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Blind and Visually Impaired Community

Full History - 2018 - 05 - 10 - ID#8ijdl9
9
Non-blind parent abusive to blind parent (self.Blind)
submitted 5.247247781635802y ago by BlindParent
My father has been suffering from macular degeneration for the past 10 years, mostly in secret. He has only recently admitted this and began to seek and accept help. We have registered with the blind commission in the United States and are waiting for services. However, government services take time—a long time.

My mother, his wife of more than 40 years, is beginning to be verbally abusive to him. She is yelling and screaming at him for tripping over things or dropping things or other things that are completely accidental, but related to his condition. I know that this is because she is angry at the situation and poorly regulates her emotions. She is immature. Her mother did the same thing to her father, as well, so this is learned behavior.

My father has become depressed as a result and is no longer eating, which is seriously impacting his health. The rest of my family and I are very, very worried. I would like to know what kind of agencies or resources I can connect with in order to get help for her abusive behavior and his depression. I would really appreciate any suggestions!
obex_1_kenobex 6 points 5y ago
Eye doc here who unfortunately sees this a lot. Does she go with him to his eye exams? I often have to sit down with family members of newly blind people who are abusive. Sometimes hearing from doctor that he's not doing it on purpose and he literally just can't see can help, it legitimizes the patient. Sometimes just having the other person sit in the room and realize that the patient can't see "the big E" makes the family member have am "O shit" moment.
BlindParent [OP] 1 points 5y ago
I’m so sorry that you have to see this so often. It was heartbreaking for me to see once.

Yes, she attends because she drives him, but I’m not sure how involved she is doing the actual medical procedures. She does know that he is blind and cannot see and is not doing these things on purpose, however her reactions have not changed. She just hasn’t internalized or fully accepted that this is the new reality yet. I can see how a third party and a doctor/specialist could make her understand that it’s actually legitimate.
obex_1_kenobex 2 points 5y ago
I have several pairs of glasses that simulate various visual disorders for family members to put on and realize what their loves one is experiencing.
It's very instructive to have the abusive family member put one of them on and have them walk around the unfamiliar part of the clinic.

I would bring up your concerns to his eye doctor. The doctor will have local resources and should have experience in dealing with this type of behavior.

Also sometimes abusive spouses turn out to have early dementia and actually are not in control of their reactions.
mamatobee328 5 points 5y ago
Have you looked into any local Lighthouses for the Blind? Or the division of blind services? I’m so sorry that your mother is coping with this change in her and your fathers life in such a negative way. I know that in my area, the local lighthouses will often come into the home and not only provide support to the one with vision loss but also to the affected family members.
BlindParent [OP] 3 points 5y ago
Thank you so much for your suggestion! I hadn’t heard of this organization before. I will check right now.

