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Blind and Visually Impaired Community

r/blind

Full History - 2017 - 01 - 21 - ID#5pddft

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"How I See the World" - Retinitis pigmentosa, visual snow and severe tinnitus (youtube.com)

submitted by remigusvarg

k00l_m00se 2 points 6y ago

Oh shit hi, I have visual snow! First one to go this blind from it actually. AMA!

remigusvarg [OP] 2 points 6y ago

Please tell me more. What do the doctors have to say about this?

k00l_m00se 2 points 6y ago

They're completely baffled. Even Goadsby. We're building an archive of test results and brain scans. I've given up on trying new medicine because it's come close to killing me more than once. My body reacts really poorly for some treason. It's pretty sucky but it could be worse

remigusvarg [OP] 1 points 6y ago

Let me just get this straight though, you went blind from the snow? But now, do you still see it? I have to admit I'm also scared. Scared that if my eyes finally go dark, I'll still be left in this hell of noise, but nothing but the noise, and blackness

k00l_m00se 1 points 6y ago

Legally blind most days, and totally blind some days. This sounds weird but I hardly notice it anymore. I live a full, happy life, get an education and hold a job. I would give a lot to just shut off my eyes, because I've really stopped using them

TotesMessenger 1 points 6y ago

I'm a bot, *bleep*, *bloop*. Someone has linked to this thread from another place on reddit:

- [/r/transcribersofreddit] $1

[](#footer)*^(If you follow any of the above links, please respect the rules of reddit and don't vote in the other threads.) ^\($1 ^/ ^$1)*

[](#bot)

vlahos 1 points 6y ago

My husband has retinitis pigmentosa since his late 20's. He says that it's like in this video.
https://www.youtube.com/watch?v=UCLmDHRM4qo
But less quality. Like seeing through two little holes.

[deleted] 1 points 6y ago

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[deleted] 1 points 6y ago

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