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Blind and Visually Impaired Community

Full History - 2018 - 01 - 18 - ID#7r7gze
22
Found out I'll be legally blind and may lose vision entirely... but boredom scares me much more. (self.Blind)
submitted by Squidderf
I have Aspergers and ADHD, I rely heavily on the sight I have to do my work as an electrician, and to enjoy my various hobbies.

I had an ophthalmology appointment yesterday and found out I had severe glaucoma, to the point I may lose vision entirely... I am devastated not because of the future loss of my vision, but because I'm more concerned about my hobbies.

I've tried to research activities that I might enjoy, but I've seen sites suggest things like bike rides, decorating cookies and making salads... Things I would assume you kinda need your vision for, to enjoy.

Can someone help me figure out some new hobbies?
Ramildo 16 points 5y ago
I have the same problem except that I'm a little further down the road as I went blind due to glaucoma 4 years ago and am yet to adapt, so my days are boring as hell.

I used to code as both a hobby and professionally, and although I love it I just can't do it blind because there's this huge mental drag associated with it in which I am required to memorize entire source files or waste 10 times longer reading them, so I end up wasting all my mental resources attempting to understand code and can simply not focus into the actual problem that I'm trying to solve. I really really don't understand how anyone can feel comfortable coding blind, and I have a huge intolerance to discomfort.

3 months ago I decided to learn piano. Since I couldn't read sheet music my teacher started recording MIDI files for me to play by ear and still have a way to read the notes when I can't pick up certain dissonances or chords. Unfortunately with the end of the first grade fast approaching my teacher has already warned me that in second grade the fingerings won't be as intuitive and I'll have to find a way to read them from the music score because obviously they don't come in the MIDI files that he records for me, so I may have to quit.

Blindness is like this, full of limitations that require workarounds that more often than not don't address 100% of the problem, and society expects us to adapt to this crap.
cS47f496tmQHavSR 3 points 5y ago
It's a bit late and you may have already gotten plenty advice since your post, but I still want to chime in.

I've been playing piano since I was smaller, never had any learning issues but I was definitely a troubled child with a lot of mental/emotional chaos going on. Piano was my way to cope, calm down, focus on one thing and feel like I was at peace for as long as it lasted.

The thing is, due to my enjoyment in playing piano I never cared much for sheet music. As a result I can't read sheet music at all, I can read the C note that's in the middle of the piano on a normal piece of sheet music where it's in the line below the block of lines, but that's it. If music starts in a different key I get stuck and any other time I have to count out which note is which one by one.

I also had a teacher who basically told me that I had to start learning how to read sheet music or that I'd probably have to stop, because it's 'impossible' to memorize entire pieces and it'd be hard to learn how to play a certain piece without reading the intent on paper.

I said screw that and kept going. As a result there are a number of classical pieces that I have memorized and can play perfectly without reading sheet music. Some of these I play by ear so well that I can tell when my parents' piano needs to be tuned, but that may partially be perfect pitch hearing.

As hard as it may be to power through and play piano without reading sheet music, it absolutely is doable. Don't give up one something amazing. I currently can't play because the electrical piano I have feels and sounds completely wrong, and it hurts me to think about every single day. As long as you have the ability to keep practicing, don't give up.

Listen to music, feel the music, learn how to separate the way someone plays from what they're actually playing and you'll eventually be able to listen to a song a couple times and just play it.

Anyone can learn this, especially someone who doesn't have the downside of also seeing what they're doing. The only time I mess up is when I look at my fingers.

Don't give up. Don't listen to that teacher.
rollwithhoney 2 points 5y ago
It seems like it would be incredibly difficult to become blind later in life as opposed to early. I have many blind coworkers and the ones who have been blind their whole lives are incredibly fluent in braille while the ones who lost their vision later on are still learning and adapting. It's definitely a problem without an easy solution. I would say though not to give up on music, it will be worth the effort you put into it. Good luck my friend!
lepton 1 points 5y ago
Have you tried $1 It is a code editor designed specifically for blind coders by a blind coder.
Ramildo 3 points 5y ago
No, but just by looking at the description it sounds like something I wouldn't use because it's a console app (and I avoid the console like the devil since it's not semantic), it's just an editor as opposed to an IDE (code completion helps to reduce errors when you're blind) and it only supports Ruby (a language in which I don't code and don't intend to code). While I agree that Xcode is kind of crap for the blind (I can't code with code completion enabled because it floods the screen-reader with useless information) I found Visual Studio to be quite accessible and usable. My problem is not the IDE, it's the fact that I have to remember entire source files or waste a lot of time reading them because I can't just take a quick glance at code and scroll using blank lines and indentation as landmarks. It's a quality of life problem, not an accessibility one. Sound is simply not the best way to convey information about code, and neither is a Braille display that only shows one line of code at a time. I'm also not saying it's impossible to code, I'm just saying that for someone who was used to coding with sight it's a tragic degradation to my quality of life, and I've have a very hard time accepting regression.
doodoobrown530 1 points 5y ago
To be perfectly honest I don't know much about coding. Have you tried to use programs like JAWS, MAGIC (I heard they may phasing MAGIC out) or Zoomtext? I'm not sure how they'd interact with coding but they're worth investigating. Also check this guy out.

