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Blind and Visually Impaired Community

Full History - 2019 - 08 - 09 - ID#cnxof4
7
I guess this is an introduction (self.Blind)
submitted by rthymes-
I am a 20 year old who just got diagnosed with retinitis pigmentosa. I’ve lost a lot of my peripheral vision in my right eye, but so far my left has been doing a pretty good job at compensating. My left eye has a little bit of peripheral vision lost but so far only in the upper right corner of my field of vision so it doesn’t affect my daily life very much.


I guess I was just hoping to find some people around my age who might be dealing with a similar diagnosis. I’m not legally blind yet, but I will be some day. My family has been very supportive but I just want to talk to somebody who actually gets what I’m going through right now.
Rw0004 3 points 3y ago
I’m not visually impaired so don’t have experience as such, but my son is and what I will say is that the thought of it is a lot worse than the reality. He only has about 5% vision (in one eye as he lost the other to cancer) and he does absolutely everything a normal sighted person would do. Goes to a normal school, rides his bike, goes to football club & plays xbox etc. The transition might be tough, but you’ll find ways to adapt what you do along the way and be stronger for it.

It’s great that your family are supportive so never be afraid to talk to them and good luck
samarositz 2 points 3y ago
Welcome to the community. I was born with limited vision but it has progressively gotten worse especially in the last few years. Feel free to ask questions and generally participate. Again, welcome.
iDeVeD 2 points 3y ago
Hi there
I am at 24 years old young man with RP
I had six years of isolation and depression but things are getting better now
Just started my post graduate program and I’m loving it
Feel free to contact me about anything Blind related
Mysterybanjo 2 points 3y ago
I’m in a similar position, although I’ve had glaucoma all my life my vision is slowly deteriorating.
Awaywithwords6 1 points 3y ago
I have almost no peripheral vision and no vision in my left eye. Life’s not over hang in there.
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