Next week I begin radiation treatment for a tumor on my optic nerve. My radiation oncologist says the amount of radiation needed to eradicate the tumor will blind my left eye. Is there anyone here who lost vision in only one eye? If so, what was your experience? How quickly did you adjust? I love racing cars (on a track), skateboarding, surfing, mountain biking, and photography. I want to get back to some of that as quickly as possible.
Asajev5 points5y ago
Well man I am blind from my right eye and almost blind from my other. What things do you want to know in specifics. I can tell you the number one thing to adjust is you will no loonger have depth perception. The way I do it is through experiance but physically we no longer can tell how deep something is. If you want I can tell you more in this post or send me a PM and we can talk in private it is the same to me. I am Blind on my Right Eye and legally blind on my other as well as an Adaptive Technology Instructor by profession.
ScoobsFXT [OP]3 points5y ago
I’ve been talking to a guy who used to be a professional skateboarder but he lost his right eye. He told me his mind seems to have compensated for the loss of his eye and he was able to resume normal activities such as driving and even skateboarding after only one month. I’m praying for the same!
Asajev3 points5y ago
It should not be that much of an issue in most cases. Since you had vision in both eyes originally your brain has the concept of depth and will most likely start using object size to estimate distance and depth. This is at least how my vision works. Most of the "Problems" that you will experience are on a case by case basis but with a little bit of rehab you should be fine. I do not know were in the world you are located but most countries have an organization that works with individuals that have lost vision. They can provide rehab training and additional support. If you need help finding resources then let know and I will send you some links.
B-dub312 points5y ago
My vision loss started with my left eye. Even if you still have any sight left in the bad eye, your brain will likely use your good eye for your entire visual field (you will see very minimally/not at all out of your bad eye unless you shut your good one). As far as effects, your depth perception will suffer. As far as driving, you will miss things like glancing in your side and rear view mirrors like usual. To see a direction, you'll have to move your head to look that way. It makes it harder to see when turning left across traffic or changing lanes, so take your time and give yourself plenty of space. The hardest thing for me driving with one eye was situations where you have lanes merging from the left and right, like at interstate exchanges. You will adapt quickly, but you will notice a decrease in your visual awareness. Good luck! I am dealing with optic nerve damage too and my ophthalmologist is a researcher and he thinks there will be treatment breakthroughs in the future. Hang in there and you've got this!
jennytwo1 points5y ago
Do you mind asking your doctor to speed up that research? 😊 I miss driving more than anything!
B-dub311 points5y ago
Me too. I went from driving everyday to needing a ride everywhere. I’ve Probably driven at least 500k miles since I got my license (I’m 39 now). I’m closely following the development of autonomous cars. Anything so I don’t have to depend on someone to get me where I need to go.
jennytwo1 points5y ago
I was ALWAYS the driver from 16-31. Now at 33 I have to call my retired father for rides...it’s like I’m 12.
Stupid optic nerves and their paler! 😢
B-dub311 points5y ago
Me too. I’m a terrible passenger, especially if I’m in the back seat...lol. My wife hauls me around, and when she's not available, my retired father-n-law does. I feel like I’m a burden sometimes.
ScoobsFXT [OP]1 points5y ago
That’s pretty awesome that your ophthalmologist believes there will be treatment in the future. I’m in the middle of building a car for autocross racing. It’s definitely going to be an adjustment relearning how to drive. Fortunately if I screw up I just nail a bunch of cones! Thanks for your insight.
jennytwo1 points5y ago
I am almost completely blind in my left eye and 20/25 (with blind spots) in my right. The weirdest for me is depth perception and the dizziness that comes with it. I still see some light in that eye and if I am trying to focus really hard I’ll close that eye and it sharpens it a little. Good luck :)
ScoobsFXT [OP]1 points5y ago
I didn’t mean to ignore you at all. I read this on one of my sleepless nights in which I’m too tired to sleep but not awake enough to respond. Fortunately it’s the former tonight. Thanks for the info. I’m praying my right eye remains perfect. So far they don’t have any reason to believe it won’t!
LionsDragon1 points5y ago
A bit late here, but...I lost vision in my right eye. I'm an artist, so this hit me pretty hard. It's taken me a couple of years to adjust, and tbh I don't think I'm totally there yet. I've re-taught myself how to see a lot of things, and it's actually helped me become better at what I do. (I have a previous post here about how my synesthesia helps.)
You might laugh, but what I've found really helpful are hidden object games on my tablet. They've helped me re-learn how to pick out shapes and distinguish shades of colors. I really, really recommend "Mirrors of Albion" because they also add scenes with temporary visual distortion; at first I would dismiss the distortions, but I soon learned the added challenge was helping me. I've even regained a tiny bit of vision in my right eye, which completely shocked my eye doctor!
I miss depth perception more than anything. I was already clumsy, so I really didn't need to make it worse. I've learned that sometimes I have to warn people so they don't come up on my right side; my startle response is no joke! My husband makes a point of never sitting to my right when we're in conversation, and in groups with friends or family I've noticed they often offer me a seat with my right side to a wall.
If you want to talk about art with one eye, feel free to PM me. I hope the treatment goes well!
payown1 points5y ago
No problem, and there are amazing resources now available to an individual who loses vision. Wish I could remember the name of the blind skateboarder, but I’m sure Google can be your friend here.
payown1 points5y ago
I can’t really help with the aspect of losing vision in one eye, I’ve been completely blind since birth. Had light perception until I was about 13, and then eventually lost that as well. No matter what you want to do, your blindness isn’t an aspect I could hold you back from accomplishing anything. There are a few blind skateboarders, search for them on YouTube. Additionally, I coach blind small business owners on how to leverage technology to build automation into their businesses, which is an exciting avenue for connecting with people as well.
ScoobsFXT [OP]2 points5y ago
Thanks for the encouragement. I was in brief communication with Mike Rogers, who used to a professional skateboarder. He lost one eye after a bout with cancer and still skates. He runs Grind For Life which raises money for cancer patients. He told me it took him a month for things to be relatively normal.
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