty accessible to you, such as Deaf coffee chats that tend to have a lot of one on one or small group conversations. Since you're a uni student, there might also be a Deaf or Auslan club at your uni with regular social events. Reach out to them and see how you feel about it, if it's not something you've already been involved with.
- Regarding blind people, the bridge of misinformation goes both ways unfortunately. A lot of blind people view the world as extremely dependent on auditory cues and struggle to relate to those who do not. But this is certainly not all blind people, and it can be overcome. Be assertive about what you need (such as interpreters at events) and be creative about how you accomplish tasks. Do you have an amplifier system that connects to your hearing aids you can use with events or one on one conversations where you give the mic to the speaker? If speech is still difficult, you can use your own phone or laptop (with speech and large print or a braille display) or a braille notetaker to allow a blind person to type to you (using the TTS) and you to be able to read it (using large print, or braille) and reply.
- Do you read braille? If you haven't, why not? Braille can open up a lot of opportunities not only for in-person communication, but online communication as well, and it'll work for you no matter what your vision or hearing is now and in the future. A braille display can be used for in person communication, for text relay phone calls or TTY calls, reading and writing, and accessing a great deal of the internet (including communities for just about any interest you might have.)
- Braille also makes a *lot* of games accessible, if you're interested. http://www.64ouncegames.com/ makes a lot of accessibility kits for a ton of different mainstream board and card games, and ships free worldwide. [There's also a braille-adapted scrabble board and tactile chess sets.]
(http://shop.rnib.org.uk/home-and-leisure/leisure/board-games-and-dice.html) There's probably many existing tabletop gaming groups in your area that you could join and bring your own games to, and I find that gaming can really break the ice because you all have something you're there to do together.
- Braille also makes books accessible, which can also be an ice-breaker for socialization through joining a book club if you like to read.
- There's an [annual deafblind camp]
(http://www.deafblind2016.com.au/deafblind-camp) in Australia you could use to meet (and make friends with) deafblind people throughout the country.
- The NFB here in the US has a deafblind mailing list. The [site]
(http://www.nfbnet.org/) is having issues for me, but you can subscribe also by email using the instructions [here]
(https://nfb.org/listserv) and the group name is "Nfb-db".
Alright, so that's probably way more than what you were looking for, but if you want to know more please do reply and we can chat about what you're interested in, what you'd like to do, and what you're struggling with and see if we can't find some solutions or resources together.