Blind and Visually Impaired Community
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Do you get tired of the eye doctors? (self.Blind)
submitted by faerylin
I just started really seeing eye doctors again in October 2018. But I am tired of going to them. I feel like they never help and just want to run more tests, find more problems but then be unsure of how to connect it all so send me to someone else, for the same thing. Then the last people decide I do need to see neuro again and the process starts over again. I’m adapting to losing my vision, rapidly, I’m adapting to everything being thrown at me but when do you say enough is enough or is there ever that point? What do you do if they never find out what’s actually wrong?
How can doctors diagnose, disagree take back the diagnosis just to leave you hanging with more problems than you started and now not even a name to call what your going through? Every time I go I’m in there for at least two hours and when nothing comes from it, it’s just frustrating.
I go tomorrow for them to dilate my eyes again. My pupils are now both constricted and for the first time in my life lights don’t bother me. Like at all it’s amazing I used to be soo light sensitive and this is the first time with dilation since they randomly constricted a few weeks ago and I’m nervous all over again.
How can doctors diagnose, disagree take back the diagnosis just to leave you hanging with more problems than you started and now not even a name to call what your going through? Every time I go I’m in there for at least two hours and when nothing comes from it, it’s just frustrating.
I go tomorrow for them to dilate my eyes again. My pupils are now both constricted and for the first time in my life lights don’t bother me. Like at all it’s amazing I used to be soo light sensitive and this is the first time with dilation since they randomly constricted a few weeks ago and I’m nervous all over again.
aussiecrunt 2 points 4y ago
For me, the dr's are only good for signing any paperwork I need done.
tayceT90 2 points 4y ago
I hate going to the eye dr. It scares the crap out of me each time.
Do they have any idea what is wrong ? I’m sorry you’re feeling down.
Do they have any idea what is wrong ? I’m sorry you’re feeling down.
faerylin [OP] 2 points 4y ago
Nope, it all started oct, 2018 with optic neuritis; then it was stargardts via my retinas but then my vision rapidly decreased 40/20 to 300/20 by June 2019 and my retinas have changed in a way that’s not like stargardts so now they don’t think it’s stargardts and neuro problems and losing peripheral vision make it seem like something else. Well now my pupils are constricted and sluggish as of two weeks ago. I also went from very light sensitive to light doesn’t bother me at all. I keep gaining new specialists and new problems keep popping up. It’s like no one can figure it out and it’s so frustrating!!! The test they were hoping to give them answers was the emg but I don’t think it was done right because everything came back inconclusive every single one. Like how does that happen. Now they have to decide if it’s worth it to do t again.
They haven’t removed the stargardts diagnosis because I test positive for it and my retinas show it so is it two things going on or what? They don’t know sonuntil they do it’s left but sort of ignored.
They haven’t removed the stargardts diagnosis because I test positive for it and my retinas show it so is it two things going on or what? They don’t know sonuntil they do it’s left but sort of ignored.
tayceT90 2 points 4y ago
Wow. That’s gotta be incredibly frustrating. It can be so scary. Are you doing any kind of treatment ? Are glasses helping you at all?
I hope you get answers soon. Everything will be ok.
I hope you get answers soon. Everything will be ok.
TheBlindBookLover 1 points 4y ago
Hi. I understand your frustrations. It was a challenge for me to get diagnosed as a child. I was misdiagnosed with RP after months of bouncing from doctor to doctor at age 5. At 13, genetic testing revealed that I have a rare gene mutation for Leber’s Congenital Amurosis. What state do you live in? Have you tried to look into the top specialists in your state? All doctors obviously have a medical degree, but it is in complex cases in which it is beneficial to see physicians who are at the top and not just average. I hope that this helps.
faerylin [OP] 1 points 4y ago
Gotta love when they dialate your eyes and there is no change. Lol been sitting here for like 10 mins and besides the initial horrible burning for like 2 mins cuz I didn’t get the numbing stuff first. Not sure if something is causing the dialation not to work or it takes longer to work or my vision is just that bad but yeah nothing has changed. Lol now I can feel myself just rambling on and on. Lol I hate going to the docs.
bscross32 1 points 4y ago
Doctors scare the crap out of me. I don't really go anymore.
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