Edit: There is one within a long, but reasonable drive from them. Unfortunately my mother can’t drive for awhile but perhaps someone could drive him. Thank you!
mamatobee328 3 points 5y ago
Youre welcome! Does your father have any residual vision left? Could you describe some of the issues he’s having (besides the obvious)? I know MD causes loss of central vision, but is there anything in specific that his vision loss is really impacting him in his daily life?
BlindParent [OP] 2 points 5y ago
Yes, he does have some residual vision, but I have no idea for how much longer. His vision of best in daylight and for high contrast things. Otherwise he is almost completely blind, his own words. He can no longer take care of himself on a daily basis. He can use an iPad to do repetitive tasks, such as brightly colored games with sound feedback. I have tried to set up their home to be as automated and voice activated as possible. I have put up tactile assistance, like tactile dots and strips. I have also put in automatic night lights and high contrast colors or tactile cues where possible.
King_of_the_Dot 3 points 5y ago
You're a trooper. Perhaps a family intervention for your mother? She's obviously not seeing things for anyone's perspective but her own right now. Maybe shedding some light on how the rest of the family feels might open up her mind.
BlindParent [OP] 2 points 5y ago
I contacted the local division of blind services when I was visiting my parents a few months ago. I was hoping to make an appointment within the next week or so, but they said they would send out the initial application in about one month. They did send it within that one month, but after receiving it, they said it would take at least 1 to 2 more months to be processed. Then they would schedule a home visit. This is just the process to confirm eligibility, not to receive services. So we are still waiting.
TheBlindBookLover 3 points 5y ago
If you are having trouble getting help through your state rehabilitation agency, many residential training centers for the blind will let you pay out of pocket. However, this can be very expensive costing several thousand dollars. I would highly suggest researching scholarships or grants as well as even starting a go fund me page if necessary. These programs are life-changing. It may be a challenge to get your father into one of these programs initially, but it is worth it.
BlindParent [OP] 1 points 5y ago
Thank you! So many things to put on the list to do...
TheBlindBookLover 3 points 5y ago
Hi. What state does your dad live in? There are some resources that are given on a residency basis.
TheBlindBookLover 2 points 5y ago
Hi. Have you considerred researching residential training programs for the blind? This might be more ideal since your father lives far away from any training centers for the blind. These programs typically last anywhere from 6 weeks to a year. These programs can teach him skills to live independently that includes reading/writing braille, using a cane, operating a computer, cooking, and more. This may also be a good way for him to separate himself from the abusive behavior of your mom for a short time while he focuses on figuring out how to live his new normal. Seeing your father live more independently may help your mom come to terms with his vision loss and improve her behavior. Additionally, I would also higly recommend enabling VoiceOver on your Dads iPad. It is a popular screen reader software that is already installed on all Apple devices. Tutorials on activating and using VoiceOver can be found on YouTube. My favorite are the videos published by the Hadley School for the Blind. He may also find it helpful to help him get a membership on the website www.bookshare.org and downloading a book reading app called Voice Dream Reader. I hope that this helps. I will keep you and your family in my prayers.
BlindParent [OP] 2 points 5y ago
Thank you! I will look into such a simulation for her.

Also, yes, thank you. This is within the bounds of expected behavior from her, so not a drastic shift in personality or temperament. However, we are monitoring them both for signs of early onset everything.
impablomations 2 points 5y ago
If you don't mind mentioning which State or General Area you are from, one of our American subscribers might be able to suggest more localised charitable organisations.

This page from our Wiki might also offer some useful info.

https://www.reddit.com/r/blind/wiki/organizations/usa
BlindParent [OP] 1 points 5y ago
Thank you! I’m in the North/South Carolina and Georgia region. Unfortunately nothing yet listed for those states.
annibear 1 points 5y ago
There shoud be NFB/ACB affiliates in those areas--if you're interested, it may be good to contact one of them as well as government services. Different situation, but I lost my sight when I was 15 and found blindness advocacy organizations far more helpful personally than government services (that said the government services in my state were horrendous, but that's another story).
BlindParent [OP] 1 points 5y ago
Thank you for your comment! I have briefly looked at residential training, especially if or when he gets a guide dog. Does anyone have recommendations for a good program? A few weeks could be possible but any longer than that probably wouldn’t be possible due to finances or someone to accompany him. With planning, though, I don’t see why longer would not be possible. My father was an outgoing, extroverted, gregarious senior business executive. Now he no longer approaches or talks to people, and is depressed and withdrawn. It is striking to see the contrast.

I have had him try VoiceOver but he didn’t like it and asked me to turn it off right away. He seems to have this reaction to a lot of new apps or software so I am trying to introduce them slowly.

Thank you for the website and app suggestions. I will look into these right away.
EndlessReverberation 2 points 5y ago
Hello there, I was also going to recommend looking into a residential training center, but TheBlindBookLover took the words right out of my mouth. If your dad would consider such a training center, he would almost definitely want to attend before getting a guide dog, not after. Pretty much all training centers teach cane travel skills, and if your dad did go on to get a dog he would learn how to use it from the school that gave him the dog. Either way, your dad will not be allowed to get a guide dog until he first learns how to get around with a cane.

