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Blind and Visually Impaired Community

Full History - 2018 - 03 - 22 - ID#86ge3l
6
Help me help my dad (self.Blind)
submitted by majorthomasina
Hello, my father has slowly but completely lost his vision due to diabetes. He is also bedridden due to a bad fall. He has fallen into a deep deep depression. He now refuses to leave the house and hasn't left his bedroom in months. I got him an amazon echo. How can we use this to make his life better? Any tips or tricks? Also is there any way Alexa can read the direct TV guide and change the channel for him? It would be great for him to not have to depend on others to find something on TV. Thanks!
bradley22 5 points 5y ago
I'm quite sure there are tv boxes in the US, I'm assuming that's where you're from, that have speech. So your dad would be able to use the TV and watch (listen to) channels. Also Google Home would be great for looking up facts and other things like thatThere's Big Finish for Doctor who audio dramas and I believe they do StarTreck audio dramas too. The site is https://www.bigfinish.com/Result details

There's also graphic audio, another audio drama site. There site is here https://www.graphicaudiointernational.net/
majorthomasina [OP] 1 points 5y ago
Thanks! I hadn't heard of big finish. I am going to look at that asap!
homerq 4 points 5y ago
I have an elderly, completely blind parent I live with, here's what I can suggest.

Victor Reader Stream by Humanware. It allows access to internet radio (there are even channels for the blind). It has podcast capability, great for listening to news shows. It has a service that lets you read newspapers and magazines with a digital voice. Most importantly, it allows access to NLS BARD -- free audio books for the blind. Best of all, it does it all over WiFi -- for free. You just need to get an NLS BARD account, they will help you get that verification of blind status and set you up if you ask.

Amazon Echo is great for playing games and music, if you add a Fire TV, it can serve up Netflix content. Netflix has a growing library of content with descriptive audio for the blind. In the future, a growing list of Android TV devices will have Google Assistant which will quickly overshadow Alexa, hopefully.

Last but not least, an iPhone is essential. It's ability to be navigated without eyesight is remarkable, although it needs to improve. For example, it can be difficult to get Siri to read through your text messages. It is surprisingly easy to read your email and you can do things like banking. This is very important because having any control over your own life is very important to your well-being. Just a simple thing like maintaining your contact list and being able to call people just by saying their name is very empowering.

My mother's biggest concerns are being able to feed herself and being able to match her own clothing. There are iPhone apps that assist by having a person look through your camera and describe what you're looking at, even to the extent of reading labels for you. I haven't explored them because my mother is not very adept with anything technological since she lost her eyesight before computerized life came along Circa 1990.

It is very important to introduce these things slowly and at a manageable pace, because feeling overwhelmed is something that comes easily when you're blind. Frustration is an ever-present obstacle to mastering these devices. By far the most engrossing thing is being able to read books cover to cover whenever you want on demand for free, it helps build an informed and thriving internal life. As far as I can tell, that is the one thing that seems to help the most, especially since there is an element of escapism that is actually quite fun. Here's hoping he gets to read all the great sci-fi books of the 20th century and beyond.
majorthomasina [OP] 5 points 5y ago
Thank you so so much! I had never even heard of most of the stuff you mentioned. Its like bit of light at the end of a tunnel. I am out of state now but as soon as I get home I going to work on setting those up. I just want him to find any bit of joy in his life. Just thank you so much, that was exactly the type of advice I was hoping for. Forever grateful.
doodlebopsy 3 points 5y ago
Sounds like you’re doing the right things to help your dad.

Direct tv has a talking $1

Alexa works to control the TVs with Firestick

The iPhone is a limitless tool accessible with any level of vision. The iPod Touch is a much cheaper alternative to the iPhone if the phone part isn’t needed. I’d skip the Victor Reader Steam, it’s pricey and rather abstract especially compared to something as ubiquitous as the iPhone.

Talking Books programs are offered through each states’ library. Google STATE talking book program. It’s free and they mail the player, books and magazines. Once enrolled with the state library you can apply to $1 to download books to smartphone or other approved device instead of waiting on the mail.

The AFB has a $1 which is worth checking out. He’d likely benefit from services from a Certified Vision Rehabilitation Therapist (for daily living skills), and maybe a Certified Assistive Technology Instructional Specialist. IIRC he’s non-visual and non-ambulatory so O&M or low vision benefits would be slim.

