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Blind and Visually Impaired Community

Full History - 2018 - 12 - 29 - ID#aakj02
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Users born blind: What are some things your parents did that helped you become a successful and independent adult? (self.Blind)
submitted by Hopmysalsa
I’m a parent to a blind 2 year old and like any parent, I desperately want to help her be successful in life. What are some things I should know?

On another note, I also want to protect her from everything which makes being a good parent a challenge. How did you connect with other kids your age? How, as a parent, can I foster a good relationship with her peers?
saharacanuck 13 points 4y ago
Born VI. Parents treated me like I didn’t have a disability. Dad was an ophthalmologist and his colleagues recommended not making me feel like I had a disability. Let me do what I wanted even if I was going to fail or lightly hurt myself. Kids tend to hurt themselves... I had multiple bruises on a weekly basis.

Learned a martial art. Judo is good for someone who is VI or blind because it’s a close body sport. I can’t stress sports enough. They give you confidence and a feeling of independence and achievement. If there is VI/Blind tennis in your area, give it a go. Or order sound balls and play with your kid.

There are some things I wish my parents had taught me, but I didn’t live in a country where it with OTs etc .

Watch your kid’s posture. Face in food isn’t attractive on anyone. At 2, it’s probably just about coordination, but later, once they have the coordination down, gently remind them sit up straight etc. (Obviously it depends on how much vision your kid has).

Teach them to make eye contact. I do it, but sometimes I do tend to forget mostly because it’s easier to focus if I’m not looking at someone. Eye contact goes a long way in making others feel comfortable around you.

Let your kid take “safe” risks. Teach him or her all the regular skills you need to be independent. Let them ask for help, but their disability doesn’t need to be a crutch.

My suggestions probably don’t work for everyone, but they did for me.

I didn’t know I couldn’t drive until I was 18.... kind of shitty but it also meant that I didn’t put any barriers on what I could do until I was an adult.

But I also didn’t know what accommodations I needed until a few years into university. I regretted not using a note taker for example.

Your kid will be fine. Some things might take longer to learn, but don’t stress to much about it either. Use the assistance you have available and teach your kid to respectfully but sternly advocate for himself.

I apologize, this isn’t a particularly well structured response. DM if you have any questions.

Edit: teach your kid to ask for help when needed. It can take a while to recognize what accommodations you need because you don’t have anything to compare it to. For example, I only recently started to ask people to switch seats with me so that I wouldn’t have the glare in my face. But there’s à balance between being comfortable and using your disability as a crutch.
retrolental_morose 3 points 4y ago
What a great reply. born with no vision at all and practically ignored by my parents. A lot of freedom, but a lot to learn, too.

Your comments on posture and sport are particularly relevant I think. And self-advocacy too, such a huge thing as you age.
saharacanuck 1 points 4y ago
I’m sorry your parents ignored you. That sucks.
retrolental_morose 2 points 4y ago
At the time, I rather enjoyed the freedom. It's only seeing blind adults that I realised as a child I could have been more involved. And of course having children of my own makes me question how any parent could organise a family life without including a young person in their care.

But I don't think it's done me too much harm in the long term.
Hopmysalsa [OP] 1 points 4y ago
The thought of her playing a sport always intimidates me, but I think you’re right. It’ll be great for her self confidence and independence. Did you ever play any team sports growing up?

She has an OT now that has taught her far more than I have. Leaps and bounds from where she started.

Thank you for your response and advice. I’m glad I have people like this sub to come to for advice.
saharacanuck 1 points 4y ago
Come by anytime.
Unthinkster 0 points 4y ago
When you say note taker, do you mean a PDA or a literal person to take notes? If the latter, I disagree that blind or VI people should use that accommodation. If your vision is such that you can't use it to take independent notes, you need Braille.
saharacanuck 2 points 4y ago
Accommodations vary between people, what works for one person doesn’t work well for others. So while I respect your decision to not use a note taker (person), it would have been tremendously helpful for me. Can’t see the board, didn’t own a laptop at the time, and my handwriting was messy when writing fast. Plus with ADHD it makes it more practical.

Edit: lecture halls aren’t conducive to a good distance between face and notebook. Might be different today, but ten years ago it was an issue.
modulus 12 points 4y ago
My experience may differ from other people's, but there were two sides to this. On one hand, my parents did what they could to give me chances to experience things: they got me to take music lessons, for example, or some martial arts (the music stuck, the martial arts didn't, but it was worth a shot and I'm glad I at least tried it). Just as important, though not at the age of two of course, they allowed me to take risks and got out of the way. Not that they wouldn't care or help me if I asked, most of the time at least, but they were willing to let me make my own choices, sometimes hurting myself in the process (unfortunately this is probably an inevitable part of learning). So I would go on my own to the park after a certain age, make friends as I could, etc. At 16 I got a scholarship to go to study abroad, and this was very very hard for them, but they let me do it.

