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Blind and Visually Impaired Community

Full History - 2017 - 02 - 12 - ID#5tm4ij
7
Seeking advice from those that have lost vision... (self.Blind)
submitted by FoggyRiver
First the background: I am a 40 year old woman with Multifocal Choroiditis. As this is a relatively rare condition, let me explain that my vision is much like those with macular degeneration although the causes are very different. Due to lack of treatment and misdiagnosis I have lost all center vision in my left eye. I am undergoing treatment to preserve as much vision as possible in my right eye. Despite aggressive treatment there is a possibility I will lose my center vision in the right eye either due to the treatment not working or complications of treatment. Currently my vision is 20/20 or better with correction in my right eye. I have cataracts as a result of treatment with steroids which are having an impact on my vision but I am putting of surgery for as long as possible.

Any future vision loss will be sudden. As such, I feel compelled to "prepare" but feel foolish doing so as it is possible I may never experience any additional significant loss. Currently, I am making myself knowledgeable of the technology available to assist those with vision impairment. As I will likely always have some vision or peripheral vision magnifiers and other similar tools as used by those with macular degeneration are likely some of my best options in combination with readers, etc. I have no intention of learning Braille, it seems a little late in life for me and due to other technology, not needed.

My question is simple, do you have any suggestions? Knowing what you know now, if you were told that it is possible that you would be going from sighted to legally blind overnight at some point in the future, is there anything you would do to prepare to make that transition easier?
KillerLag 3 points 6y ago
If you have an iPhone, you should consider practicing with VoiceOver. It's one of the better assistive technologies that is easy for people to use. Also definitely contact you local agency to get somne training. It makes training a lot easier if you have more residual vision. One of my coworkers was once training someone for braille, and they would drive home after the lesson.

Braille isn't absolutely necessary nowadays, although it can make things easier. Many adults who lose their vision in life usually don't learn braille (rough estimate, maybe 2 or 3%), as the technology to access information has shifted more to audio formats.
ravenshadow2013 3 points 6y ago
i was told that very thing so i was sent to a sight center to teach me skills i would need to function as a legally blind person i was fortunate enough that they knew i was going to loose my sight to some degree that i was even enrolled in a blind school to prepaire me for what was to come it was kinda weird the last 2 years of my school i was driving to a blind school to go to class
FoggyRiver [OP] 2 points 6y ago
That is awesome that you were given that opportunity.
Otherwise_Computer79 1 points 1y ago
Did u need corrections before disease
Sommiel 1 points 6y ago
Contact your local Department of Rehabilitation, if you are working, they will go out of their way to see that you get any training that you need. There is also The Braille Institute.

I agree with the learning braille. I have been trying (I am older than you are) to no avail, it's never going to be second nature. Even a sign in a building is a giant struggle for me.

The best thing that I can recommend to you, is get your mobility and travel training ASAP. That way, you won't be tempted to isolate yourself if things get bad, quickly. Learn the technology as soon as you can.
GuideDogAndHisQueer 1 points 6y ago
My vision loss was a slow progression. I found that it was much easier to use screen readers and voice over etc when I needed them. It didn't take me that long to get into the swing of it. The trick for me was getting proper training. I am in the UK and went to low vision unit for computer, magnifier and phone training. RNIB for white cane and guide dogs residential for guide dog training. Your area may be the same that different agencies do different training but it's worth it. Good luck.
FoggyRiver [OP] 1 points 6y ago
Thank you so much for your reply. I have tried using screen readers, voice over, etc and have had a difficult time with them. I instinctively felt they would be easier to use when needed but it is good to hear that was your experience as well.

I am making myself of the resources available in my area in the case I need them.
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