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Blind and Visually Impaired Community

Full History - 2019 - 01 - 24 - ID#ajj1vx
50
Help needed: employee going blind (self.Blind)
submitted by superenna
Hi everyone. I have an employee who has been having trouble with his eyesight. He came back from the doctor today and basically broke down and told me he was going blind rapidly.

So I’m about to ask some very stupid questions but I’ve been googling like crazy and I feel like I’m overwhelmed. So instead of continuing down that path, I figured it would be better to go to people who walk this path already.

Would getting the software that reads aloud help delay his eyesight degenerating go slower? Does anyone have recommendations on software (I’m going to dig through this sub next but figured I should ask.)

Is there any software for the blind that works with mechanical engineering drawings and work?

What can we do as a company to help him feel like we don’t feel he’s losing his edge or a “worse” employee because he’s going blind/eventually blind?

What else can I do to help this guy in a work capacity? (Aside from getting him protected under disability clauses and other HR stuff, that I can do. It’s the “soft side” I’m missing here.)

Thanks in advance.
lizzyb187 38 points 4y ago
Just wanted to add that I think you're amazing for caring so much about your employee
superenna [OP] 16 points 4y ago
Thanks. I know it’s not the same thing, but when my kid’s doctor thought she had a brain tumor, I kept focusing on how much her and my life would change. Work was a really stabilizing force. I know it’s not the same for everyone, but if I can make it as stable as possible for him at work maybe he can deal with what he needs to deal with at home. My boss did that for me, so now I should do that for him. (My kid ended up not having a brain tumor. But did end up with epilepsy, which was the best possibly scenario.)
[deleted] 1 points 4y ago
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Prefect316 14 points 4y ago
What kind of work does he do? If it's 100 percent mechanical engineering and drawings, that's really tough. It's really hard as a blind person to work with that kind of stuff. Nothings impossible, but I have yet to hear of a way to 100 percent accessibly do those things. That's freaking heartbreaking.

I also don't know how big your company is, but if you're in the US chances are a state vocational agency can help get your employee the tools, training, and support he needs, and depending on the size of your company you may even receive a tax credit for it. I'm kinda dumb when it comes to taxes so that'd best be discussed with the vocational agency you find.

Best of luck to you and your employee. Just posting here to ask about it shows you're a good boss.

OH and to answer the question about the software:
If he has a program that will read him the screen (a screen reader), it probably won't help curb the degeneration of his eyes, but it'd be smart to get training on the software asap.
superenna [OP] 14 points 4y ago
It’s mostly engineering. He’s not doing CAD drawing and is more of technical specialist for electric powertrain. I’m trying to think of a job where he wouldn’t review drawings so that may be an avenue to pursue.

I will definitely look into the state vocational agency. We are a fairly large company and are on the Fortune 500 list so I know we can handle any costs associated with it, so I’m not too concerned about the tax rebates (thought that might help me sell getting him a promotion to a non-engineering job, so thank you for that point.)
badtyprr 13 points 4y ago
Systems engineer here with over ten years of engineering experience. I think what you proposed is your answer. He can make top level decisions based on performance measures without viewing a drawing. I'd recommend quality and reliability engineering. The design usually goes through rigorous stress testing that can be performed by engineers and technicians. The data that comes out can be analyzed from a spreadsheet, which a blind person can do. Having design experience is absolutely crucial in this role. He will know what to test, how to break it, and what performance measures are necessary.
superenna [OP] 7 points 4y ago
Oh this is a fantastic idea. Thank you.
FrankenGretchen 4 points 4y ago
Another angle is your guy knows the stuff. With a sighted assistant/intern, he can still do a goodly amount of interaction with diagrams or plans that aren't easily made accessible through tech. He'd be a fantastic resource for less experienced people and a great team leader as well. He's got many options and you have a valuable resource to explore especially since you're looking at the situation from a value maintained/added perspective. This is still a rare phenomenon in the disability community.

You may find that his changed vision opens new ways for all of you to look at how you work.

As for sight conservation, there used to be a number of theories about how not using your sight saved it for later. As someone who was put through some of those ideas, I can say they're bunk. Eyes that are failing aren't going to stop because you use them less. He will likely want to see All The Things while he can rather than rest them and hope for more days. This is natural.

Letting him know you want to help him maintain his place at your company and asking him how he wants to proceed will be a HUGE relief to him. You can make contacts and tell him what you've learned about his options but don't he surprised if he's working on other angles, too. You engineers are tenacious like that.

