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Blind and Visually Impaired Community

Full History - 2017 - 06 - 07 - ID#6fwk45
4
Blind/low Vision Parents (self.Blind)
submitted by birdski063015
Hello Redditers.
I have low vision and my husband and I are considering having kids. Apart from the transportation issue what are some challenges that are unique to blind/low vision parents?
KillerLag 5 points 6y ago
Be prepared for people to judge your parenting. I've worked with plenty of blind/low vision parents, and other parents always question them, saying "How can you change their diapers?" to "How can you make sureyour kid doesn't [whatever thing kids are always doing that has some risk]?". They aren't always trying to be mean, sometimes they are ignorant. But in some cases, other parents can be jerks. Also, double that for some grandparents. I've seen some grandparents basically telling their low vision kids that they can't raise kids because they can't see well.

Also, depending on the cause of your vision loss, you may want to consider genetic screening if it is something that is inheritable. It may not matter to you, but you never know.

One issue that came up recently was specific to albinism. The father was extremely blond, blue eyes, pale skin... his kid had tan skin and jet black hair (mother was of Indian descent). While riding the bus, a member of the public called the police, because they thought he was kidnapping him. It was a extremely embarassing for the father, because the police had to question him. It worked out in the end, though.... the police gave them a ride back home in their cruiser.

http://globalnews.ca/news/2582204/albino-father-and-his-son-escorted-off-toronto-bus-by-police-after-suspected-abduction/

(I work with the mother, and she was PISSED, though).


EDIT: Sorry, one last thing I thought of as well. If you are a cane user, it can be difficult to use a cane and push a stroller. However, if you wear your kid in a harness, make sure you've brushed up on your cane skills as well. I had a parent who had their kid in a harness, and walked into TWO poles before calling for O&M help. :S

birdski063015 [OP] 1 points 6y ago
Thanks for your response. I never really thought about that. But I am also not surprised. I am not a cane user but we really don't know what my vision will be like over time or how the effects of being pregnant will impact me. I have wanted to get genetic screening to know the chance of passing it down. However, my insurance won't cover it and the test is not common. So we are assuming it will be. It most likely is a genetic mutation as there is no prior history of it in my family.
JackEsq 1 points 6y ago
Check out the $1 program. We were able to get free genetic testing for my daughter, but it may depend on your diagnosis.
tymme 1 points 6y ago
Just FYI- I contacted them to ask about their treatments and some testing. I didn't see it on their website but got this reply about the range of testing:

"The ID Your IRD genetic testing program was created to help individuals gain access to genetic testing to help determine the genetic mutation causing symptoms related to Retinitis Pigmentosa, Leber Congenital Amaurosis, and Choroideremia."
tymme 1 points 6y ago
Wish I knew about this for our first two sons. Then again, I'm in the lucky 5% whose defect doesn't show up in DNA testing. If it wasn't for bad luck....
KillerLag 1 points 6y ago
Depending on your medical history, also remember that some women get gestational diabetes. That can cause some minor issues, including vision changes as well. Talk to your doctor about that.
[deleted] 2 points 6y ago
[deleted]
tymme 2 points 6y ago
Lots of questioning about your ability to parent (others and some from yourself, probably, too).

I sometimes miss bits with diapers, so I have the wife do a butt check before closing up. Lack of depth perception meant I spoon-fed when there was enough time to have a bath afterwards.

Communicating with partner is the biggest thing, letting her know what I can and can't do. My vision's in a state of fluctuation right now, so sometimes when we go out, I have to have her be more attentive to the kids than when I can see better and handle at least half of the watching. It also amplifies the feeling of dependence, which can lead to frustration on both sides.

Overall, though, no parent really knows what they're going through at first, so you'll learn what you can and can't do as you go as much as any other parent. You'll just end up with a few different things than most.
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