Blind and Visually Impaired Community
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Study of 417 RP Patients Finds Correlation With OCD (ncbi.nlm.nih.gov)
submitted by matt_may
_bassJunkie 3 points 3y ago
Well, I don’t consider myself OCD but I got RP (because I have a girlfriend who is OCD) but like you might be able to understand when your vision is going and you will lose something as soon as it hits the floor or out of your line of vision unless you know where it is. Lol
SpikeTheCookie 2 points 3y ago
There's a line in the study that indicates this is very specific to the population within Iran.
KillerLag 1 points 3y ago
It isn't specific to Iran, it's that is where the study was held. Other countries can also replicate the study as well.
It also mentions that John Hopkins did a smaller study as well, although it may not have been studying the exact same thing.
"John Hopkins University followed up 50 patients with RP from 2007 to 2010 and reported that depression developed in patients with RP."
It also mentions that John Hopkins did a smaller study as well, although it may not have been studying the exact same thing.
"John Hopkins University followed up 50 patients with RP from 2007 to 2010 and reported that depression developed in patients with RP."
matt_may [OP] 1 points 3y ago
It warrants further study. It could be a new syndromic RP
Hellsacomin94 1 points 3y ago
I’m betting it’s not. In my experience, the defining emotions of someone going blind from RP are anxiety, depression, and fear. This may be worsened in a totalitarian theocracy like Iran, but I think it’s universal to the going blind experience.
SpikeTheCookie 1 points 3y ago
Yes, I totally agree about depression and anxiety. :-) I'm just pointing out that this study finds an incredibly high percentage of those with RP have OCD, schizophrenia, and other disorders.
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But the population in the study is not necessarily the same as in all other countries. Here's a quote from the paper: "Consanguineous marriage, especially first cousins’ marriage, has been reported to be the most common etiology of RP in Iran ($1)."
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This indicates marriage between first cousins or closer, and this can lead to many complications in health and genetics, beyond RP. Here's an article from the National Institute of Health on the topic: $1
So this study is specific to the population they tested, unless your country and population is markedly similar and you have the same genetic variant of RP (which they did not test for).
It's easy to read a study like this and panic, as if RP is giving you all these other disorders. It's not.
However, there are many studies showing the relationship between vision loss, stress, depression, and anxiety. This is a substantial concern, and something we should have a lot of tools to address.
​
But the population in the study is not necessarily the same as in all other countries. Here's a quote from the paper: "Consanguineous marriage, especially first cousins’ marriage, has been reported to be the most common etiology of RP in Iran ($1)."
​
This indicates marriage between first cousins or closer, and this can lead to many complications in health and genetics, beyond RP. Here's an article from the National Institute of Health on the topic: $1
So this study is specific to the population they tested, unless your country and population is markedly similar and you have the same genetic variant of RP (which they did not test for).
It's easy to read a study like this and panic, as if RP is giving you all these other disorders. It's not.
However, there are many studies showing the relationship between vision loss, stress, depression, and anxiety. This is a substantial concern, and something we should have a lot of tools to address.
[deleted] 1 points 3y ago
[deleted]
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