Parents with a VI, what are some challenges you faced with young children?(self.Blind)
submitted by saharacanuck
What are some of the things you found challenging about being a parent that are specific to having a visual Impairement? How did you manage it?
OutWestTexas8 points4y ago
I found out my five year old was sticking his tongue out at people and making faces. I was oblivious. There are lots of challenges. Just approach it with humor.
saharacanuck [OP]2 points4y ago
Lol. Does your kid understand what you can or cannot see?
OutWestTexas2 points4y ago
Oh yeah, he knew. I’m sure my kids did all kinds of things like that. No doubt they took advantage of the situation sometimes but they were kids and I expected it. Thankfully, all three grew up to be great adults.
saharacanuck [OP]1 points4y ago
How did you manage playground time for example?
OutWestTexas2 points4y ago
We had a swingset, playhouse, and sandbox in our backyard so I didn’t have to take them out to a playground. If they wanted to ride their bikes on the sidewalk, I would follow along. If they fell down, I’d go to them or they’d come running to me for a kiss and a bandaid.
Rosllyn3 points4y ago
Thanks for asking this question, I am a first time mom with a VI and my babe is due in March and I’ve been thinking about this a lot lately! Sorry I don’t have any insights to answer the question yet though...
GoBlindOrGoHome3 points4y ago
Best of luck, I wish you bravery and love in this new segment of your life!
Rosllyn1 points4y ago
Thank you!!! I am nervous but overall looking forward to all the laughs and love to come!
saharacanuck [OP]2 points4y ago
I’m due in June :-)
stalinprude3 points4y ago
Well, all 3 of my parents children, including me are legally blind and on the plus side, no worries about us having to have cars and insurance. Downside, we cant go anywhere alone and we require transportation to go anywhere so we truly can't be as independent, which will always have a toll on our parents (oldest 32, youngest, me, 19). I've had my mom expain our disease to people in all places because of mistakes we make as a byproduct of being low vision. It's kinda like, we're dealing with the physical aspects while mom and dad have to do things for us we sinply can't. My brother can't drive his kids anywhere unless their mom is there so there's not really 'outings with dad'. We're all used to it at this point, as my eldest brother was diagnosed in 2nd grade (took until senior uear for me despite having had it for years prior)
HDMILex1 points4y ago
*Disability, not disease. Don't ever think of your VI as a disease.
stalinprude6 points4y ago
I usually refer to ot that way, not to put myself down, but that's how my retina specialist speaks of it. Not to mention it's called Stargardt's Disease.
Hellsacomin945 points4y ago
Isn’t RP a disease?
HDMILex1 points4y ago
Yes, but my point is OP is telling outsiders that they have a 'disease'. Which has a pretty negative social impact in a lot of circles.
I'd say Visual Impairment, not Disease (even if it's classed as a disease.)
stalinprude2 points4y ago
Im sorry if it came out that way😣 i don't want others to feel the disease burden and i understood completely.
matt_may2 points4y ago
They had to learn to get out of the way of my cane because I literally can’t help it. They, from an early age, would warm me about steps, obstacles. They had to learn that we’re different then other families and explain my visual impairment to their peers. I think, hope, it’s been character building.
Prefect3161 points4y ago
I'm totally blind and not planning on having kids because of it. Not that I don't have faith in myself, but I know how kids are. Like if my dad was blind I would exploit the hell out of it, and if they didn't I kinda wouldn't respect them. Does that make sense? Lol
[deleted]1 points4y ago
[deleted]
Perdurabo93933 points4y ago
It's 'in case', not encase.
saharacanuck [OP]2 points4y ago
Never thought about the rash thing. Running off is more in my gear basket
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