Bring your karma
Join the waitlist today
HUMBLECAT.ORG

Blind and Visually Impaired Community

Full History - 2019 - 07 - 18 - ID#cf2jou
10
Anyone who has retina detachment? (self.Blind)
submitted by A_Scuttle_Crab
Hi, I'm just turned 21 and about 4-5 years ago I found out that I had retina detachment in both of my eyes. I had to have surgery and was able to save a decent amount of vision in my left eye but my right eye can only really see light and shadows since it was the first one to start detaching.

I just wanted to ask another person who had retina detachment how they go with their everyday lives? I've tried my best but since my parents didn't know how to deal with my situation I felt like I had to learn how to cope with my vision impairment all by myself.

Glasses don't really help much in improving my eyesight save for reading up close so I just stopped using glasses. I don't know, I never met someone else who has this, I just know that people my age don' t usually suffer from something like this and really it just made me feel lonely. It's hard to tell other people about my eyesight cause I'm not completely blind but I'm blind enough that I can't drive. So I figured that my disability wasn't deserving compared to other people. I had uncles and older cousins tell me that there are people who are worse off and I understand that but now I feel like my problems don't really matter until I dropped out of college a few months ago because I just lost hope in even continuing.

Sorry if this was too long. I don't know if this kind of post belongs here..
c_dawg93 6 points 4y ago
My left retina is completely detached and I have a right fragile retina that is still attached. I can see 20/400, so I’m legally blind. I am unable to drive, play contact sports, see well in the dark, or see movies in 3D. Frustrating, isn’t it? I’m 25, been blind in my left eye my entire life, ever since birth.
LibraryGeek 1 points 4y ago
I lost vision to a detachment gone bad too. My right eye can only see light/dark and movement about 5 feet away. My left eye is not stable but my doctor knew I was at high risk for having my left retina detach too (I have a collagen disorder). He actually used a laser to burn the edge of the retina in the same spot on the left retina that my right retina dropped from. So basically scar tissue is holding it place. You might want to check with your retina specialist about doing something like this. (you are seeing a retina specialist to monitor your retina in your right eye aren't you?)
I had a retina tear in the left eye. When he repaired it, he said if we had not done the tacking, my retina would have completely detached. I lost a tiny bit of peripheral vision where he did this but you don't notice it after a while.
[deleted] 2 points 4y ago
[deleted]
[deleted] 3 points 4y ago
[deleted]
LibraryGeek 3 points 4y ago
It would really help you to disclose your disability. You can then make sure you get things in large print for example. People will understand why you need to sit right next to the slide show. You can use magnifiers at work and people will get it. You would then be covered by the ADA if you are in the US.


Also, you might want to see a glaucoma specialist for the high eye pressure. Mine goes sky high without drops. The drops keep it down to slightly high.
[deleted] 2 points 4y ago
[deleted]
LibraryGeek 1 points 4y ago
I'm so glad to hear that you are finding your way at work. I hope you can one day find a more supportive environment :)
Glad to hear also that your drops are working :)
ThatSorcerer 1 points 3y ago

Yo, late to the party, sorry op.
I'm 24 this month.
I sustained my retinal detachment maybe almost a year ago. I was at a practice for a boffer sport/LARP called dagorhir. Me and a friend were sparing and I caught the brunt of a missed slash with my eye(silly me for not wearing a helmet). I felt what I could remember at a sharp stab and then a full ache that soon faded. I remember feeling like something was swaying past my vision like hair or something but couldn't figure it out.

Later I first started noticing floaters in my left eye that weren't there before(vitreous detachment).

I was living in on my own and money was tight. I just shrugged it off, for like 6 months, until my next eye exam when money was less tight. I had 2 surgeries(a partial buckle and eventually a pneumatic retinaplexi) and some laser. I'm fairly lucky I'd say. I lost vision in the upper right periphery of my left eye, not a ton, and my right eye picked up the slack. This is partly why I waited so long, I didn't even notice the vision loss until the vitreous detachment progressed a bit more and made the floaters more visible.

It's been a very scary time for me the last few months and I hardly lost much vision, so I can only imagine what it's been like for you.

