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Blind and Visually Impaired Community

Full History - 2017 - 12 - 24 - ID#7lwr4q
1
Keratoconus (self.Blind)
submitted by ktthemighty
Not blind yet, but was just diagnosed with keratoconus, which is progressive vision loss over time, with basically two treatments
One involves lasers and riboflavin. The other option is wait till I'm blind and hope for s cornea transplant. Rinse and repeat for the rest of my life. And I have it in both eyes. Yay me. So basically, not blind yet, but headed that way.
doodoobrown530 3 points 5y ago
As someone who works in the low vision field and has KC I’m going to go out on a limb and say you will not go blind. While it is possible it is highly unlikely. You’re vision may deteriorate as it progresses, but you’ve already discovered that cross-linking will slow if not stop the progression. It is definitely scary at first, but KC is manageable and you may simply need to use a different type of contact lens or possibly have a corneal transplant. Also, I had a corneal transplant and it is not nearly as bad as it sounds. Deep breaths. You got this!
LegoCamel6 1 points 5y ago
How much do you think the corneal transplant helped you, I'm asking because my dad has keratoconus and is considering the transplant.
awesomesaucesaywhat 3 points 5y ago
How severe is your kc? Is it manageable (sclérales or rgp)?

Step one is not freaking out.
Step two is crosslinking to prevent progression.

The vast majority of kc is manageable, you've got this.

Source: have kc, legally blind due to complications from severe dry eye that make it uncorrectable
ktthemighty [OP] 2 points 5y ago
We don't know yet. Currently see fine with glasses. It was found at my University ophthalmology clinic by their cornea guy when I went to see about laser vision correction. He basically said nope, we'll get old records to see how you've processed, and go from there. If I'm progressing fast, they'll do this cross linking thing and wait and watch for progression
awesomesaucesaywhat 2 points 5y ago
it's great that your vision is still correctable!
[deleted] 1 points 1y ago
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doodoobrown530 1 points 5y ago
It helped but there are options including hard (scleral or RGP) contact lenses and corneal cross linking that could be a little less invasive, but nonetheless beneficial. Everyone is different and it really varies case by case. I know that's a vague answer. My personal situation I'd say it helped, The surgery wasn't really a problem for me, and it allowed my vision to be corrected to a comfortable acuity. I remember seeing individual blades of grass and leaves on trees that I never really knew were blurred together the day after the surgery. While I would say that it wasn't the Earth shattering perfect vision I imagined it was a necessary step in helping me achieve a comfortable functional quality of vision. I'd say research. Talk to doctors and surgeons, but the advice from some guy on the internet is that it was useful and I'd do it again if given the choice a second time.
[deleted] 1 points 5y ago
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