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Blind and Visually Impaired Community

Full History - 2018 - 07 - 09 - ID#8xjvkz
7
I want to help my dad adjust to life without vision.... Ideas welcome! (self.Blind)
submitted by fakecatfish
Hey guys, I'm not sure if this is appropriate for the sub so please me know and ill delete it.

My dad is on the road to recovery from an infection and Encephalopathy and sepsis arising from complications from diabetes. His vision has all but left him, as he can see vague shapes and colors but can't pick out people or specifics. The doctors say his condition is permanent and I want to do everything I can to help him adjust.

I'd love to hear any ideas or apps or things that might not occur to a dumb guy like myself. He's currently bedridden but we're hopeful he will walk again soon.

He's obviously quite down and I just want to do anything I can to help him get back to living and enjoying life.

Thanks so much for anything you think might help.
AllHarlowsEve 6 points 5y ago
What does he enjoy? Is he someone who likes or hates technology? Games? Books? Music? TV?

If he's comfortable with it, you could try and get him an iPhone or iPad. There are lots of good apps, like SeeingAI, BeSpecular, Be My Eyes, etc that have features to help people be more independent.

There's also lots of games, mobile and computer, that are fun and easy. You could also pick up a Netflix subscription and check out their Audio Descriptive catagory with your dad to find something he'd like to watch, or browse Blind Mice Mart with him for adapted board games, hobby items, and they have a movie vault with tons of described movies and shows.

I also suggest voice assistants like Alexa or the Google Home, since they're built for eye-free use, they can be very easy and intuitive. There's a skyrim minigame type thing that I play occasionally on the Echo app because it makes me laugh.

If he enjoys cooking or hiking or any of a myriad of other things, your state comission for the blind can almost always help find a solution.
[deleted] 5 points 5y ago
I am sorry your dad is having a rough time, I hope he feels better every day. My best recommendation is to get in touch with your state (if in the US) Commission for the Blind office. They can do an assessment and provide a lot of resources such as adaptive equipment, cane mobility, technology, etc. Vision loss is less difficult when you have the tools to be independent right away.

Also contact the BARD library of congress to get access to unlimited braille and audiobooks for the blind.

Best wishes
B-dub31 4 points 5y ago
While my visual impairment isn’t as profound as your fathers, I understand where he’s coming from. I lost a great deal of my vision last year (at age 38) after an acute medical emergency. At first it was completely dehabilitating, but I wasn’t focusing on it as much due to my physical health problems. Once I began feeling better physically, it hit me like a ton of bricks. It will take time and effort for your father to settle into the new normal of his life.

First of all, make sure your father has access to mental health care if he needs it, because I grieved the loss of my vision almost like losing a loved one—I was angry, afraid, unrealistic, but I grew to accept it over time.
Next, get him in to see a neuro-ophthalmologist for a second opinion and a low vision specialist to help learn how to accommodate his disability with technology and other aids. Connect him with resources. He will likely be referred to orientation and mobility training, which will help him regain a lot of his mobility and capability to navigate in unfamiliar environments. The Library of Congress offers free audio books and magazines to the visually impaired. There are tax breaks for the blind and I'm not sure of his age, but blindness qualifies you for Social Security Disability automatically.

I wish your father and family well. I’m sorry this happened to him. I hope he gets all of the accommodations necessary to live his life to the fullest.
Laser_Lens_4 2 points 5y ago
I can confirm. I know Braille and I got o&M training. Also I got help and insurance from the state and despite all that I was basically emotionally destroyed for about a year.
KillerLag 3 points 5y ago
In Canada, there is only one option for a talking blood glucose monitor (http://www.oraclediabetes.com). There may be more available in the US, though.

Iphone or an iPad (with VoiceOver, which is built in) are also great resources to learn to use.

Getting rehabilitation service from your local rehabilitation center would also be a great idea. They can discussed things like canes and training. It would also be useful to have him up and moving again, to give him a sense of independence. The workers can also teach the family things like Sighted Guide, to help you guys guide him around.

Drunken_Idaho 2 points 5y ago
Make sure your dad still feels useful and can contribute in a meaningful way to your family.
Losing vision isn't the end of the world, and there is not much he won't be able to do with a little effort.
Mental healthcare is important, as a previous poster stated, but just make sure he can still feel needed and make a meaningful contribution to the family.
Good luck, and I wish you the best.
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