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Blind and Visually Impaired Community

Full History - 2019 - 01 - 09 - ID#aeczgn
6
Anyone with a visual impairment caused by traumatic brain injury? (self.Blind)
submitted by bird98
I'm just kind of wondering if anyone has been in a situation like mine.

I had a traumatic brain injury when I was nine, and, long story short, I don't have left peripheral vision because of it.

I know that I don't have vision there, logically. But it's like my brain forgets. My neurosurgeon told me I just need to "scan" to make sure I'm seeing everything. I only have about 110 degrees of vision from the middle of my face to the right side, but sometimes I "think" I can see things that are all the way to my left.

For example, when I'm crossing the road, sometimes I forget to look left, because my brain is telling me that I can see over there. It's not that I'm actually seeing things. My eyes can see over there but the part of my brain that processes that vision is practically dead. I think my brain just figures everything's okay, because brains are really complicated.

I don't know if my theory (or whatever you want to call it) here is correct but it's kind of the way I perceive everything happening. I was wondering if anyone else has a similar experience?
AllHarlowsEve 4 points 4y ago
Mine's not from the brain injury, more concurrent, but I know what you mean and it's sort of a known phenomenon.

Basically, even if you can't see things, your brain fills in based on what you *can* see, or what you *expect* to see. In high school, we were shown a web page that had a line with breaks and another page that had dots about where the breaks were. Also, there's one with a series of circles making an outline of a circle and a dot going around it, and I think it's meant to not go to certain dots in the video, or something like that?

But, regardless, in those experiments, at the right range the lines were solid, the dots didn't exist, and the dot rotated correctly, in order.

Your brain tries to not have you freak out, so it just fills in things for you, even if they're wrong.

I have a condition called Charles Bonnet syndrome, where you have visual hallucinations of things that absolutely aren't there, because your brain just fills things in from guessing.

For me, since my vision loss is so severe, it'll sometimes add a firm line between light and dark things that I absolutely cannot see, or it'll assume that something dark is a person and add in details that don't exist, like turning a hanging towel into someone just squatting there, for some reason.
losingmyvision 3 points 4y ago
I'm not sure if it's any different but I have peripheral vision loss due to RP but good central vision with correction. From what I understand, your brain kind of automatically fills in places where you can't actually see with what it thinks is there. If I'm looking at something, for example, I'll "see" what I know is in my periphery. However, if something or someone moves in to that space, I won't actually register that it's there until I look in that direction. This can be surprising because things can suddenly just appear really close to me because I hadn't looked that way for a while.

People with normal vision experience this to a much lesser extent, I believe. Normal eyes have a blind spot where the optical nerve connects to the retina but nobody really knows about it because their brain just fills that space in.
bird98 [OP] 2 points 4y ago
The way you describe your experience sounds so similar to mine. I'm so easily startled by people standing to my side, then I turn and look. I always say, after a quick yelp of surprise, "When did you get there?" Thank you for sharing!
KillerLag 3 points 4y ago
I've worked with a number of clients who have peripheral field loss due to brain injury. Depending on what areas have been affected, you can get different issues.

On the extreme side, people have actually forgotten what "left" is, and would do things like eat half a meal or dress only half of themselves. I believe the term is called visual neglect or hemispatial neglect (https://en.wikipedia.org/wiki/Hemispatial_neglect).

Depending on how bad the damage is, it is possible for people to regain some of that area of vision (although I've never heard of the regaining the entire area).

Check with your eye doctor regarding prism glasses. I've heard from some people that they help, although many also complain they don't help. There are a number of other treatments (https://en.wikipedia.org/wiki/Hemispatial_neglect#Treatment) but I am not familiar with that many of them, so you should definitely talk to your doctor about that (and they will likely refer you to a specialist).
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