I know in my case it's also been difficult talking to people about it. I feel like alot of people are very squeemish about eye inju
ries.
tl;dr I was sparring for nerd sport(dagorhir) practice and took a fist to the eye. Let it go for atleast six months to find out the severity of what actually happened. Had two surgeries. It's been an anxiety filled few months
Chaserly 1 points 3y ago
Whoa, I started noticing floaters recently after an incident... now I’m kinda worried.
ThatSorcerer 1 points 3y ago
Bruh, if you haven't been to the eye doctor in a while dont wait like me. Like it could just be floaters but don't take your site for granted. I'd say I got lucky I didn't go blind
rose_moons 1 points 4y ago
Hi, I had a retinal detachment in my right eye in January of this year. I am 15 so it was pretty rare but not unexpected because i have high degree myopia which put me at risk of retinal detachments so it was going to happen eventually. I will probably get one in my left eye too someday.

By the time i had realised what was happening and gotten to the hospital (i was turned away the first time) it was pretty much too late and it was decided it was emergent because my macular had detached has well. I lost 95% of my vision to a point i could only see a tiny bit of light in the upper corner.

I had an operation around 2-3 days later and it was reattached for a week or so my vision was red and i couldn’t see very much at all. Now the red had gone but i can’t see very well out of the centre of my eye, so when i’m doing something like reading i close shut that eye otherwise it’s difficult. As for adjustment there weren’t many i had to make because i was partially sighted anyway but this had made it worse m. I have began to use a cane because my depth perception is awful.
serrebi 1 points 4y ago
I'm in Canada, so take this with a grain of salt for your country. I have ROP: I had a situation in my life where I got pushed high up in the CS department at my University, because I'm likable, I guess, until teachers didn't want to help me at all. So I saw a counselor and told her I wasn't sure about doing anything else because I didn't want to run into the same problem, and she told me to take a break from school. I'm thinking of moving soon to a new area and maybe in the future, in a completely different area, I'd try school again, because I hear things have changed for the better in the last 3-5 years so don't let the capitalists in this world control your future, because you could put in all the right effort, work with the disability center at the university, and never get anywhere because of stigma and the horrible idea that relying on stack overflow in place of teacher help is an awesome thing! You shouldn't avoid an area you're passionate about, because maybe your passion will be enough to teach the skills required to graduate on your own so keep your eyes open so to speak if you can. my parents wanted to blame the people in the middle, people which didn't deserve the blame because they were extremely helpful when they could be. Not much they can do if the retired prof doesn't want to be there and talks about it loudly to someone, before the class.
aloe_chaos_lamb 1 points 4y ago
My vision impairment has a different cause, but I wanted to suggest it may be worth asking what accommodations your college provides. I work at a university in the US and I know our school offers really extensive support for visually impaired students--almost everything you can imagine from free software to note-taking services to the option to take fewer courses and keep scholarships, etc. Sending you good thoughts and hoping you are able to find community and support. FWIW I'm 29 and also cannot drive due to my vision, and I have a great life and a lot of independence. Don't give up on your education.
green_apple_snapple 1 points 4y ago
I’ve had 4 retinal detachment surgeries (2 in each eye). While legally blind, I completed college and struggled to adjust to normal life. I did regain vision in my left eye after surgeons being super cautious going into cataract surgery, and now I have 20/20 vision without glasses, 20/15 with.

While I was struggling to deal with the retinal detachments, I got into a routine. That was very important to me. I did 5 years of college, and half of them I was legally blind. It was so challenging. One year, I had to take 7 final exams because I had to leave early the previous semester to have another retinal detachment surgery. From someone who’s been there, I would say to not give up. There are many resources you can reach out to in order to adjust - check with your states Education Services for the Blind. They helped me with college, and they helped me get used to day to day activities (especially getting around a big college campus). Ask your college for help- they should have a disabilities division to aid you with whatever you need. It’s going to be tough at first, but you will adapt!
danie02 1 points 4y ago
Me. There are plenty of young people with retinal detachments, most of whom were born with retinopathy of prematurity (like me). ROP causes you to be born with totally or partially detached retinas. I've had both retinas detach & 2 surgeries each to repair them. They were successful in one eye & not so successful in the other.

I'm curious how your detachments happened? Anyway, I've been dealing with this since I was born. I got my first pair of glasses at age 2, I think. I don't drive, either & it's a real drag.

How bad is your vision now? Are you monitored by a retinal specialist? Maybe at your next eye appointment, you can talk about referral for voc rehab, if you qualify. It doesn't hurt to ask. They can help with finding a job & getting back in school if you want to finish. Also think about seeing a therapist to talk about how to process your vision loss and the grief that goes along with it.
This nonprofit website is run by volunteers.
Please contribute if you can. Thank you!
Our mission is to provide everyone with access to large-
scale community websites for the good of humanity.
Without ads, without tracking, without greed.
©2023 HumbleCat Inc   •   HumbleCat is a 501(c)3 nonprofit based in Michigan, USA.