I have a different type of MD, so i don't know if this will help.

If you do get to the point where correction won't help, remember that visual impairment isn't the end of the world. You'll still be able to live a fun and fulfilling life

Assistive technology will definitely be your friend. Both andriod and apple products have accessibility features, but imo, apple is way better.

If have an iphone/ipad and you don't already have "zoom" enabled, you might want to turn that on. Go to settings, general, accessibility, and then turn on zoom. It might take a while to get a hang of it, but its pretty helpful. There's also various other features for visual impairments, so you might want to play around with those. If your vision gets to a point where you can't read print at all, apple also has a feature called voiceover preinstalled in all of their products.

Don't be afraid of using the cane. Its an incredibly helpful tool that took me way too long to use. It serves as an indicator to other people that i can't see well. Yeah, you'll occasionally get some rude people who'll think that you're faking , but for the most part the benefits of using the cane outweigh that price.

Expect to hear weird questions all the time. Be patient with the sighties, most of 'em don't know any better.

If you have any questions, let me know

I have some form of MD, most likely myopic but I just had my 2nd bleeding/distortion in my left eye. Right was about a year ago. I also got Avastin shots and it helped the right eye, waiting to see how much it improves the left (got it yesterday).

I know you're looking for help, but I can't give you much insight as I'm about where you are at the time you posted this. Just curious if you've had any updates. I'm 28 and still have 20/20 (w/ correction) but I didn't expect my other eye to bleed so soon after the first

I'm sorry you're dealing with this. I was diagnosed with MMD about 4 years ago, and it's really difficult to know what to expect since there's no way of anticipating when a bleed may happen or what lasting impact it may have. I haven't kept close track, but over the past 4 years I've had 12 or 13 shots total between both eyes, which is a bit more frequent then most people with MMD. I've had one bad bleed in each eye which has left central vision distortion from the scarring on the macula. My visual acuity with corrective lenses is 20/140 in my left eye, but still 20/40 in my right eye. I still drive during the day, but I stick to places that I'm familiar with since reading street signs can be difficult.

The injections to treat macular degeneration only started being used about 10 years ago, so for those of us who are being diagnosed at a younger age, there's really not much information available to know what the long term outcomes may be, along with the fact that you can go over a year without a bleed and have things be normal, and then a day later have one that severely damages your vision. Or one that doesn't leave behind any scarring. I know that's not entirely helpful, but as another poster mentioned, myopic macular degeneration really doesn't have much research done on it, and most resources I've found just include it as a footnote when talking about regular macular degeneration. I do believe your doctor is correct and in the majority of cases, people with MMD receive injections very infrequently and can go a long time without having an episode. And you learn to adjust to the changes bleeds do cause to your vision. If you're on Facebook, there is a group that I'm in called "Fight macular and myopic degeneration" that has been helpful, both in asking questions and hearing experiences of those who are also dealing with this, to simply venting frustrations to a group who understand what you're dealing with, since it's hard to explain to others. I'm happy to answer any other questions you may have about my personal experiences with this.

That particular eye condition unfortunately has very little research done with it. Which is odd, considering it is the 7th leading cause of vision loss in the US and the 2nd leading cause in China/Japan.

May I ask what your prescription is? I will likely end up with this condition as well, and my prescription is -14 or so.

Last I heard, there was a treatment for it, but I'm not sure how well it was working. It was called scleral reinforcement or scleral buckling. Definitely talk to your doctor about that, because I'm not up to date with the newest research.

The eye condition can be manageable, but it is very difficult to predict. There are other things related to that eye condition as well, such as glaucoma or retinal tears. You would want your doctor to closely monitor your eyes, and see them ASAP if you notice any sudden changes.

As others have mentioned, assistive tech is also allowing people greater access to the world as well.