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Blind and Visually Impaired Community

Full History - 2018 - 09 - 07 - ID#9e0xdv
2
Circadian rhythm disorder and grumpiness (self.Blind)
submitted by reddit-aloud
Hello. I’ve been dating a really cool guy since April. He’s badass, so funny and smart, a total babe, dedicated dad, etc. His total blindness causes him to have a circadian rhythm disorder that results in poor sleeping times/habits/quality and that results in him being a super grump -to put it mildly- every few weeks/month. I’m struggling really hard to find ways to deal with this on my own, and feel a bit out of line asking him about it considering he’s been blind for 14 years and I’m new. 🤷🏼‍♀️ Anyone have tips for me? We’re having an “off” time right now but when he’s charged back up again I want to have a conversation about it without making him feel like shit since I know he can’t help it and hates it too. Appreciate your help very much.
fastfinge 3 points 4y ago
As someone who struggled with insomnia for years and years, I sympathize. I was born blind, and thus have the same sort of disorder. As a teenager, I would go for days without sleeping properly, because I could only sleep during the day, but I had to go to classes during the day, and would then be awake all night. However, as an adult, I've had to find better ways of coping, in order to be part of the working world, and uphold my adult responsibilities. I'm 30, and only in the last couple years have I managed to get into, and stay on, a semi-regular sleep schedule.

The first big step for me was realizing that something, in fact, can be done. It's only recently (in the past five years or so) that people have even started talking about the sleep disorders experienced by the blind. Previously, many people in my life didn't believe me about how serious the issue was. And, of course, that lead me to doubt myself; maybe it's just me. Maybe I need to just get over it. Those are, of course, not useful coping strategies.

Later on, this evolved into "this is just my sleep schedule. It's just how I am. It will never change, and I can't do anything about it." I suspect this might be where the blind person in your life is now. He's just accepted that lack of sleep once a month is just how it is.

That's not true. I'm not a doctor, so I won't give medical advice. But I can say from personal experience, that with hard work, trial and error, and some lifestyle changes, it's possible to get on a regular sleep schedule that varies by only two or three hours. If you'd told me that five years ago though, I'd have laughed in your face. Oh, it'll never be perfect. The weeks around the time changes twice a year are pretty much a write-off for me. But it can get better.

I think the best thing you can do is encourage him that it doesn't have to be this way. For me, a combination of Melatonin, increased physical activity, a sleeping pill once a month to help reset my sleep cycle when it's drifted farther off than I'd like, and a strict bedtime routine (to give my brain queues other than light level that it's sleep time now) has helped a lot. However, his mileage may vary. But today there are medications specifically designed to help with the problem, and doctors and sleep labs are actually aware of the issues. The condition is generally called non-24 sleep disorder; having an official name is a big step forward from the days when it wasn't even recognized as a thing.

If you're willing to support him on the journey, it's likely his sleep quality can improve a lot from what he's dealing with now.
reddit-aloud [OP] 2 points 4y ago
Thank you for your insights. I feel better reading this and knowing it’s not just us and there are things he and I both can do to help control the beast a bit more.

I appreciate your help so much!
fastfinge 1 points 4y ago
Glad I could be of some help! Honestly, the lack of sleep often used to feel more limiting, more discouraging, more disruptive, and more depressing than lack of sight ever did. Though being born blind, I've never had sight to miss; still, I'd often wish for constant, regular sleep more than I'd wish for a cure to blindness. I hope your partner can, eventually, find a way to get closer to his ideal sleep schedule. It really does make all the difference in the world.
reddit-aloud [OP] 3 points 4y ago
I sure hope so too. He’s pushing himself really hard and doing a lot, so not sleeping well makes things so much more difficult than they already are. He’s such a problem solver (he’s an engineer), so the fact that this is something that rules his days is so hard.
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