Blind and Visually Impaired Community
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Going Blind (self.Blind)
submitted by Svpzk
I am not sure if this is the right place but it was suggested to try asking here. If this is the wrong place, feel free to remove my post.
I have a question for the visually impaired people who lost their sight later on. I am recently going blind, my vision has gotten so bad and the back of my eyes get super sharp pains in them.
I am wondering if it is normal to get severe migraines during this process and if they go away once you went fully blind.
TIA
I have a question for the visually impaired people who lost their sight later on. I am recently going blind, my vision has gotten so bad and the back of my eyes get super sharp pains in them.
I am wondering if it is normal to get severe migraines during this process and if they go away once you went fully blind.
TIA
B-dub31 8 points 5y ago
See a good neurologist-ophthalmologist ASAP. Your problems sound a lot like mine with the pain. It could also be optic neuritis due to hypertension. Get this checked out. Good luck!
AllHarlowsEve 4 points 5y ago
Do you know what's causing the vision loss? I had that, but I also lost my vision from my optic nerves atrophying.
I'd bring it up to your eye doctor, they should be able to tell you.
ETA: I had too much fluid around my brain and that caused head pain... might be worth it to see a neurologist in addition to an eye doctor.
I'd bring it up to your eye doctor, they should be able to tell you.
ETA: I had too much fluid around my brain and that caused head pain... might be worth it to see a neurologist in addition to an eye doctor.
Svpzk [OP] 2 points 5y ago
I have seen a neurologist and I have cysts in my brain fluid that they have cleared as being not a factor of the headaches. I have been referred to a headache clinic and waiting for an eyesight one to go through as well.
AllHarlowsEve 1 points 5y ago
Did they ever do a lumbar puncture/spinal tap to check pressure? It's not even unlikely that the cysts could cause increased pressure, which can, in some cases, only be seen by poking a hole in you somewhere and measuring how fast CSF runs out.
Svpzk [OP] 1 points 5y ago
No, they did not.
I just called the neuro-ophthamologist here but again, I need a referral..
I just called the neuro-ophthamologist here but again, I need a referral..
B-dub31 1 points 5y ago
Same thing happened to me because of a Venous Sinus Thrombosis no one found (despite 2 MRIs) till the damage was done. Then when they gave me blood thinners, I started bleeding from an ulcer and the low blood pressure and oxygen levels damaged my other optic nerve.
Svpzk [OP] 1 points 5y ago
They have never been able to tell me. It started when I was 5, they said I had a lazy eye. Now I am 25 and losing sight in one eye. Even with contacts in, I notice not as much light gets in.
The eye doctors here aren't really that helpful unfortunately.
The eye doctors here aren't really that helpful unfortunately.
B-dub31 3 points 5y ago
What is your diagnosis? I have optic nerve damage and atrophy due to ischemic neuritis in both my eyes due to a blood clot in my brain and increased intercranial pressure. It caused headaches which were mistaken as migraines and started affecting my vision as visual static and floaters in my vision.
Svpzk [OP] 1 points 5y ago
I haven't been diagnosed. My eyes have just gotten worse and worse over time. The doctor said I would eventually go blind in the right eye and only be able to use my left. I notice it is darker in my right eye and lots of floaties, pain shoots into the back and I get really bad migraines that pulse into the back of both my eyes. Sometimes I will being doing a task and just feel a searing pain through my eye.
I have been waiting for a referral to a specialist to go through for over a year. So I thought I would try to find some answers on my own.
I have been waiting for a referral to a specialist to go through for over a year. So I thought I would try to find some answers on my own.
[deleted] 1 points 5y ago
[deleted]
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