I was diagnosed with degenerative retinoschisis a few years ago. Everything I've read and have been told says that, in my early 30s, I should be more or less stable. That's not the case, and things continue to get worse.

I'm doing exactly what you're talking about, I even call it my visual bucket list. I finally saw the Foo Fighters live for the first time last year. For my birthday we're going to a racetrack and I'm going to drive some crazy fast cars before my license is taken away. My wife and I are planning to take a trip to Italy.

If it's getting bad fast, I'd say go for it. I feel like I'm in a sort of "youth is wasted on the young" kind of situation, but maybe "vision is wasted on the sighted" in this case? I'm watching things I've always taken for granted slip away. I'd really like to get the most out of what I've got while I still have it so I can have the memories, and even share them with the people close to me.

You should plan to go somewhere far and exotic each year. But try to avoid super tourists area like Rome, Paris, Venice, and the like because of the crowds. It get challenging walking when there are just pack of people and all the crazy stairs and stones. . But if you were to travel, the countryside of France, Italy, and the like are amazing.

You can go on train rides all around the country, take taxis. Or even better, take a cruise to somewhere cool.

I’d advise a more sensory trip, where you can smell the fresh air in the countryside, taste good food and try new wines or beer. This way, if you go back, you’ll remember that part, with or without vision.

This is actually a really cool idea. I've sort of made a "visual bucket list" and have been trying to get out more; although, I luckily should have a good decade ahead of me (I hope). I saw the Grand Canyon last spring and that was 100% worth it. I hiked along the Rio Grande for a day too, and I also saw the Sandia Mountains and went up one of the world's longest trams to the one of the peaks.

I agree with some below comments that staying away from super crowded areas is probably best. A few years ago I went to Seattle and went up the Space Needle and saw some other tourist-y places. It was all fun, but being in very crowded spaces was stressful.

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I was born with congenital glaucoma and have a bucket list before it eventually gets worse. So far have been to several concerts including the last warped tour which was my absolute favorite. Otherwise I'm heading to the beach for what may be the last time as my vision is steadily decreasing

My mom has RP as well. We took her to Canada to visit her cousin and see the fall colors. She'll be going to Alaska in a month to experience the Alaskan wilderness. She's enjoyed it thoroughly but especially being able to spend time with the family without getting caught up in the humdrum of life. I'm glad she'll get to see me walk down the aisle for my wedding. Another thing on her bucket list is to see falling snow.

Being blind isn’t that bad. If you learn to adapt. I am trying to give you some perspective here. I am not trying to be a contrarian troll.

It’s my opinion that blind people can absolutely do basically just about the same things and there are ways to enjoy them too. I am going to dc and ny this summer.