Blind and Visually Impaired Community
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Letting go of sight due to pain (self.Blind)
submitted by taratarabobara
I have a condition that destroyed neurons used for eye motor control. I can see images, but using my eyes is now agony that I can't sustain for more than a few seconds out of an hour, and even then it is difficult.
I tried wearing opaque glasses and the relief I felt shocked me. Life is difficult for me to navigate as I made it to middle age, fully sighted, but my quality of life without sight may be higher at this point.
I guess I just want to feel that I'm not alone, and wondered where to look for resources.
I tried wearing opaque glasses and the relief I felt shocked me. Life is difficult for me to navigate as I made it to middle age, fully sighted, but my quality of life without sight may be higher at this point.
I guess I just want to feel that I'm not alone, and wondered where to look for resources.
finn141414 10 points 3y ago
There is a website called losteye that may be a good resource. It seemed filled with many people who had very positive stories about eye loss.
I do understand. A few years ago doctors were able to save my eye but there is a lot of pain but - no sight just light perception.
I do understand. A few years ago doctors were able to save my eye but there is a lot of pain but - no sight just light perception.
taratarabobara [OP] 8 points 3y ago
That really helps, thank you. Along with the vision loss I'm also dealing with losses in hearing, touch, taste and smell. Music still brings me to tears, I can still feel my grandchildren squeeze my hands, and as for taste and smell that's why they invented hot sauce. So I have kept far more than I lost. It helps to think like that. I'm going to need a lot of therapy though!
finn141414 3 points 3y ago
I love your positive attitude but I know it is so hard. Love and prayers to you ❤️🙏🏻
razzretina 6 points 3y ago
I've done something similar due to light sensitivity, although I've never had full sight. You'll do some things differently, but I think you'll find that once you get the hang of it, doing things the "blind way" is much easier and it will be a lot more comfortable for you to live without all that pain.
taratarabobara [OP] 5 points 3y ago
Thank you. I guess I feel awkward because in some sense I felt like I was "choosing" to accept blindness, but it's not really a choice if I can't live any other way anymore. It's pointless to criticize myself for this and I'm realizing that now.
razzretina 2 points 3y ago
There's no shame in accepting reality. blindness isn't any sort of failing on your part, it's just something that happened and you'll be better off learning to adapt to it instead of trying to fight it. Losing your vision is hard and grieving and frustration is part of that loss, but it needn't define you. :) Eventually we all have to stand up and just get on with living.
vapidvision 4 points 3y ago
>\[U\]sing my eyes is now agony that I can't sustain for more than a few seconds...
This is literally a recurring nightmare I have, unable to open my eyes at all without pain. I feel your pain, even if only in my nightmares.
My problem is optic nerve damage, and I have to wear dark shades outside even on cloudy days or will induce a crippling migraine that last a day.
This is literally a recurring nightmare I have, unable to open my eyes at all without pain. I feel your pain, even if only in my nightmares.
My problem is optic nerve damage, and I have to wear dark shades outside even on cloudy days or will induce a crippling migraine that last a day.
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