Voc rehab is a mixed bag. While you may come across a gem of a counselor with ideas aplenty, you are just as likely to meet someone with a less than supportive approach simply because scant resources or lack of knowledge of a field limit a counselor's perceptions on how a blind person can do a job. Be prepared for either response. Funding is a big consideration for them. Be upfront about your determination to keep him and that you're providing financial resources for any accommodations he needs and ask for help in the areas where your expertise is lacking. You may still find yourself experimenting to find what works. Put some feelers out within your field, too. You can't be the first with these questions. You may find solutions out there and your solutions could (will) change someone else's life, too.

Good luck with everything. I'll be chanting for you and your employee.
Sommiel 2 points 4y ago
The place you are looking for, is the State Department of Rehabilitation. Every state has one and they will have counselors that specialize in blind and low vision. They will do the evaluations and give the best referrals.

He will need to get the papers filled out, but they do that for you if you are visually impaired. They will get all the technology training lined up to learn to use the crazy patchwork of products.

>Would getting the software that reads aloud help delay his eyesight degenerating go slower?

Probably not, depending in his condition. You should probably make sure that he has the kind of glasses that reduce glare from the screen.

>Does anyone have recommendations on software

Window 10 has a boatload of built in things for the visually impaired. iPhones do as well, so I am assuming that Macs are similar. However, Zoomtext is the Cadillac of magnifiers with a built in reader. It's pricey, but worth every cent. Department of Rehab gave me my copy.

What is super important is that he gets into programs that are going to teach him the life skills he will need to get by, It's not going to do you much good to work on his job skills if he doesn't have the life skills he needs. He needs to learn mobility and orienteering so he can find his way around the office. People who see just don't get it sometimes, that things that they take for granted, like picking clothes or socks that match, are really tough and they get to you.


Any teaching center for the blind is going to have group discussions and it sounds drippy, but they really help. For the first year that I went through this, I had a bottle of oxy just waiting for the day that I couldn't read a book anymore. It's great that you are so supportive, but there are just times when you need someone that had been through it.

I might visit https://www.maxiaids.com/

You can get digital magnifiers, mice that magnify. Things that he can carry around the office if he needs to look at something.
recklessgraceful 13 points 4y ago
No advice just thank you for being so caring. This is what my husband went through before leaving his last job because they utterly failed to accomodate him. Didnt even try to read the letter from his doctor or understand... Just a total lack of empathy. It broke his heart, he put his soul into that job. Thank you for being a good human being and at least trying to make it work
itisisidneyfeldman 9 points 4y ago
Good job to you for trying to meet the employee's needs head-on. Aside from the direct work-appropriate measures, employee will want to get used to using assistive tech sooner rather than later. Taking the visual deterioration as a given, suggest that he enable and use the accessibility features on his smartphone (iOS VoiceOver in particular has been described as an absolute game-changer for making information accessible). That will also get him more comfortable with assistive technology generally.

Transitioning him to a less visually dependent role is a great thought, while keeping in mind the strengths you want to keep on staff. Depending on the nature of his work, the time course of his disease, and the available accommodation resources you have, it might help to hire a temp/part-time assistant for some of the tasks he can perform if he gets some help with the pure sensory problem (i.e. lack of seeing). Outside specific job duties, you may consider sponsoring or subsidizing something like an Aira subscription, where an operator talks a blind user through a task via streaming video telemetry, a la Google Glass.
LanceThunder 7 points 4y ago
i don't think your questions are stupid at all. trust me, i hear a lot of strange ideas about this sort of thing in my line of work.


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you will have to get an opinion from his doctor about what will slow down the degeneration. my best guess is that software wont slow the process but it will give him more stamina on the job. it tires a person out to be squinting at a screen all day.

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a big part of my job right now is to try and make my workplace more accessible for people with various disabilities. its going to be really hard to find a way for him to read mechanical drawings once he is completely blind. if there is a way, i haven't found it yet and i have been doing *a lot* of research. maybe there is some sort of really expensive tactile interface that would allow him to feel the drawings but that technology is probably poorly developed and unpractical. it certainly wouldn't be a mainstream accessibility device.

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while he still has some vision there is software called **zoomtext** that will make it easier for him to zoom in on his screen to see things better.

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once he completely loses his vision he will be using **JAWS and NDVA** screen readers to use a computer. JAWS will cost you a decent sum to buy a license. NDVA is free but i would suggest donating a few hundred dollars since they are doing gods work. he will probably want to use both since each is good for different tasks. overall JAWS is supposed to be better.

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these readers allow the user to use a computer without using the mouse or monitor. it takes a lot of getting used to so he should probably start learning as soon as he is emotionally ready for it. once you get the hang of it, there is a lot you can still do with a computer. but i am afraid he will never be able to use maps, diagrams, flowcharts, drawings.

