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Blind and Visually Impaired Community

Full History - 2019 - 07 - 01 - ID#c7skit
22
I am a totally blind guide dog handler with prosthetic eyes. AMA (self.IAmA)
submitted by FiverNZen
MercySound 3 points 4y ago
I'm 34 and have a degenerative eye disease called Choroideremia. I can still see with a few degrees of vision left in each eye, but have night blindness. When should I start thinking about getting a guide dog? Should I get one since I'm not fully blind?
FiverNZen [OP] 1 points 4y ago
You are more than welcome to start looking and applying for a guide, regardless of vision. What they will check for though is to make sure that your remaining vision isn’t getting in the way of the work that your dog will do, e.g. you’re using your vision to try to avoid obsticals instead of letting the dog do it’s job. Additionally, do you have any orientation and mobility training/have you any experience with using a cane? In order to get a guide, you need to be proficient in using one first. :) I’m happy to chat with you more on this if you’d like.
IntenseScrolling 3 points 4y ago
Do you use body language when you converse? Like hand gestures while speaking? If so, why do you think that is? Have you been blind since birth?
FiverNZen [OP] 1 points 4y ago
That’s an interesting question! I do tend to use a lot of hand gestures when talking...whether or not they’re “typical” hand gestures, I’m not sure haha. I think I just tend to move them around a lot, and if I’m embarrassed I cover my face. I’m not really sure why I do this, or how long I’ve been doing it for...but no, I’ve been fully blind since age two but have no memory of vision prior to that. I know I struggle a little bit with making sure I’m fully facing the person I’m talking to. 9 times out of 10 I make pretty decent “eye contact” but it’s hit or miss.
IntenseScrolling 2 points 4y ago
Maybe your subconscious is aware that you blush when embarrassed/lie and even though *you* can't see it happen you still instinctively cover your face. Hmmm. Since the trend of people burying their time into their smartphones have you noticed people become quieter or less attentive?
FiverNZen [OP] 3 points 4y ago
I do notice this, actually! It drives me nuts as sometimes I’ll be walking and someone crashes into me because they’re so into their phone screen lol. Excuse me sir, but who’s the blind one here? 😂😂

It’s noticable during conversations also, especially if you’re in a one on one conversation. It’s awkward as I can’t be sure of why they’ve stopped speaking plus I find it a bit rude to be in the middle of a conversation and hten just start ignoring the other person for the phone. :P
IntenseScrolling 1 points 4y ago
It is rude! Has your dog every been bombarded by another dog off its leash? How do/would you handle that? That would freak me out. Going more in depth on the smart phone question, do you have any words of wisdom for people who confine themselves in a virtual world (Like Instagram or gaming addicts)?
CosmicBunny97 2 points 4y ago
Wait what are prosthetic eyes and how do they work?
FiverNZen [OP] 1 points 4y ago
When I was two, both my eyes were completely removed and I was fitted for artificial eyes, which are made from medical grade acrylic. They are in the shape of a $1. Therefore I have no light perception and also can’t see darkness. I do have some muscle structure beneath them so I can move them to look in different directions.
CosmicBunny97 1 points 4y ago
Holy crap that’s so cool! What can you see with them?
FiverNZen [OP] 2 points 4y ago
Demons.

Actually nothing, because I don’t have eyes essentially. :)
CosmicBunny97 1 points 4y ago
Oh I’m an idiot hehe. I kinda realised after I posted lol
Dorsey160 2 points 4y ago
My 5-year-old son is quickly going blind and we are working on getting a diagnosis now. Is there any advice you can give that may help him through this?
FiverNZen [OP] 2 points 4y ago
I’m sorry to hear this...just know that despite the diagnosis, your son is fully capable of living a fulfilling and successful life. :) Look into familyconnect.org. There are a lot of resources there for both your son and the rest of your family, including different toys/adaptive games for him, and support for you as the parents. Let him play, jump, run, fall and get up again just like any other child. He will most likely also learn best from hands-on experiences, and building concepts from a smaller picture to a big one rather than the reverse which is how sighted children learn. Please let me know if I can help in any other way! I’m happy to answer any questions. I wish you guys the best.
Dorsey160 2 points 4y ago
Thank you! My wife and I have learned that it is not the end of the world, that things will just be different for a while once we get used to everything.
FiverNZen [OP] 2 points 4y ago
This is exactly right. I look at it like it’s just a different way of living, and sometimes you have to think outside of the box but that’s half the fun.
uh_huh_uh_huh 1 points 4y ago
How do you find baking without sight? Especially since baking is unlike other forms of cooking, and you can't really taste test during the process because typically the food stays in the oven until it is fully done. I would imagine any kind of cooking would be much more difficult. I am completely blind in one eye, but still have decent vision in my good eye. And even for me, cooking seems intimidating because I don't have depth perception and I'm not worried I might touch or knock over some really hot things.
FiverNZen [OP] 1 points 4y ago
Your concern about hot things is completely valid. Honestly it just comes down to spacial awareness, and knowing where you have put those hot things in relation to the rest of your baking materials at the time. I tend to leave all hot things on the stovetop if I’m actively working on them so I don’t accidentally spill them. As for checking if food is done, I use the good old toothpick method if I’m working with cakes or similar. I also utilize timers heavily and make sure to set for a few minutes earlier than the recipe calls for just in case; it’s always easier to cook it just a bit more than to reverse burning, lol. I also rely on the smell and texture on the top of the product to see if it’s still squishy/raw, not crispy enough, etc. Timing really does help though, once you learn if your oven runs hot or if it typically cooks things at what recipes suggest, if that makes sense.
solar-cabin 1 points 4y ago
Hi, I am an AI programmer working on an interface called AIVA that is specifically focused on helping the visually and mobility disabled to more easily browse the web.

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What speech to text software are you using and would recommend and do you have trouble communicating with certain websites like Amazon to place orders or does your software have a way around that system?

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Thanks and keep up the good work!
FiverNZen [OP] 3 points 4y ago
Hi there!

On an IPhone, I’m using Voiceover. I also use windows 10 and 7, and utilize JAWS for Windows. I have no trouble with Amazon on an IPhone as the app itself is very accessible, however I do not enjoy using the website on a computer as I find it slow and a bit cumbersome...not sure if this is everyone else’s experience though. I’m happy to answer any questions about this if I can :) thanks for your hard work!
solar-cabin 2 points 4y ago
Right on and I will look at those to implement in AIVA.

Would it be OK if I shoot a question at you on this post from time to time?
FiverNZen [OP] 2 points 4y ago
Of course! Feel free to PM me as well if that’s easier. :) I’m glad to help
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