I’d start making a list of questions for your next appointment. Write them down as soon and you think of something and take it with you. Short-term prognosis and treatment options, long-term prognosis and treatment options, warning signs to lookout for...etc

Some communities have low-vision centers that can help with adaptive technology and instruction on how to utilize them.

Corneal transplants have a pretty high success rate depending on the pre-operative diagnosis and supply outweighs the demand in the US, so there is not a waiting list other than the insurance company, surgeon, and the surgery center scheduling.

3) Best option is with a teacher, but may not be feasible. Hadley has a Braille course, but it also depends on where you live (https://www.hadley.edu/ShowCourseDetail.asp?courseid=IBR-123). Most English speaking countries have switched to UEB, but I'm not sure if all have.

4) If you use an iphone or Apple product, VoiceOver or Zoom is already built into the device. You can locate it in settings (Settings > General > Accessibility > VoiceOver). You can also use Siri to turn it on and off.

For PC, you can use JAWS or NVDA. NVDA is free, while JAWS does cost a fair bit.

I have Reis bucklers corneal dystrophy. I am assuming yours is not the same. Reis bucklers starts at ages 1-2 year old. Do you know what kind yours is?

I have this!! My entire family does. My grandpa is blind! Feel free to PM me or reply back!

I have corneal dystrophy in my left eye. In my case it is caused by high intra-ocular pressure which is also the condition that causes my glaucoma. My right eye has the same problem with intra-ocular pressure, but although it was enough to kill my optic nerve it isn't enough to cause corneal dystrophy.

Blindness is hard to tackle in my opinion. Your comfort zone shrinks dramatically and in my case too much to have the critical mass required to regrow it back, which means that although I've been blind for 5 years I am yet to adapt and accept. This is caused by the fact that I used to have very narrow yet deep interests in coding which are severely hindered by my inability to see. While I can still code I can only do so at a very superficial level and only under extremely favorable conditions, so I can't work on just about anything like I could before. I think that we are living in a golden era which is the worst time ever to be unable to fully enjoy life due to a disability.

Regarding Braille and other skills in general I contacted the national blind association here in Portugal (ACAPO) when I went blind and they directed me to the only rehabilitation center in my country which fortunately is not too far away from where I live.

I have a Mac and an iPhone so I use VoiceOver on both which is a screen-reader that comes built-in MacOS and iOS, and when for some reason I have to use Windows I rely on NVDA which is the screen-reader that I was trained to use in rehab. Beyond screen-readers there's also dictation which helps a lot on mobile since at least I type very slowly on the on-screen keyboard compared to when I had sight.

I never had many friends, and all my friends were people I met online who shared my passion for coding, and although we used to meet in person from time to time most of our interactions were online. Going blind made me lose contact with these people, and apparently without me the group ended up disbanding.