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Blind and Visually Impaired Community

Full History - 2019 - 01 - 19 - ID#ahlnxu
4
Sleep problems? (self.Blind)
submitted by ENTJ351
Okay I don’t know if this has anything to do with my blindness it probably doesn’t help it or maybe not related.

My sleep is at it’s worst right now. I am a student at a university and at the moment I am on break. And I have no classes to attend no where to go as a commitement. Not doing a whole lot of volunteering that requires going somewhere. I was going to do some, but at most I was going to call up people for this e-mail tree. I have my textbooks to read, scholarships to apply for, and news to read. I study political science.

I sometimes don’t sleep much and sometimes I sleep more. But never a real schedule. I want one but sometimes can’t establish one. I just don’t feel sleepy and can’t sleep at the right time. It’s not even that I sleep a little later every night so I am not sure it’s non-24. It can be constant sometimes I can go 28 or 29 hours without sleep. So I am forced to stay at home not because I can’t physically go anywhere, but nothing but bars and diner is opened at night or restaurants in the evening. It makes it inconvenient to do things, or interact with people, why? Most of them are sleeping! Haha! The Allergy pill is sleepy that I take. Sometimes it helps and sometimes it does but it is delayed and sometimes it just doesn’t. I don’t take it for sleep anyway. A nap will mess it up too. Also not having a lot of money thus not being able to go really anywhere doesn’t help me be active. Haha! So.... I do get up and do stuff I never feel tired so I don’t go back. I kind of forget. I just keep on working on stuff.

Help?
BandGS88 6 points 4y ago
My advice is make yourself a schedule. For example, start at 8:00 in the morning, have breakfast. Then read a book or something. Have lunch at noon, and watch a couple of movies in the afternoon. Have supper at 5:00, and do something else until 8:00. At 8:00 start getting ready to go to bed. Shower pand brush your teeth. Go to bed around 9:00.


Even if you don't fall asleep right away stay in bbed. If you fall asleep and wake up at 3:00, still stay in bed. Get up at 7:00 the next morning and do it all again.


If you do this for a few days, your body will learn to sleep at a normal time. I would try to keep a normal sleep schedule when returning to college. It will help you focus more. Good luck.
B-dub31 3 points 4y ago
This is good advice. I heard a podcast say that consistently eating at the same time every morning helps set your internal clock. Your body gets used to processing the influx of food at the same time daily, so it triggers you.

My sleep schedule got messed up a few weeks ago where I was waking up at 3 AM and rhen being ready for bed at 8:00 PM. I loved the alone time in the morning, but my wife and kids hated my early bed time. I started a morning routine including eating at a certain time, and my cycle corrected itself after a couple of weeks.
BandGS88 3 points 4y ago
When I lost all my sight at 3 years old, this is the advice the doctors gave my parents. Now that I am 30, I still try to do this. It is still very easy for me to mess this up. A couple nights of staying up late watching Netflix, and I have to start over.
bleeblat 2 points 4y ago
How much vision do you have? Did you "lose" your sight, or were you born with this? I didn't see that in the original post but it makes a difference. I'm sure I have the non-24 problem here, for example, as even most sleep supplements don't work. But I've had good luck with Chinese medicine and small amounts of cannabis before bed, as well as tea. Physical activity may or may not help, as I do a lot of exercise and still don't notice fatigue. Sure, the body is physically sore or stiff, for example, but the notion of "tired" doesn't happen. So I'd start by taking an account of your symptoms and figuring out what helps and what doesn't. Also if you don't feel safe or supported, or loved, that will screw up sleep as well. So clearing the day out of your head will help a lot more than the other things listed, but it's a collection of tools. I was able to track some of the problem here to the fact that I'm constantly running in emergency mode, and can't get the brain to turn off. Also part of the problem here is that I don't seem to get the signal that I should start getting tired, so I just keep bouncing around, regardless of the time of day. Certainly this is something that needs more investigation. It's figuring out how your system works, and playing around until you get something consistently working. For me it seems that a regular schedule and vitamin d and cannabis works reliably, but if I skip one of those things I have trouble. But then I've never had any sort of vision at all, so I'm not sure that my circumstance matches yours. I just wrote this giant comment to possibly help you find things to look for, as I don't think weird sleep problems get the attention they deserve. Especially things like the non-24 effects are still being denied by most doctors and insurance companies, and having gone through years of improper sleep, I can say that's not useful.

​
ENTJ351 [OP] 1 points 4y ago
I don’t have any. So it may be that. I was born with a very tiny bit. Just a little.
cae_jones 1 points 4y ago
Timing exercise supposedly helps. Melatonin can help, but almost no one uses it right (0.3-0.5mg, not the 3-10mg you find in stores).

People *do* use light as sleep / waking triggers. Most of the advice in this thread so far is good for getting around the lack of that..

Also, if you snore, or have sleep apnea, fix it, if you can afford to.
vwlsmssng 1 points 4y ago
Here are some tips on sleep from the BBC

https://www.bbc.co.uk/news/health-44137559
AllHarlowsEve 1 points 4y ago
Having a firm schedule will help most people who think they have a sleep issue. Nearly every person I know personally who thinks they have non-24 also have no regular schedule but think they're unrelated.

I'd also check with your doctor and have some bloodwork done. Vitamin deficiencies can definitely mess with your ability to get tired or sleep on a regular schedule.

My internal clock is slightly closer to 25 or 26 hours rather than 24, so I will, slowly, cycle through sleeping during the day and night, even with a firm meal schedule and plenty of exercise, etc.

If you can get your schedule down and keep it up,it should help your sleep schedule get consistent.
tangozebra 1 points 4y ago
You should speak to a doctor about about this. There may be a medication or over the counter product like melatonin that could help you. I realize it's probably difficult to find a doctor who has a lot of experience with blind patients. The university health center may be able to give you a recommendation.
codeofdusk 1 points 4y ago
Sounds like n24 to me. See /r/n24
MostlyBlindGamer 1 points 4y ago
I agree with the advice of setting a schedule for yourself. If you feel like you don't need much sleep you can do 8 am to 11 pm. The important thing is to promote regularity.

If that doesn't work, maybe you l there are other specific issues affecting you. Maybe you're procrastinating and don't start working until late and then don't want to feel like you didn't get enough done? Maybe it's the opposite and you're really in the zone and lose track of time? Both situations can be improved by seeing a schedule for your tasks.

To help you get started, consider having some calming tea before bed. There are also sleeping pills that are made from very natural stuff like Valerian root (also available in tea form). I've had good results with those.
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