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Blind and Visually Impaired Community

Full History - 2018 - 08 - 27 - ID#9aocv0
18
Going blind, help? (self.Blind)
submitted by sif_the_pup
Hi, I have severe pediatric glaucoma and macular degeneration, neither of which were discovered until I had lost a large amount of vision. My doctor tells me I'll likely be fully blind before 35 because of how aggressive the glaucoma is, even with treatment. I'm currently 23.

I have very little depth perception and cannot see in front of me, and I don't have peripheral at all. As a result, I'm very jumpy and have broken multiple bones running into walls/bins/etc I thought were much further away. It ruined the best relationship of my life (3+ years) due to me being unable to drive and him feeling like he had to "take care of me", and he said some really awful things because of it and my anxiety. It really messed with me and is still messing with me.

I feel alone a lot of the time due to all of this. I don't have a lot of family and I don't really talk to them, and none of my friends are disabled or live near me. How can I combat some of this? What are some resources for the blind and visually impaired? What can I do to raise my confidence? I want to be independent and I want to be able to feel cared about.
OutWestTexas 7 points 4y ago
Mobility training will give you confidence and save you from having broken bones.
KillerLag 3 points 4y ago
Or even embarrassing trips and falls.
TheNobleHouseMartin 5 points 4y ago
What state do you live in? Many states have what is known as the Department of Rehabilitation Services, or state services for the blind. From state to state it varies dramatically with services, but I know here in Alabama once you enter that program we have staff members that would help you adjust and learn different ways of Independent Living. There are also places around the nation that assist with this type of Rehabilitation, I would have heavily consider a residential program to help you with your transition. Most programs as well can help with employment down the line if that's something you're interested in. Your first step though is definitely get in touch with a rehabilitation agency, it's free.
macncheeseballz 3 points 4y ago
First, understand that you aren't alone. I was lucky enough to be other side of this situation, where I was born with limited vision and now see well enough to drive. There are people that are in your shoes too, and there are thousands of people working to help you.

Here's my advice: volunteer. Finding a way to get your mind off yourself is a great way to improve in many aspects. It will help you learn new skills, meet new friends, and help other people. Find your passion and work with it. You will be great.
aam22 1 points 4y ago
If you live in the US, every state has an agency dedicated to provide free services to the blind and visually impaired. Contact your local Voc Rehab agency and ask them about the Division of Blind Services. There you will receive all the services you will need to be as independent as possible. I promise you that once you start receiving services, you will become independent, have tons of support, and jump back into your life.

I teach Orientation and Mobility. I teach people with visual impairments to travel independently. It takes time, it takes a lot of work, but when you start doing things on your own, the rest kind of falls into place. You will be able to live a normal life, it will just be different than what you expected and will require tons of patience with yourself.

This transition is a very difficult one, but there is a huge community out there waiting for your with open arms.
Myntrith 1 points 4y ago
I can't offer you much advice about being blind. I'm sighted, but I'm here for my mom, to get ideas about how to better assist her.

But I can offer some encouragement in regards to relationships. Particularly that this wasn't the best relationship of your life. The best is yet to come.

I know that sounds cliche, but hear me out. Relationships are about acceptance. There was a song lyric I heard a while back that stuck with me, because it is absolutely true. "If you're worthy of my strengths, you're worthy of my weaknesses." Meaning, of course that if you're not worthy of my weaknesses, then you're not worthy of my strengths.

And remember that everyone has weaknesses. You are NOT, in any way "less" because of yours. And no, that's not easy to internalize, for anyone. It takes a lot of work. The first step, though, is understanding that it's true. The first step is understanding that you are a whole and complete human being.

Once you accept that as true, you can work on internalizing it. There are various ways to do that, and there's no shame in getting professional counseling if you need it.

The best relationship of your life is yet to come.
quanin 1 points 4y ago
I dated someone who went through similar, but younger. Lost her sight by 12, but again, glaucoma was the cause. I also have it, but I've had no sight since birth. I can't claim to know exactly what you're going through (no one can, unless they're going through it), but I'm familiar with both the adjustments you're having to make and what those adjustments are putting you through. I can't offer any more advice beyond what's already been said here, but if you need an ear, I've got two.
Derpette4220 1 points 4y ago
I found out I was blind this year, at 22, as an engaged lady. If you need somebody to talk to, I completely understand. It's a shit show. Please feel free to PM me.
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