Blind and Visually Impaired Community
↑
15
↓
I "lost" my vision from an injury later in life, but I am not considered blind. I was taught how to use a cane and everything. I'm just in a place where I am confused on who to go to for support. Is this the right place? (self.Blind)
submitted by CourtM092
I lost my vision from a traumatic brain injury 4 years ago. So, my eyes work but my brain doesn't, essentially. I have something called Balint's Syndrome. Initially, I was blind but I didn't know I was. I saw no light at all (according to tests), but after vision therapy, I relearned how to use my eyes, in a way.
My neuro-eye doctor then said that I have Balint's Syndrome. I can see things, but I only see one thing at a time. Like I can see your face, but I can only see one eye I blink a lot and refocus and then I see a little bit more. I have to use apps to read and write, as I can't understand what I'm looking at. I use my touch and canes for most things while moving about. It's like I'm blind, but not actually blind.
I'm sorry for this post, I just feel a little lost in my recovery. I'm in r/tbi often, but no one there really gets not being able to see. But I'm not really blind... like I can see light, I have perfect vision, I just can't ***see*** things. I'm just trying to find some sort of community where I might feel like I belong in and where they understand the struggle.
Sorry if this is in the wrong place, if it is then I'll just take this down, it's no big deal.
My neuro-eye doctor then said that I have Balint's Syndrome. I can see things, but I only see one thing at a time. Like I can see your face, but I can only see one eye I blink a lot and refocus and then I see a little bit more. I have to use apps to read and write, as I can't understand what I'm looking at. I use my touch and canes for most things while moving about. It's like I'm blind, but not actually blind.
I'm sorry for this post, I just feel a little lost in my recovery. I'm in r/tbi often, but no one there really gets not being able to see. But I'm not really blind... like I can see light, I have perfect vision, I just can't ***see*** things. I'm just trying to find some sort of community where I might feel like I belong in and where they understand the struggle.
Sorry if this is in the wrong place, if it is then I'll just take this down, it's no big deal.
pokersnek 11 points 5y ago
You are not alone. There is a whole category of VI called Cortical Visual Impairment. It means that the eyes are fine, but the brain does not interpret the nerve signals properly. Usually, it’s diagnosed in children and has a wide range of impact on a person’s vision and life.
There are two categories that people can fall in to: legally blind and functionally blind. It sounds like you are functionally blind. While your eyes may be able to see, it is not enough for you to function as if you had your old vision. It sounds like you’ve taken some good steps in getting some rehabilitation services. Is there something more that you would like to learn to do?
There are two categories that people can fall in to: legally blind and functionally blind. It sounds like you are functionally blind. While your eyes may be able to see, it is not enough for you to function as if you had your old vision. It sounds like you’ve taken some good steps in getting some rehabilitation services. Is there something more that you would like to learn to do?
[deleted] 3 points 5y ago
[deleted]
angelcake 8 points 5y ago
Going from what my partner, who is legally blind, has said it’s a literal grey area. If you’re not fully blind people make the assumption that you can manage just fine. That if you “work hard enough at it“ you can see OK. I know when he went back to university in his late 40s and trying to get help they told him basically he wasn’t blind enough. Not those words or any words that he could use to raise a human rights case but that was the gist of it. He still graduated with honours cause he’s a smart guy and worked his ass off but it would’ve been a lot easier on him if he had had some support.
fastfinge 3 points 5y ago
Wow, that sounds tuff! And while it's not something I have any experience with, we welcome all types of vision problems here, no matter the cause.
[deleted] 3 points 5y ago
[deleted]
Jibjablab 1 points 5y ago
Wait so your eyes work but your brain doesn't. But you wrote a functional post. What do you see when shown a picture of a unicorn? Not a unicorn?
[deleted] 1 points 5y ago
[deleted]
This nonprofit website is run by volunteers.
Please contribute if you can. Thank you!
Our mission is to provide everyone with access to large-
scale community websites for the good of humanity.
Without ads, without tracking, without greed.
scale community websites for the good of humanity.
Without ads, without tracking, without greed.
©2023 HumbleCat Inc • HumbleCat is a 501(c)3 nonprofit based in Michigan, USA.