https://youtu.be/iWXebEeGwn0
Ramildo 2 points 5y ago
Yes, I use NVDA, and yes, I can code Hello World programs just fine. It's when sources start becoming large that I start having problems.
dmazzoni 12 points 5y ago
Why wouldn't you be able to decorate cookies or make salads? If a totally blind chef can win Masterchef, you can cook or bake too if you want to.

Blind people also enjoy riding bikes. The easy option is tandem, but there are other options like learning to ride with a guide in front of you who calls out turns.

There are also ways for blind people to ski, run marathons, and enjoy many other forms of sports and exercise.

Other ideas include ballroom dancing, computer programming, any type of tactile art like ceramics, and much more.

The only limit is your imagination.

You might want to try reaching out to blindness organizations for help. Meet some other people who are blind and find resources and ideas.
Squidderf [OP] 3 points 5y ago
I'm not saying it's not possible, but I'm single so a majority if these options are rather difficult or very dangerous to do by myself, especially while I'm trying to adapt... Long term goal and/or something to try with a friend or loved one sure.

But like I said, I have Aspergers and ADHD, which are two things that do not mix well, I despise sitting still and having nothing to do, which is why I'm more concerned about my hobbies than I am going blind. If I lack an activity to occupy me, I go stir crazy within 10-15 minutes.

Otherwise good advice about reaching out, I'll try that.
napoleon88 5 points 5y ago
I have ADHD and am a blind lawyer and musician. You can do it man.
awesomesaucesaywhat 5 points 5y ago
There's lots of crafts: crochet, knitting, tactile painting, ceramics

Music wise you could learn an instrument, I love listening to podcasts

This could also be a chance to get into reading!
Squidderf [OP] 2 points 5y ago
Reading may be difficult for me right away and, comparing my reading habits to audiobook narrators, they are way too slow to keep my interest.
dmazzoni 3 points 5y ago
Audiobook software and even hardware audiobook players let you speed up the audio without changing the pitch or quality.

I know blind people who listen to books at 2x speed
awesomesaucesaywhat 2 points 5y ago
I get the books in a digital text format, that way I can control the speed, pitch, etc.

Human narration drives me nuts. Too slow, often too much silibance, and gasping between sentences
ohheckdude 4 points 5y ago
My husband is legally blind, and has had pretty low vision since at least age 6 (he’s 25 now), but he enjoys art and video games — just really, really close to the paper/screen. You might be surprised at what you can do with very little vision.

Otherwise, he plays guitar (or anything with strings), and works on creating new and weird sounds with effects pedals, which is actually super fun and doesn’t really require vision at all.
SlapstickVampire 2 points 5y ago
I feel like not enough people mentioned smell, you could craft perfumes. I know of a blind guy who made his own coffee, because he cared so deeply about taste.

There's a blind movie reviewer too.
LUCKY12910 2 points 5y ago
You can do the same things you want now you just can't see. most likely there is a blind person with the same hobbies like you just look for them and ask them how they do it.
doodoobrown530 2 points 5y ago
There is still a ton of things that you can do besides "decorating cookies." Sure, you may have to make adaptations or use a tool that requires some getting used to but people who are blind can still go to the movies, listen to audiobooks, and play videogames. I actually just worked with a gentleman who was an electrical engineer and gave him some strategies to use at work. You're already ahead of the game by asking questions and researching for yourself. You have to be your own advocate and search but you'll be happily surprised by how much is out there. Things may be different from how you're used to interacting with them but that doesn't mean you have to discontinue all the activities you enjoy now.
PhotoJim99 2 points 5y ago
A blind friend of mine is huge into ham radio. She loves it. Quite a few transceivers accept voice chip upgrades so that they can speak what mode and frequency they are using.
BARDLover 1 points 5y ago
Skydiving

Hiking

Snowboarding

SCUBA

Pottery

Writing

D&D

Gardening
[deleted] 1 points 5y ago
[removed]
cyjc 1 points 5y ago
Creative writing, writing your thoughts, your stories ~
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