Blind and Visually Impaired Community
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I have Aniridia (self.Blind)
submitted by Midget_Katt
I'm a 26 years old female who was born with Aniridia in both eyes. Aniridia is the absence of the iris. I'm not totally blind I can see. Last time I went to doctor I had like 200 vision. I went to public school even though the doctors suggested that I go to a blind school. What I'm trying to get at is i haven't adapted or any idea what I'm suppose to do for when the inevitable comes. I don't know when I'll go completely blind. So is there anyone else who has Aniridia that could help me prepare for my future holds. Day to day things mostly. I still want to be as helpful as I can. I don't want to feel helpless. I want to be able to do some things by myself. My husband and I have been working on getting me to and from cars and stores. The sunlight is so bright that i can't see, even with sunglasses. I grab his arm or hand and he'll guide me. Small sublte movements from him tell me where I need to go. But I want to be the best housewife I can. Just doesn't seem possible while being blind.
mi1ky_tea 1 points 3y ago
I have it. Same visual equity as you. Cateracts too. Did you develop them? Idk I don't have much advice to offer but it's nice to see someone else with it.
Edit: I think if you already cook and clean now you should retain those skills without vision because it's a routine task and it would be like second nature. Of course some things won't be as easy as others.
Edit: I think if you already cook and clean now you should retain those skills without vision because it's a routine task and it would be like second nature. Of course some things won't be as easy as others.
zttu 1 points 3y ago
hey, my mother 60+ and sister 30+ both have aniridia. the men in our family, including me have just nearsightedness, and I can assure you that you will be a very good housewife.
my mom is a good living proof that people with aniridia or any visual impairment can do almost anything, she cleans, cooks, ran a business for good 30 years, does a lot of knitting and other craftsy stuff.
do not let the loss of a your sight to be an issue, and ask for friends and family for help when you need it!
my mom lost her vision completely back in 1975, around your age as the doctors weren't able to even identify what kind of a disorder she had, and one key to her success was having a very good friends who she traveled around the world with.
my mom is a good living proof that people with aniridia or any visual impairment can do almost anything, she cleans, cooks, ran a business for good 30 years, does a lot of knitting and other craftsy stuff.
do not let the loss of a your sight to be an issue, and ask for friends and family for help when you need it!
my mom lost her vision completely back in 1975, around your age as the doctors weren't able to even identify what kind of a disorder she had, and one key to her success was having a very good friends who she traveled around the world with.
Midget_Katt [OP] 1 points 3y ago
Oh wow. I'm the only one in my family on both sides that has it. If someone in my family did have it it was several generations ago. Wow your mom is a badass! This definitely gives me some hope. Maybe it won't be as bad as I think it will.
zttu 1 points 3y ago
we have no knowledge of any problems with sight in our family either, it just started with my mom, interesting to hear similar thing from you.
nearsightedness comes from Dad's side of the family, we fortunately live in a age where this is not a problem at all.
and yeah, it will not be bad as you think, just keep pushing forward and you will definitely succeed with your plans in life!
nearsightedness comes from Dad's side of the family, we fortunately live in a age where this is not a problem at all.
and yeah, it will not be bad as you think, just keep pushing forward and you will definitely succeed with your plans in life!
zttu 1 points 3y ago
I'm going to leave another comment on this, a hope for a sighted future in the next few decades, you might be able to get some of your vision back, my mom saw us kids first time after being completely blind for 33 years.
a young enthuastic eye surgeon performed an experimental surgery on her, I don't know exact details, but somehow did an operation her lens in the eye, cut some bad tissue out and got a cornea transplant from a donor.
she regained a tiny bit of her sight back, and was even able to read with the assistance of magnifying glasses and such after 33 years of being fully blind. this surgery happened almost 10 years ago, and the knowledge in the medical field is constantly progressing, slowly but still progressing.
a young enthuastic eye surgeon performed an experimental surgery on her, I don't know exact details, but somehow did an operation her lens in the eye, cut some bad tissue out and got a cornea transplant from a donor.
she regained a tiny bit of her sight back, and was even able to read with the assistance of magnifying glasses and such after 33 years of being fully blind. this surgery happened almost 10 years ago, and the knowledge in the medical field is constantly progressing, slowly but still progressing.
Midget_Katt [OP] 1 points 3y ago
Yeah I've heard a little bit about a surgery. I just...don't know I guess I'm just to uncomfortable with doctors to try. I've accepted what my future holds but things change so I may choose differently later.
That's incredible! Yeah it is and our knowledge about Aniridia to progressing too.
That's incredible! Yeah it is and our knowledge about Aniridia to progressing too.
8i8oio 1 points 3y ago
My hubby and I have little hand-codes too!!!! That’s so cool!!!! I do not have the same diagnosis, but I cook just fine. Cleaning is a little iffy, but we work it out. What are you worried about being bad at?
Midget_Katt [OP] 1 points 3y ago
Cleaning and getting things for him mostly
8i8oio 1 points 3y ago
We clean together and it’s been very fun. I do dishes by myself, because I enjoy dishes. I know where all the tools are, and scissors, cuz I’m more “handy” than he is.
I can’t help you without some examples. I can’t tell if you’re torturing yourself with guilt, or he needs to adapt and help out more.
I can’t help you without some examples. I can’t tell if you’re torturing yourself with guilt, or he needs to adapt and help out more.
Midget_Katt [OP] 1 points 3y ago
Well he's great at fixing things just not cleaning. I'm kind of a neat freak and he's not. So my clean and his clean are a little different. How do you clean without being able to see? How do you know what's dirty or clean and where to put things?
It's definitely me. I was raised if you can you help. If someone is doing work around you, you work. So that's in the back of my mind when I think about my future and I'm trying to prevent me feeling helpless in the future. I want to be prepared. I want to know what how to handle it.
It's definitely me. I was raised if you can you help. If someone is doing work around you, you work. So that's in the back of my mind when I think about my future and I'm trying to prevent me feeling helpless in the future. I want to be prepared. I want to know what how to handle it.
8i8oio 1 points 3y ago
I know what you mean, I’m more of a beat freak than my love too. I mostly just keep the kitchen clean. I can feel the counters, tables, cupboards. When I drop something I can’t see I put a sticky note on the fridge to warn everyone. Our sofa is leather, so that’s low maintenance. He does toilets, I do the sink and mirrors. The only trouble is floors, cuz I can’t see that far, and I don’t want to “feel” it. We’re still working on a method, but usually he sweeps, and I’ll mop.
But it is frustrating to not know when the shelves in the fridge have spots, or I am putting dishes away and bash mugs into each other because the color was too similar to the cupboard. My sweetheart is always supportive, and we plan to hire a maid if we ever can’t agree on a workload.
Because, it’s not about perfect solutions, it’s about adapting as you go. It’s about not beating yourself up for bad eyes. And it’s about being a team, a truly supportive team.
By the way, I love you’re asking about this and not make-up or clothes. You must be a very independent and kind person, and like to show your love through service. It will be hard to find new ways to express yourself, but I believe you can <3
But it is frustrating to not know when the shelves in the fridge have spots, or I am putting dishes away and bash mugs into each other because the color was too similar to the cupboard. My sweetheart is always supportive, and we plan to hire a maid if we ever can’t agree on a workload.
Because, it’s not about perfect solutions, it’s about adapting as you go. It’s about not beating yourself up for bad eyes. And it’s about being a team, a truly supportive team.
By the way, I love you’re asking about this and not make-up or clothes. You must be a very independent and kind person, and like to show your love through service. It will be hard to find new ways to express yourself, but I believe you can <3
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