The balance between being overprotective and neglectful is important, though it's not like there's only one way to do this right. Children vary as well about their own need for autonomy as they grow up. My personal feeling is that most parents (of blind or sighted children alike) are erring on the side of too much protection/control, but then I don't have a child so what do I know? It just seems to me that children were a lot more independent 25 years ago or so when I was one, than now.
Hopmysalsa [OP] 2 points 4y ago
Haha yeah, I feel the same way! I was always going up and down the neighborhood unsupervised, but the thought of that now with my daughter gives me an ulcer.

You went study abroad at 16? Wow. Not sure I would’ve done that. What’s it like to navigate somewhere completely new without seeing? Would you have done it again?
payown 1 points 4y ago
I’d probably get sued if I did some of the things I did when I was a kid now… Trying to think of how many vehicles I ran into on my bike. Completely blind have been since birth
modulus 1 points 4y ago
Well, it took some getting used to. The place I went to (Norway) had good social services so I got mobility training there. Between the two of us though, once I almost fell into the fjord, but hey, almost doesn't count, right?

I would definitely do it again, yes. I was itching to leave home back then and see how I could handle things for myself. It turns out, less well than I thought, but less badly than others thought. It was very helpful in many ways.

As to the thing with children now, a lot of parents say "yeah but things are more dangerous now". In reality they aren't, it's perception (if one looks at the statistics). What has changed is perception of risk and what people consider acceptable risks. Some of this may even be good, it's not great for children to get needlessly hurt, but some of it not so much.
MilkFarmProdigy 5 points 4y ago
Born visually and hearing impaired. My parents raised me to believe that I wasn’t disabled. I actually didn’t realize I was different from other kids until I went to school. All throughout school, I was mainstreamed (not put into special Ed.) and participated in sports and clubs on top of taking Advanced Placement classes. They also had me do chores around the house and if they weren’t done right I left have to do it over. I learned by a lot of trial and error and had to come up with ways to accommodate myself without realizing it until later in life. You can try and give your kids a bunch of tools to help them, but in my case experience is the better teacher sometimes.
retrolental_morose 3 points 4y ago
A key point is not to avoid giving your child things to do because of her visual impairment. If you have to helper find a different way of doing them, or better still she finds away herself, that’s very valuable and invaluable experience. We are both blind adults, and live independently. We don’t have regular access to sighted help, nor do we need it for 99% of things that we do. If you can build that mindset into your child, she will do very well indeed!
Hopmysalsa [OP] 1 points 4y ago
Thank you! That’s what I keep reminding myself. I find myself carrying her everywhere instead of allowing her to find everything on her own. It’s comments like this that remind me that she’ll be an independent adult one day and will prefer to not have her parents constantly looking over her shoulder and babying her.
Coloratura1987 4 points 4y ago
As other Redditers have said, give her the same opportunities that other kids her age would have. Yes, simple skills, like tying shoelaces, may take longer to learn, but they're imperative.

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Above all, get her started with a white cane—even a smaller one for kids—ASAP. The white cane is the key to helping her develop spacial awareness, orientation, and independence.

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As your child gets a bit older, let her help in the kitchen, clean, and explore. Cooking is definitely possible as a blind person, so don't be afraid to let her participate in age-appropriate food prep. Just like other kids. And yes, dish-washing is totally possible, too.

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If you have any specific questions about how to do things, just ask away.

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Source: I was born blind and had a great mom who encouraged my independence.
payown 1 points 4y ago
Interesting to bring this up, I’m in the process of starting a project dedicated it to so I did the parents of blind children, I think my mom could have helped me a lot more when I was younger if she had better support. I’m the oldest of six, and the only blind person in my family.

I agree with these comments six out of seven days a week, I cook for my family of four.

Though it drove me nuts when I was a little I appreciate my parents for teaching me a efficient way of cleaning.

I wish I would have been involved in more sports as a child.

Coloratura1987 1 points 4y ago
Yeah, I hated how seemingly anal my mom was about making me clean, but it's served me well. In fact, after having the misfortune of running into some not-so-clean roommates, I marvel at how messy other people are, generally speaking.
Hopmysalsa [OP] 1 points 4y ago
Thank you for the response! Are you a big cook now? Yeah she’s got her a cane. She’s not a huge fan as of now but we’re staying persistent.
Coloratura1987 1 points 4y ago
Yes, both my SO and I take turns making dinner. Because of specialized training, I've learned to make, pan-fry, saute, steam, poach, broil, and pressure-cook… just to name a few. So, it's definitely possible to learn more than the bare basics.
gracers94 3 points 4y ago
Assuming you are in the US, start getting services from your school district.
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