Blind and Visually Impaired Community
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Anyone else have horrific visual snow? Is there anything I can do? I’m lost and confused... (self.Blind)
submitted by Gangaldoof
I was just diagnosed with visual snow - which is visual distortions that can range from static on a tv to flashing lights to more. My eyes and nerves are nice and healthy but the visual disturbances are so bad that I can’t see anything at times. I’ve just given up on wearing my glasses because they no longer help me see.
Only thing the ophthalmologist could recommend to me was over the counter eye drops, as the meds that could help have a small chance of actually doing so and have horrible side effects along side of them.
I don’t know what to do anymore. I can’t see and my eyes are constantly hurting. I’ve had to drop out of college again because it’s just too stressful to read. My parents got me a cheap white cane to help me navigate the world and it helps sooo much. Should I start looking into getting a legally blind diagnosis? How would I even do so with nothing actually being wrong with my eyes? Would reaching out to my local blind/visually impaired foundation be a good start?
Thank you in advanced.
Only thing the ophthalmologist could recommend to me was over the counter eye drops, as the meds that could help have a small chance of actually doing so and have horrible side effects along side of them.
I don’t know what to do anymore. I can’t see and my eyes are constantly hurting. I’ve had to drop out of college again because it’s just too stressful to read. My parents got me a cheap white cane to help me navigate the world and it helps sooo much. Should I start looking into getting a legally blind diagnosis? How would I even do so with nothing actually being wrong with my eyes? Would reaching out to my local blind/visually impaired foundation be a good start?
Thank you in advanced.
GoBlindOrGoHome 4 points 4y ago
As someone who was diagnosed with their eye illness later in life - go to more doctors! Other doctors you've never seen before! There may be something physically wrong with your eyes or brain that your regular eye doctors may have missed. Nobody should have severe visual inpairment wuthout some explanation being associated with it.
Gangaldoof [OP] 3 points 4y ago
Well, I saw two new opthomologists in this past week and they both said my eyes are healthy and the one that’s a neuro-opthomologist said that my nerves are completely fine. And when I got my eyes tested for a new prescription they got two different results, one with a machine and one manually. And neither I could see out of. The nurses told me that it was fine, that if I could guess that it’d be fine.
My hopes of finding out what’s going on are kinda dashed at this moment in time. I’ve been told time and time again by about 20 docs at this point that there’s nothing wrong with me, even though there’s evidence of something going on with my blood and neurological symptoms. I’m just.... done, y’know? Six years of constant testing, only to be told by multiple docs that it’s all in my head even with all the test results.... I’m so tired.
I just wanna figure out how to start living my life again, so I can start going to college and get a degree like I promised my grandma I’d do.
My hopes of finding out what’s going on are kinda dashed at this moment in time. I’ve been told time and time again by about 20 docs at this point that there’s nothing wrong with me, even though there’s evidence of something going on with my blood and neurological symptoms. I’m just.... done, y’know? Six years of constant testing, only to be told by multiple docs that it’s all in my head even with all the test results.... I’m so tired.
I just wanna figure out how to start living my life again, so I can start going to college and get a degree like I promised my grandma I’d do.
AshLust 2 points 4y ago
My partner has been going through something similar, I’ve been by their side since I noticed their eyes looking asymmetrical and they had to go through 4 different ophthalmologists in the period of 5 months because of waiting periods. They couldn’t get a cane and they’re equally as tired with tests and ophthalmologists.
They have diabetes and so everyone around them has been pointing to that as a suggestion but their neuropathy is at a managed state and apart from other minor things with their eyes, they should apparently see fine (which they don’t, even with glasses they crane their neck to get a closer view).
It’s interesting hearing this because of the amount of distress my partner had from not getting a diagnosis.
They have diabetes and so everyone around them has been pointing to that as a suggestion but their neuropathy is at a managed state and apart from other minor things with their eyes, they should apparently see fine (which they don’t, even with glasses they crane their neck to get a closer view).
It’s interesting hearing this because of the amount of distress my partner had from not getting a diagnosis.
Aeonnorthern 1 points 4y ago
Try the new acuvue Oasis transition contact lenses it has made mine almost completely gone the crystals in the contacts shift a little and boom it's gone
B-dub31 3 points 4y ago
My vision loss started with visual snow. It took them six months to discover it was a blood clot in my brain and increased intercranial pressure. I’m now legally blind. You should see a neurologist immediately and get a second opinion from a different ophthalmologist, preferably one that specializes in neuro-ophthalmology.
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Arenet 2 points 4y ago
Me i get extreme visual distrubances extreme static vision lamotrigine and keppra keeping me alive iam only 16, still need to do everything like normal people! :(
-shacklebolt- 1 points 4y ago
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