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Blind and Visually Impaired Community

Full History - 2019 - 01 - 16 - ID#aghysh
4
Recent loss of vision due to CSR. (self.Blind)
submitted by Damius
In case you're not familiar with CSR. This is what $1 is.

So here's what happened. About a week ago or so I was pretty sick with the flu, and hand foot and mouth disease, and strep. We were at a friend's place for game night when I noticed a blurry spot in my right eye. Upper left hand side. I didn't say anything, but when I got home I did some reading and bolted for the hospital thinking detached retina. 8 hours later, I get a clean bill of health with a recommendation to see an eye doctor.

Immediately I get in. I'm told it's CSR, but it should clear up. They get me setup with a retinal specialist to be safe. By now it's in the middle of my vision, and it's a thick grey disk. I see the specialist, they say it's not ever going to clear up. This is permanent. Just like that. I go from hope to nothing. I'm monitoring my left eye regularly. If it hits my other eye I'm done if it's this bad. I feel like I'm coping well. But this is scary. I still have peripheral vision, but it's awful. Any opinions on an eye patch? I'm getting one for TV, and around the house. Anyone else in this position? Does this post even belong here?
Pacificem 3 points 4y ago
I had a similar experience a little over a year ago. I experienced sudden painless monocular vision loss in my right eye as a result of a central retinal arterial occlusion. I initially thought I would be able to regain some sight but within a week I learned it would be permanent (at least until they figure out the technology for those cool bionic eyes!). I also have some limited blurry peripheral vision.

The first week is the worst and I sympathize with you tremendously. It makes absolutely no sense and there are a lot of “Why me?” moments. All I can offer is that you now have an opportunity that many people do not - to protect the shit out of your good eye! Your ophthalmologists should have some ideas about this.

As to living with one eye, check out r/monocular for some resources. I met with a grief counselor a few times and found that really helpful to process those “why me?” questions. I started driving immediately to get over the initial fear (it is completely legal and many people with monocular vision drive). Tossing a ball helps with getting your depth perception back.

I bought a couple eye patches because I thought that was what I was supposed to do but I stoped wearing them almost immediately. Your brain has this incredible ability to “turn off” your bad eye so within a few weeks you will start going hours (or even entire days) without noticing.

This will get better. Life goes on. We’re here for you!
MonocularMichelle 2 points 4y ago
I have to wear an eyepatch because I have double vision so I won’t see anything past 3 feet in front of my face. It was a year before I wore a patch because I wanted to look normal, but the movement of sun across my face and my doc said my eye was still trying to correct the double vision and it twitched a lot. Plus the eye looks crossed and freaks people out because the eye nerve is paralyzed so it looks bad sometimes my eyeball moving around on it’s own. 😊 I have been wearing except at home or where I know the place well but many times can’t see the computer so have to wear it to see. The best eye patches I found for all day wear were leather.
Look on www.etsy.com for black-dragon-leather-eye-patch I have that patch for one year already. Looks good and comfy all day
Also just ordered the adhesive eyepatch because the strap gives you a headache after a long day, gonna see how strapless works from here:
http://www.sweeteyepatches.com
The other most comfortable for all day wear is this rubber one. It does not dig into your skin and feels comfy but can make your eye sweat.
https://thebesteyepatch.com
It takes some getting used to but message me if you need support. I understand how you feel suddenly losing your sight. Same thing happened to me.
Damius [OP] 1 points 4y ago
I got $1. It has an elastic at the back, and isn't terribly expensive. I'll let you know if I like it. I appreciate the information you provided. I'll look into those to.
Damius [OP] 2 points 4y ago
Luckily for me I've been practicing stoicism for a year or. So prior to this. I had one hell of a break down when I got out to the car. But I've given a lot of thought about how people who have stuff like this happen to them eventually realize it's nothing personal. And whether or not it's fair, it is what it is. You just move on. I asked my specialist if there was a support group. I got nothing. Less than helpful. I'm just going to make the best of it. Good to know there's a support group out there. I didn't want to come off as whiney. Just hard to accept initially. I'm still going to rock the eye patch anyways lol. I'm bald, I have a massive beard. The kids can have fun with their pirate dad haha. I plan to wear it when I'm not driving, or when I'm home. It'll likely pass and I'll just not bother. Fun for a while. Whatever gets me through it I suppose.
Pacificem 4 points 4y ago
Go for it! I actually lost my vision a couple days days before Halloween so when I showed up back at work on Halloween I rocked a full pirate outfit and brought patches and wigs for everyone in the office! Helped everyone make light of the situation and ask me questions without feeling uncomfortable!
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