AFB also has their $1 site which has tons of great info

ETA:
Adjustment to blindness is a difficult process for most. If local resources are unavailable (or he’s unwilling to participate) $1 has free correspondence courses including adjustment to vision loss and an Indpendent living series. The digital talking book player from the state library can be used to take most of the classes.
majorthomasina [OP] 1 points 5y ago
Thank you so much for all the great info and links! Its just been so hard. I never realized how much was available. Awesome. I am going to look into the adjusting for vision loss course for me! Maybe it will help me help him.
doodlebopsy 1 points 5y ago
You’re welcome. I know it’s hard not only on your dad but you and your family as well. Everyone needs to make adjustments. A high quality of life with vision loss is very doable, just need to get involved in the community and explore all resources available. Good luck! Feel free to pm if you have any additional questions.
estj136 3 points 5y ago
Don’t just limit him to an alexa. can he type, maybe get him a computer and a nice bluetooth keyboard or a smart phone or a tablet and give him a keyboard. He can do just about anything, from browse the news and do stuff you’re talking about. Maybe get him a TV subscription and have him watch stuff on the tablet or computer.?
majorthomasina [OP] 2 points 5y ago
I think a big problem is him not being willing to try to find ways to compensate for his vision loss. At what point is OK to say " OK you have to learn new things" like part of me thinks, he lost his vision he's entitled to spend his life wallowing in pity. The other part of me thinks NO! make a fucking effort to help yourself! I just have no idea how to fix this. I am just so sad, angry and frustrated.
homerq 5 points 5y ago
I'm afraid that the process of acceptance can take a year to 2 years or more. It depends on the person, and climbing out of that trauma and depression can be a very complex and difficult time. Fortunately the human spirit is resilient and adaptive, and almost anyone in that situation will eventually start asking for help and show interest in empowering themself. Even if it is natural, feeling sorry for yourself gets old and tiresome after a while. The important thing to understand, is as a human, he needs time to grieve for his loss. Such a process cannot have a deadline.
CuteHalfling 3 points 5y ago
Sorry to hear this it must be horrible watching a decline.

My blind relative uses a tablet. It reads the screen to her.
majorthomasina [OP] 2 points 5y ago
Thank you. It has been hard. He's just a shell of the man he was. I hide it as much as I can but I do get frustrated because its like he's just given up on life and is waiting to die. I can't be mad about it because I can't imagine how hard it is. I am really just grasping at straws now. Anything that might bring the smallest bit of joy or not even joy. Just something that interests him. Just something.
quanin 3 points 5y ago
It might help if we knew more about what he was interested in. There are all kinds of things that make TV guides and even TV's accessible to the blind, but whether any of them will work in his particular situation you've not given us enough to guess at. Comcast has an accessible cable box, for example, and if memory serves that includes reading the guide to him, but without knowing how technologically inclined it is it would be unwise to by default recommend it.
majorthomasina [OP] 2 points 5y ago
. He used to really enjoy playing poker. He also used to fish and he enjoyed watching football. He really likes sci-fi, like startrek.I remember he had a book that taught Klingon. I was hoping he could say something like "alexa , what's on channel 255" or "what's on the western channel" or even "Any John Wayne movies on today" right now TV is his only entertainment and he has to wait for someone to read the guide to him, then change it to whatever he wants to watch. He has directtv with all the pay channels plus I got him the fire stick. So he has Netflix, hulu & prime. I tried to get him to use the fire stick remote but he said it was to annoying. I get what he was saying because that remote makes it hard to tell if its upsidedown when you hold it if youre not looking at it.
vwlsmssng 2 points 5y ago
Touch dots, also known as bump-ons, can help with orientation and identifying the most useful buttons. E.g.
https://www.maxiaids.com/mixed-bump-dots
CuteHalfling 2 points 5y ago
Maybe have a play around on your phones accessibility options. My relative uses iPhone but I’m sure most phones will be just as handy
cjdudley 2 points 5y ago
Alexa can read audiobooks from Audible.com, and can also read Kindle books that aren't out in audio format using text-to-speech. My wife uses the echo to play CNN and NPR.

I just got a Harmony hub for the echo. I'm only just now figuring it out and all I can get it to do so far is turn the TV/DVD on and off. But supposedly, it can do other functions as well.
majorthomasina [OP] 1 points 5y ago
Great! I had never heard of the Harmony hub. At this point I am kind of feeling like even tiny steps matter. So if he can control the TV on his own, that's that much closer to one day having some sort of fulfilling life again.
GoneVision 1 points 5y ago
It may take a few weeks to get medical documentation of your dad‘s disability, so that you can apply for the free talking book program available through The national Library service for the blind and physically handicapped;however, in the short term, if you have 20 bucks to spare, get your dad a subscription to audible. The $20 a month plan gets you to Audible credits, which equals two books a month, and since I am a science-fiction and fantasy fan I can vouch for the fact that they have literally thousands of titles. He can tell Alexa to read his audiobook, and it will play him the book from audible. He can even say Alexa, next chapter, previous chapter, etc., to navigate through the book. Also, get him an iPhone. It is costly, but it’sthe single most life-changing electronic device that the blind can access. When you aren’t there to help him, he can use free apps like Be My Eyes, which utilizes the iPhone camera, and A network of 300,000+ volunteers around the world, who will help him with any task that requires vision. For example, if he wants to figure out whether there’s diet Coke or diet Pepsi in the fridge, needs to tell which bottle is shampoo, and which is conditioner, needs to get a shirt to match his pants,he can Open the app, ask his question, and the volunteers will direct him how to use his phone to show them his surroundings, so they can help. Social networking apps like Vorail, will let him virtually mingle with other blind peers, and find out how they cope. This can be extremely helpful to newly blinded individuals, because they learned that blindness is not a death sentence, that we are active, and social like everyone else. If you have any other specific questions, keep my user name handy, and don’t hesitate to PM me. I’m always happy to help, and fully understand that this new challenge in his life, may be overwhelming to the both of you at times.
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