I had a pituitary tumor removed 9 years ago. It grew so big it damaged my optic nerves. Because of that, i have pretty much Glaucoma (Tunnel vision.)

So this video reassembles my vision a lot. Instead of the black outer area, it is grey blurry distortion on different amounts and levels. The doctor said im 80% blind.

https://youtu.be/v9CawJSUy2c

I have hallucinations about seeing the world around me which are very accurate at home but completely unreliable in unfamiliar places. In my left eye these hallucinations started to appear as an extension to my right eye's field of view since I lost vision in the left eye first. In my right eye the hallucinations are also present but are extremely blurry.

It's different for everyone. I lost my vision almost 4 years ago, and now my vision looks like very dark grey and low contrast TV static. The uppermost and lowest parts of my visual field are dark, like a letterboxed movie, and the edges blur into the main grey noisy central area of my sight. The lowest part of my vision still senses movement and high contrast, like a white plate on a black table, or seeing my hands clapping, but is less than 1% functionality. I see a miniscule flicker when lights around me change, and the overall value of the central grey changes when I'm outside, but ultimately cannot see shapes, light value, or color.

Partially blind person here (juvenile MD, probably stargardts or stargardts-like disease)- really blurry center field of vision and sparkly neon lights. I still have enough to read massive print, but only in some circumstances (usually with high contrast) for certain periods of time.

The lights are kind of hard to explain. They're constantly there, darting around and changing colors. They're kind of like semi-opaque semi-translucent moving sprinkles. They're even there when i close my eyes, so i technically havent seen complete darkeness in 4 years. And since they're not real objects that exist in the real world, i can't focus in on them to get a more clear understanding of what they look like myself.

A lot of what i see is kind of a surprise to me too. Sometimes my brain can fill things in because i can make assumptions about the people and objects surrounding me. For instance- if i see a dark shape in a certain setting at a certain distance, i usually assume its a human. The closer i get to things/people, the clearer they become.

I normally can't see faces unless i'm uncomfortably close (inches away), but i can often imagine the faces of people that i'm familiar with. Sometimes, my understanding of what a persons face looks like comes from a patchwork of memories of one- off glances where i had the chance to catch a decent look at some of their features. I can't see any of the fine details on people's faces (pores, thin hairs, most blemishes) even when i get close, so i usually just remember the most striking and obvious features. And even at that, i usually forget a lot of what those features look like because that information just isn't important enough for me to remember (unless the person is particularly attractive).

Strangely enough, i kind of forgot what it feels like to see things in 20/20. I can't imagine seeing an entire clear full image at all. Now, i just picture that episode of spongebob where everyone freaked out after seeing the close-up of the butterfly. I just imagine sighties see everything in a freakishly detailed way like that all the time.

Sorry for getting all rambly

I describe mine as looking through a fly screen window. Black dots everywhere.

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