I just need to put this somewhere. I’m infuriated and so hurt. I’ve had 20-20 whole life and now I’m at 20/150. Cool. I hate relying on others. I hate that my autonomy is being taken away. Someone promised that they would pick me up half an hour ago. HALF AN HOUR LATE. This person is my own sister. Imagine it wasn’t family. I don’t think I can deal with this anymore, at least not today.
😩
vapidvision8 points4y ago
I am sorry you are so angry. Losing eyesight is not something I had to deal with; my eyesight had been pretty stable.
It's hard when someone says they will help but does not.
violetsocks [OP]2 points4y ago
Yeah. I don’t know when it’s going to stop degenerating. Eventually it will stabilize, but when? Nobody knows. Everyday I wake up scared that it has degenerated even more.
vapidvision4 points4y ago
Yeah, I keep worrying that this brain tumor will grow and my eyesight will deteriorate further, but its been on my mind (har har har) since I was 7 and they found it. I just appreciate what I can see and smoke dope to fill in the rest.
violetsocks [OP]5 points4y ago
Sorry to hear that but I’m glad you’re livin! Are you a teacher btw? I saw a post that you commented on. I’m a teacher.
vapidvision5 points4y ago
Why, yes I am! Got my first teaching offer this week! Special Ed and ELA at a MS-HS program for children who have experienced trauma or are lost in the foster system.
wutsgudhomz15 points4y ago
You’ve been dealt with a shitty set of cards and I m sorry.
But I hope you turn that into drive.
Lastly, be patient; know that you can’t do everything you could and it will take you time till you become self reliant (or as close as possible).
LittleTay4 points4y ago
Probably not what you want to hear, but I know the feeling. One of my eyes is 20/80 and the other is 20/400. I am not able to get my license so I have to rely on people. On a normal day, I am at work at least an hour early because I have to get dropped of by a time that in convenient to my ride, not me.
Only time I get to go to the grocery store is when it is convenient for my ride.
My life seems to only be based on convenience. But, what am I trying to do to help that,? I'm looking into big cities that have good public transport such as New York or Indianapolis or Atlanta, GA. The reason why I haven't moved yet is because of the expenses.
violetsocks [OP]1 points4y ago
You can’t drive with Bioptics? What’s your vision? I’m hoping my eye doctor will let me drive with them. I’m waiting on my appointment. What’s your condition? I have Stargardt’s. Boston has good transport too.
LittleTay1 points4y ago
I was born with a premature retina, which then caused my retina to tear later in life. Now I have early stages of glaucoma at age 28. Over the past 7 years I've had around 7 surgeries and I've been told my vision won't get better. Over the last year I've noticed a big change in my eye sight, such as cloudy vision. (It isnt cataracts, I already had those)
As far as biopics go, I haven't looked into it.
princesspooball2 points4y ago
I have ROP too and it sucks! I've had a detached retina, cataracts and glaucoma too, you and I could almost be twins
LittleTay1 points4y ago
Blind twinsies!! (I am a twin, but my twin has perfect vision :P )
violetsocks [OP]1 points4y ago
I’m sorry to hear that. Hopefully, they can figure something out. Maybe Bioptics will work for you. 👍🙏🏼
Superfreq23 points4y ago
Try turning that anger into drive. find an NFB training center or lighthouse program you can go to. Work hard enough at it and you won't have to rely on others nearly as much. It's not easy or quick, in fact it will probably be one of the hardest things you've ever done, but it is super important for getting control over your own life again.
violetsocks [OP]3 points4y ago
What state are you in? I’m trying to do it this in the Midwest. My appointment is next week. Wish me luck!!! I need my independence back ASAP.
Superfreq22 points4y ago
I don't live in the states, I live in Canada, but here is a list of resources, you should be able to find your state or one near you in there.
I forgot to mention it in my last post, but Hadly is another great one I've heard good things about.
dankswed2 points4y ago
Hey man, I feel you. My vision is also going daily and I also hate relying on people as much as I need to, especially with driving!
I can't even think of words of comfort. Losing sight effin sucks.
So, I dunno, if you wanna complain/rant/what-have-you, always feel free to message me. :)
iDeVeD1 points4y ago
Hi and sorry to hear that I am also facing the same problem I have just moved to another country to continue on my higher education and I am now living on my own for the first time I would like to participate in the activities that my University hold and explore the new city that I am in but I’ll have also to rely on others to help me navigate through مخبزالتريكي1 folks told me yesterday about this activity that the university union have and I told him that I need someone to pick me up and take me there and he said OK and then he never showed up So I am feeling isolated in my flat because I’ll always need someone with me Just saying that we are all in the same boat together But definitely there are some days that are better than others
violetsocks [OP]1 points4y ago
I’m sorry that really sucks. People are assholes. Which country are you in? You should let the university know. They need to be able to provide you with accommodations! Is there accessibility and disability services? Make sure to take advantage of that!!
TK_Sleepytime1 points4y ago
ah, i'm sorry you are having a rough time. i am too blind to drive and so i depend on others often. i moved to a city with transit options so i can work and be independent but the trains and buses don't go everywhere. i also find it very frustrating when people are not on time (or add unplanned stops that take up my whole day) and i find myself not asking for help more than i absolutely need to because of this. also, it just sucks to feel like a burden to others. tomorrow is a new day. i hope it goes better for you.
vvxrd1 points4y ago
Sup dawg, currently chillin here with 20/400 in my left eye and 20/500 in my right. I know it may seem hard now but you just gotta adapt to a new way of doing things. Once you do that, you’ll come to realize that ultimately you still have quite a lot of your original autonomy.
ravenshadow20131 points4y ago
hang in there you will adapt , I went from 20/40 to 20/200 in the course of about a month it was hard but I can safely say that I am independent and going strong, you will make it. If family let you down find other way of getting around
fbracing021 points4y ago
I struggled very hard with the relying on other people part. I have a history that gives me good reason to rely on no one. It took sometime but it finally did get better. People still flake, its what they do but it doesnt piss me off nearly as much. I just work at being as reliable as I can in what I do.
Chaserly1 points4y ago
I know how this feels my dad is says he’ll pick me and he’s always late, I even mind gamed him until he caught out (told him earlier times). It’s sucks having to wait for people constantly.
Our mission is to provide everyone with access to large- scale community websites for the good of humanity. Without ads, without tracking, without greed.