I lost my sight when I was 18 and I attended a 9\-month training program in Louisiana called the Louisiana Center for the blind. The students in such a center run the entire gamut, as far as age and blindness skills. There were 18\-year old kids, such as myself, who needed blindness skills to attend college, 30 something year old professional types who had always been blind but needed to brush up on some skills, and many older people who have never had training before; I believe there were several people in their seventies while I was there. The training is super intense and comprehensive, but worth it and life changing.

As far as finances and some of the other concerns you mentioned; the state payed for me to attend through vocational rehabilitation. However, I was lucky because I believe they prioritize young people, such as myself, who are primed for higher education and then the job market. I also had a great councilor who really believed in me and went the extra mile. I have no idea if your dad would have such look, it’s really going to vary by state, agency, and individual.

You mentioned someone accompany your dad, every training center is different, but this would not be allowed at LCB. Someone could bring him to the center and stay for a few days to help him get settled in, but the training center would not want someone staying in town to help him; of course, people could visit, my parents visited once or twice. The whole point of this kind of center is to instill independence and self\-confidence; there are even weekly seminars where students and teachers talk about the mental, societal, philosophical, and emotional side of blindness.

I just want to say that I’m really sorry that your mother is dealing with her husband’s blindness the way she is. In my experience, spouses often want to be supportive, but I can understand why your mom is feeling the way she is. Your mom probably thinks of your dad as the independent guy that she married, and I guess she resents who he has become for the moment. Blindness can be frustrating at times, especially when the blind person has not learned to be independent. There are two aspects of blindness that newly blind people must deal with. There is the mental and emotional aspect that requires one to realize blindness is not the end of the world and that blind people can go on to live happy, fulfilling, independent lives. However, all of that is just words without the other aspect which is the knowledge, experience, and opportunity to prove yourself and learn to be an independent blind person.

In other words, I know your family is very much stuck in a waiting game for the moment, and I would hope that your mom can learn to become more understanding, but there is a process that your dad can also go through to make things better. There is hope.

Good luck, feel free to PM me with any more questions you may have, although other people in this community may be able to better answer them.
BlindParent [OP] 1 points 5y ago
Thank you so very much for all of the information and especially your specific experience at the school. I feel we are more prepared for this scenario now and I have put it in the timeline for the next 1-2 years. It sounds like something great for him to regain his independence and personality and beat his depression. And I hope it will help my mom out in a practical sense and also with perspective.
TheBlindBookLover 2 points 5y ago
Hi. Your father might not qualify for a guide dog quite yet unless he can independently travel with a cane. This is a link to a website with some additional resources. https://www.blindinc.org/resources/
Just note that there several programs that might provide resources at little or no cost through donations. In fact, many guide dog schools provide the guide dog and the necessary equipment free of charge. I plan to apply to this guide dog school in the future. https://www.guidedogs.com/

I will send you any additional resources as I find them. I hope that this helps.
BlindParent [OP] 1 points 5y ago
Thank you so much for this information and for the links! Let’s share the resources we find in the subreddit for everyone to benefit.
BlindParent [OP] 1 points 5y ago
Thank you for the suggestion. I will contact them right away to see what is available. Also, I am very glad to hear your personal experience as I have zero experience with such groups.
brass444 1 points 5y ago
I'm just seeing this heartbreaking post. So many great suggestions below. I wonder if your county/city has any support services ... individually for his depression or family counseling to deal with the change. I would also add that following up with your Dept of Vision helps. To the extent possible, hand deliver forms that are requested etc.
BlindParent [OP] 1 points 5y ago
Thanks for the comment. I have taken a look at government services previously, but they seem focused on the mentally ill, and abuse and addiction counseling and rehabilitation. Non-clinical depression does not seem to be covered.

I should follow up, but don’t want to bother the employee (singular!) again. Has hand delivery worked for you in the past?
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