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Blind and Visually Impaired Community

Full History - 2019 - 07 - 02 - ID#c8cqlk
12
Last year an infection caused my aunt to go from fully sighted to blind in 3 days. We’re struggling to find apps or guides to set up basic visual assistance on a phone. Everything we try seems clunky and confusing even to me, and I can see the phone and grew up with technology. (self.Blind)
submitted by operandand
Details below about her other health and ability limitations, that may sway suggestions. Sorry it’s a long post, it’s just really important to me that she regains some of her personal autonomy.

My aunt is in her late seventies and has always kept a pretty busy lifestyle with lots of friends and active in her community, despite having some minor mobility issues related to MS, which she’s been managing for many years.
She’s always been very deliberate about showcasing her funky personal style with her clothing, hairstyles, constantly redecorating her house, etc. Naturally, the sudden loss of sight was shocking and it affected her self confidence.

She became homebound due to feeling self conscious about her appearance and also because she was afraid of hurting herself, falling etc. She was resistant to learning how to live as a blind person at first because early on the doctors felt her sight may come back and she was pinning a lot of hope on that possibility. Unfortunately, she was also diagnosed with breast cancer around the time, and started chemo. It’s been a rough year.

Over the months she moved around less and less. She lost a lot of coordination, struggling to use her hands to hold a glass or feed herself. This could have been an indicator of what was to come but I believe also a result of her husband doing too much, not letting her learn to do everyday things without sight, and caused her to lose some hand-eye coordination, even bringing her hand to her mouth seemed to be a challenge. No one in my family lives closer than two hours from her so we didn’t understand the extent of this all at once or right away.

Being immobile for so long caused massive blood clotting in her legs, and another long and complicated hospital stay with some other issues that the doctors still don’t fully understand - several weeks of deep confusion and amnesia. It was intense and with doctors unable to determine what was happening we thought we may lose her.

They tried a range of treatments to address the mysterious symptoms she was presenting, and thankfully something worked. Once she was back to a coherent mental state, she agreed to an SSRI for depression, something I’ve been imploring her to do for months. Currently, the clots are almost gone, she’s in physical therapy and making tremendous progress. To see her now, weak as she still is, it’s like she’s finally back to her old self mentally and getting stronger physically. She’s not in major pain, has been feeding herself, holding a phone to her ear on her own, etc. and I want to seize the opportunity to keep her on the right track.

Her familiarity with technology is pretty typical for someone her age, not savvy, but she’s not daunted by it. Initially, when she first lost her sight, we were able to set up her Samsung phone with “ok google” commands and she could sort of answer and make calls, not perfectly and it was a short term setup, but I was impressed how quickly she was learning and troubleshooting. We felt an iPhone may be a better option for setting up voice commands, so we got her one, but there were issues with the phone and she got discouraged and ended up cancelling her plan, just relying on her husband and their landline.

She finally seems to have gotten her hope back, along with her mental clarity. The goal is to get her back home within the next couple months, and she’ll still have help from nurses/family/friends but I would love to be able to set up her phone so she could choose to listen to music or the news or make a call without asking for help.

Apologies for all the backstory, this has been pretty harrowing for my family and I guess I’m venting a little by writing it all down. I really appreciate any thoughts or advice that anything above brings up, whether it’s phone / tech related or not. Thank you.
[deleted] 6 points 4y ago
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operandand [OP] 1 points 4y ago
Thank you! Assistive technology training sounds like exactly what she needs. We’re in New York. She has Medicare and her husband is retired military so thankfully she’s in pretty good shape with coverage. I’ll look into resources in her area. Much appreciated.
[deleted] 1 points 4y ago
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operandand [OP] 2 points 4y ago
Thank you so much. I definitely will.
pitermach 5 points 4y ago
In my opinion, the iPhone gives the best accessibility experience for someone who is fully blind with the VoiceOver feature, though I can see how the experience may be daunting to someone who hasn't used a phone in this way before. iOS also has some additional features in the accessibility settings under touch occomodations that may be helpful in making the phone work better with any motor issues. For voice commands, siri can be used to call, text, play music and quickly launch apps, and with iOS 13 which will come out in a few months Apple added a feature that lets you fully control the phone with just voice commands. If your aunt manages to get through the initial learning curve, having a smartphone when you're blind is even more helpful than for an average person, because there are apps like seeing AI that let you do things like take a picture of an object or a piece of paper and have the phone explain what it looks like/read it out.

If using a smartphone turns out to be too hard, I know there are phones out there with traditional keypads that include text to speech for reading out menus that offer the basic phone features. Another thing that might come in helpful for some tasks is getting a smart, voice controlled speaker like the AMazon Echo or Google home, which apart from all of the skills they include for music, news, weather and books can also call other people. For the Echo, Amazon sells a device that you can plug into your landline phone jack which enables the Echo to receive and make landline calls which may also be helpful.

Hope that helps at least a little and I wish you all the best!
operandand [OP] 1 points 4y ago
That seeing AI app sounds so cool! I was very impressed and surprised how quickly she adapted even on her first crappy phone so I’m optimistic that with the right education she would really utilize and enjoy smart phone technology.

I had no idea about that Amazon land line phone jack thing. Wow, thank you! She has a few amazon Alexa devices, not sure which ones, but I’m going to look into this right away. She loves talking to her friends on the phone and I’d love to know she could make phone calls out on her own as soon as she gets home. I’ll try to set it up for her, I think it’ll motivate her on these days when physical therapy gets tough. Thank you so much!
TheBlindBookLover 3 points 4y ago
Hi. If there are challenges in obtaining assistive technology training, there are some great tutorial videos on YouTube. My favorite video series on VoiceOver lessons is called iFocus by the Hadley School for the Blind. I hope that this helps.
operandand [OP] 1 points 4y ago
Awesome, thank you for this! I’ll check it out!
Quinn-Caged 1 points 4y ago
Be my eyes is a really cool app where you can video call volunteers who speak your language for assistance finding items, ask questions, etc. thousands of visually impaired individuals use it. Hope this helps.
operandand [OP] 1 points 4y ago
Thank you! Looks like something she will enjoy once we get her a little more adept at using the phone. She’s one of those people who never meets a stranger so I think this would be a good fit! Cheers!
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