Does anyone have any information on the cortical prosthesis, Orion 1. My son is a candidate for this implant and if he decides to go for it, he will be the first on the east coast. Very little is online about the visual results, any info would be appreciated.(self.Blind)
submitted by Samantha1226
-shacklebolt-5 points4y ago
It's unlikely anyone here has had the procedure or is familiar with it given how new and uncommon it is.
However, I see from your post history that your son very recently suffered a traumatic injury that resulted in the loss of his vision. My personal opinion that it seems *extremely* early in the process of adapting to blindness to be considering such a radical procedure.
Is your son receiving comprehensive services to learn how to adapt to being blind? (Orientation & Mobility, using technology, home skills, occupational skills, etc?)
KillerLag2 points4y ago
The first human trial was January 2018, so pretty rare. I've known three people who have the Argus II, but even that is a rarity.
KillerLag2 points4y ago
This early on, they are only just starting human trials. And while it works on a similar theory as cochlear implants, the visual system is much more complex.
-shacklebolt-2 points4y ago
A cochlear implant is considerably less invasive than this isn’t it? Seems more “comparable” to an auditory brainstem implant if anything.
KillerLag2 points4y ago
Yes, less invasive. The cochlear implant is connected to the auditory nerve, while the Orion is attached directly to the brain. Probably is more comparable to the auditory brainstem implant, I wasn't as familiar with it.
blindboy27101 points4y ago
Www.Thejourneyoutofdarkness.Wordpress.Com
Samantha1226 [OP]1 points4y ago
OMG!!!! Thank you!!!!
blindboy27101 points4y ago
Hello my name is Jason I was the second patient to receive the Orion cortical implant by second site medical. Currently part of a five year FD a feasibility study. Here is a link to my blog thejourneyoutofdarkness@gmail.com . It’s not all about the implant but more about my journey since receiving the implant , I will update it as things progress . I hope this helps a little bit
Samantha1226 [OP]1 points4y ago
Wow. Thank you!!!! I'm having problems opening up the link.
Samantha1226 [OP]1 points4y ago
Ok. I found your blog online. I just can't believe I found 1 of the 5 to receive the Orion. UNBELIEVABLE! THANK YOU! I just read your blog to my son. How are you doing. Do you have any new updates?
blindboy27101 points4y ago
The trial is progressing very well . It’s a slow process but we are moving forward . I will update the blog as things progress
Samantha1226 [OP]1 points4y ago
Thank you for your comments. Yes, it's very early on. He has an O&M counselor from Hellen Keller. The Orion 1 is still in clinical trials, an array of electrodes gets implanted directly on the visual cortex and so far, Orion has produced better and more useful vision that the Argus 2. If he is able to get the implant, it won't be until next year. One of my sons Drs is the head of opthamology at Stony Brook University, in NY, he is currently in charge of the Bionic eye (Argus 2). We're waiting for approval for the implant to begin trials at SBU. In the meantime, I do A LOT of research, advocate for my son, and stay very pro active in his recovery.
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