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if you are a fortune 500 company, you might want to eventually reassign him to do accessibility testing/training for your organization. i don't know how practical that idea is but its something.
CatchTheseWords 7 points 4y ago
Getting him software won't slow down the degeneration, but it may mean he experiences less eye strain which will help his overall physical health. Lots of people going blind get headaches and fatigue simpley because they are trying to use their eyes all the time when their eyes are no longer the best way for them to access things. So it will be a help.

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It's also going to help him if he can learn how to do things non-visually now so that when he does lose all his vision he's confident and knows how to use the tools he will need. What state are you in? Vocational rehab is a good way to go but there are also other organisations that can assist with this.

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Ultimately the most important thing is that he knows he has support. He's dealing with a lot, so knowing people at work have his back will definitely be one less thing for him to worry about. Keeping my fingers crossed for all of you.
superenna [OP] 2 points 4y ago
We are in Illinois in the Chicagoland area.
pokersnek 4 points 4y ago
Check out Lighthouse for the Blind in Chicago. They have a suburb campus as well. They are an excellent source for blind rehabilitation services.

If he is a Veteran, the Hines VA is an excellent place for blind rehabilitation. This is where the field of blind rehabilitation really took off.

Second Sense is also in Chicagoland. They also do rehabilitation.

I’ve worked for the state, and the services we have are... ok. The state can provide a councilor through the Bureau of Blind Services. They can hook him up with rehabilitation training as well, but, I have to say, the services are somewhat lacking. From my previous client’s perspectives, the one facility that people tend to go to, ICRE-Wood, is really more geared toward people with multiple and cognitive disabilities.

I am an Orientation and Mobility Specialist. I teach people how to travel with a cane when they are blind. Feel free to ask me anything.
TwistyTurret 5 points 4y ago
JAWS is the best screen reader software for a Windows PC.
[deleted] 3 points 4y ago
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cae_jones 3 points 4y ago
There are ways to emboss drawings, but that doesn't necessarily mean going that route would be ideal compared to other suggestions already posted.

I've never heard of anyone 3d printing tactile graphics, so I must assume there's a reason, considering that it's probably cheapest. Next to that, there's capsule paper / swell paper, where anything drawn on it with a certain material (I forget precisely what, but it might just be a common carbon-based ink) triggers the expansion of capsules inside the paper when heat is applied. The images can be drawn or printed with not-so-special equipment, but the paper and the machine for activating the effect are more costly (last I checked, the paper went for around $115 / 100 sheets, and the machine was a few thousand).

As mentioned elsewhere, though, it'd probably be better to use magnifiers before transitioning to a less visually demanding position.
texanpanda 2 points 4y ago
I use this every day at work. Yes, the heat reacts to the carbon in printer ink. Supposedly there are markers you can use as well, but I haven't tried them yet. Highly recommend. The machine name is PIAF, it's amazing.
superenna [OP] 1 points 4y ago
Oh man thank you. This is a great list of options!
communicationsmonkey 3 points 4y ago
Not sure how much help this is going to be but the co-founder of the start up I work at OSeyeris is a blind software engineer. I think if you sent through questions on what you could so because I know to study math he had to make the software himself so he may have some tools that could help.
$1 send us an email and we can see what we can think of.
liquidDinner 2 points 4y ago
I'm sort of in your employee's shoes on this one. My bosses really don't know what they can do to help, but they've still done some pretty great things.

They're *helping*. I don't feel like HR or any law is making them be supportive. When they say they'll do whatever they can to make my job easier I really believe them. I think that's the most important thing you can do.

They help me through my own reluctance. I don't like to ask for things. I was okay with the regular monitors like everybody else and it felt really weird when I was being pushed into getting larger screens. I got one screen and it did a ton to reduce the strain brought on by headaches, and they immediately had me order a second one.

They don't pry, but the listen if I need to vent about what's going on. This change is really hard and carries a lot of psychological weight. All of us want to feel like we can contribute. Losing your vision is a big hit against that. I can't drive anymore, I can't cook for my family, I can't tell which kid is mine when they play sports, I can't clean very well because I can't tell when things are clean (but let's be honest, this one is on the bottom of the list ;) ). At work - I feel a lot slower than I used to be. I send more typos in emails. I miss bugs in code review and I'm submitting more. Because coding isn't normal English I'm getting pretty bad headaches by the end of the day. They get it that some days are going to be harder than others and they're willing to talk to me if I need someone to talk to.

The biggest factor is that I feel like they want to help because they care, not because they're obligated. I don't want to be a burden and they've never let me feel like I am one.
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