Blind and Visually Impaired Community
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Just FYI - gene therapy clinical trials for achromatopsia and X-linked retinoschisis (self.Blind)
submitted by AGTC_
Hello everybody,
My name is Matt and I work with AGTC ( http://www.agtc.com/ ). You may already know that AGTC is developing gene therapies for the treatment of conditions including X-linked retinoschisis (XLRS) and achromatopsia (ACHM) caused by mutations in the CNGB3 gene.
We thought you may be interested to learn that AGTC is currently seeking participants for its gene therapy clinical studies for the treatment of XLRS and ACHM.
If you or anyone you know is interested in learning more about these trials, including information about who qualifies to join the trial[s], please visit agtc.com/patients-and-caregivers or email us at jdolgin@agtc.com.
Please don’t hesitate to email us with any questions.
Find out more about AGTC at www.agtc.com, and you can also find AGTC on Twitter ( www.twitter.com/agtc_ ), Facebook [ www.facebook.com/AppliedGeneticTechnologiesCorporation ] and YouTube [ www.youtube.com/channel/UC8ClmLoa2PKz2M5lM2gWoOQ ].
Thank you,
Matt
My name is Matt and I work with AGTC ( http://www.agtc.com/ ). You may already know that AGTC is developing gene therapies for the treatment of conditions including X-linked retinoschisis (XLRS) and achromatopsia (ACHM) caused by mutations in the CNGB3 gene.
We thought you may be interested to learn that AGTC is currently seeking participants for its gene therapy clinical studies for the treatment of XLRS and ACHM.
If you or anyone you know is interested in learning more about these trials, including information about who qualifies to join the trial[s], please visit agtc.com/patients-and-caregivers or email us at jdolgin@agtc.com.
Please don’t hesitate to email us with any questions.
Find out more about AGTC at www.agtc.com, and you can also find AGTC on Twitter ( www.twitter.com/agtc_ ), Facebook [ www.facebook.com/AppliedGeneticTechnologiesCorporation ] and YouTube [ www.youtube.com/channel/UC8ClmLoa2PKz2M5lM2gWoOQ ].
Thank you,
Matt
vitaly83 2 points 5y ago
Hey Matt,
Our son has been diagnosed with XLRS, the doctors said "accept it" and move on...
I'm feeling so optimistic knowing that you guys are working on it it actually made me feel happy for the first time in the last two weeks (since he has been diagnosed).
Do you know perhaps where can we get more information about the XLRS? how it progresses? what can we do to slow it down? He's only 5 years old... He doesnt deserve to be blind...
:(
Thank your for what you guys are doing!
Our son has been diagnosed with XLRS, the doctors said "accept it" and move on...
I'm feeling so optimistic knowing that you guys are working on it it actually made me feel happy for the first time in the last two weeks (since he has been diagnosed).
Do you know perhaps where can we get more information about the XLRS? how it progresses? what can we do to slow it down? He's only 5 years old... He doesnt deserve to be blind...
:(
Thank your for what you guys are doing!
AGTC_ [OP] 1 points 5y ago
Hi, please contact us at advocacy@agtc.com.
No_Rolf_Noo 1 points 6y ago
Glad to hear people are working on a cure, thank you. Where I am from the doctors I see about my eyes just keep saying no news every year, I have asked about trials but nothing going on as our population is so small (around 2 million)
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