Hi all, I was thinking that its been a while since there's been an introductory thread here, and as I'd love to get to know more of you, I was wondering: where are you from, what is your age and gender, and what condition do you suffer from if you suffer from a particular condition? I'm 22, male and Australian, and was both with cataracts. While I got them removed before they took all my sight, they still took most of it, sadly. I also suffer from micropthalmia and nystagmus, which have made it harder to treat.
whileonecode2 points6y ago
38, female, southern(ish) US, legally blind, mom to a teenager, software engineer who works from home.
I was born 2mo premature and developed severe ROP. I've been completely blind in my left eye since birth (had it removed when I was 17) and my vision in my right's extremely myopic; around 20/200, and I have a very narrow visual field. I also have severe nystagmus.
My ROP has been stable since birth, but I did develop angle closure glaucoma back in 2008 and had to have a surgical iridectomy for that after two failed laser iridotomies. This caused a small cataract I'd had since birth to start getting worse, and in December of 2011 I had cataract surgery, followed by an anterior capsulotomy in August 2012 (it started to re-grow!) and a posterior capsulotomy in November of 2015. Somewhere along the line in treating the cataracts and the glaucoma, I also developed posterior vitreous detachment, but it hasn't affected anything, just another tic mark on the list of things that already put me at a high risk of retina detachment. - So far, so good, though!
Marconius2 points6y ago
Hi there, I live in San Francisco, male, and am 32. I lost my vision suddenly a little over two years ago due to medical complications from surgery, retinal arterial occlusion. Had bilateral retinoblastoma when I was a baby and lost my left eye to that when I was 2. The surgery I was having a few years ago was to help with vision problems stemming from long-term side effects from the radiation I had to kill the cancer back in the 80s.
blindambition-1 points6y ago
Hey everyone! I'm a 25 year old female from Canada. I have Usher Syndrome II, a form of deaf blindness characterized by moderate hearing loss at birth, which is stable and largely corrected with hearing aids, and RP that started in my early teens.
Namrakk1 points6y ago
Howdy. 25 y/o male with Cone-Rod Dystrophy & RP; severe visual loss/legally blind; unemployed attorney.
Vaelian1 points6y ago
I'm 34, male, Portuguese, and went blind 3 years ago due to a congenital glaucoma.
GuideDogAndHisQueer1 points6y ago
Hi I am Alun(gaelic for Alan)I live in Coldstream Scottish Borders. I was born with gluecoma and keratoconus and developed cataracts in my teens. I have had the surgery but have had very low vision for a while now. I am registered blind. I think our registration is different in the UK. We have partially sighted or blind.
k00l_m00se1 points6y ago
Howdy, I'm Jack, a legally blind bordering on totally blind seventeen year old. Been this way for a little over a year. Visual Snow and other potential unknown factors caused this, so I'm kinda stuck with no treatment and no timeline of what to expect and when
KillerLag1 points6y ago
From Toronto, and am male. Currently have most of my vision, but genetically pre-disposed to two different eye conditions (degenerative myopia and galucoma) and have a medical condition that makes me likely to have a different eye condition in the future (DR), and that isn't even counting Mac Degen. :S
Nighthawk3211 points6y ago
18/m here. I was blinded from a gunshot. BTW, but you can set your eye condition in your flair.
Vaelian1 points6y ago
How do you set user flare? It took me 2 years after going blind to return to reddit and flare didn't exist before I left so I have absolutely no mental image of where the option to add flare might be.
TurtleKnife1 points6y ago
I am a 19 year old male. My eye condition is called retinopathy of prematurity which I've had since I was born.
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