Learning accessibility features on phones and computers while there is still some sight and you are mentally young will help.

Having someone to learn the accessible UI alongside you helps a lot too because there is a lot to learn and remember, you don't always get the on screen hints and prompts that you do with normal screen usage.

E.g. remembering what three finger triple tap does when using VoiceOver on an iPhone and what it does when you have both zoom and VoiceOver working.

Is there anywhere she’s wanted to visit? Go there. Now.

Braille.

What are her current hobbies? Coping skills? She’ll need new ones. I gave up reading for guitar, and drawing for 3D crafts.

Validate her emotions, but set aside money for a therapist if you can. It’s very hard to adjust, especially the beginning.

Find out if your country has a Blind Association. There should be life skills classes for free, like learning how to use a cane. You can fill out their paperwork and provide medical documentation NOW instead of later.

Find out if your library has audiobook apps, and sign up for them. Free and fun!

If she wants, ask around locally for someone who has gone blind. I’m still close friends with some who went blind years before me - and it’s been invaluable to have someone who truly understands what I’m going through. Friends. Are. Invaluable. She’ll need more support than you.

A big one would be learning how to use the many accsessbility features on computers. They take a little to adjust too and that adjustment may be easier if she can practice with some sight still remaining.

If she doesn't know it already perhaps some touch-typing lessons are in order and perfecting that 'talking to siri' voice. Between Siri in your pocket and a device like alexa in the home you have a massive range of possible interactions many consider those home assistants like Google or amazon's echo quite the help. If she does have an iPhone the watch that goes with it is also fairly helpful if you can figure out its use. It can make your phone beep for example so that should you misplace it you can follow the noise and recover it, a very handy feature, it can also track nasty falls and notify family, handy if she gets stuck on the floor and you can speak directly to Siri using the watch so you are not tethered to a phone that will run away on you.

She may wish to begin learning braille though not eveyone feels the need to do so.

How does your sister get around? It may be worth looking into a service animal from a local charity or learning how to use a cane.

Really though the most important thing you can do is just be there for her. If she needs help give it. If she instead wants to trip over the coffee table 10 times til she figures it out herself let her, cheer her on but don't coddle her. She is an adult after all her body is just a little uncooperative.

Some other things you can do is to not move stuff about. Minor things can be a headache to find when someone had moved them. Leaving shoes or bags in the walkway can be a dangerous and unexpected trip hazard. One big thing will be building her confidence, from what I know of what you have described here a minor trip, slip or error could have significant pain and danger attached to it. Many people really struggle with their confidence when they loose their sight even if falling on their ass would be a momentary annoyance opposed to a hospital trip.

I can't imagine what yall are going though but you can get though this and so can your sister!

Hey, it is so nice of you to want to help and it will be an amazing experience. I want to help with some resources.

Apple products are probably the best for accessibility needs, they have a TON of built in features. $1 for a high level overview. They also have a 24/7 support line with employees trained to assist with any questions regarding the features.

Phone number: (877) 204–3930

The advisors who work that department are extremely dedicated, patient and helpful (I used to be one!)
EDIT:
The hardest thing for a sighted person to handle when they are helping a VI person; sighted people use shapes or colors, VI people need names, quadrants. Things like that. If you are both apple users. You can turn on voiceover on your phone and navigate it, doing so will be INVALUABLE when your sister may need help.

Also please encourage her to call Apple now, the advisors on that team will be extremely willing to help. They will not treat her loss of vision as a bad thing, but rather just another thing. If it is degenerative, they can help with setting to make the transition easier.

If she is a windows user, window-eyes is the best screen reader. Other options include NVDA, and JAWS I would caution against JAWS simply because it costs money to upgrade any version and the original license is pricey. Make sure that her computer is newer say less than 3 years, just because of how hard the programs are in the hardware.

If she is willing to switch or open to using a Mac, go to a Best Buy or apple store and let her play around on one. There are hundreds of nuanced settings for VI users. A Mac Mini is $600 and will have all the accessibility features of any other Mac so price isn’t too bad there.

If she is an avid reader there is a fantastic app called BARD mobile. It is created and managed by the library of Congress.

There are also a bunch of OCR apps to help with reading written text, determine what kind of dollar bill you are holding. Even some for gps instructions that are designed around VI users.

Edit 2: u/cheerchick1944

1) ask her!

2) seconding what someone else said about taking trips. if there's anything she wants to do or see, do it.

3) check with your Commission for the Blind, or whatever state agency you have, to see if they can send someone over to evaluate the house and give advice. after I was declared legally blind and registered, it helped SO much to have someone come over, take a look at my kitchen, computer, hobby setup, etc. and make recommendations. they also signed me up for free large print and audiobooks, which I really appreciate.

Losing your sight is one of the most difficult things we can deal with, I am so glad your sister has someone working with her on this. There are resources available, and lots of good advice already posted- here are a couple more things I've found helpful.

First, a blog post from an individual who lost her sight, and what it was like coming to terms and learning to live with blindness. It was a powerful read, and the author is someone I really enjoy: $1

Second, I don't know where you're located, but here in the SF Bay Area we have an organization that helps people "learn how to be blind" and offers all kinds of support and information. They are called "Lighthouse for the Blind" ($1). Maybe they can help you find some similar entity in your area if you're not in the SF Bay area.

I've found there are lots of tactile tricks and techniques for living without sight. Coming up with strategies for storage and organization that are based on feel rather than sight can be challenging at first, but often a simple trick or low-tech solution can help.

Rather than bringing your phone into the shower and trying to read the labels of your shampoo and conditioner, a simple rubber band can help you distinguish between them quickly and without ruining your phone.

Folding money a certain way based on whether it's a five, ten or single is another technique I know that lots of individuals who are blind use.

Certainly learn about computer accessibility, and start sooner than later. It is emotionally exhausting to lose your sight, and I believe the challenge of learning how to use a screen reader is much more easily met when you are able to practice with some sight remaining.

One practical aspect lots of people miss is the ability to touch type- or more accurately, keyboard. Have her memorize the keyboard, get one of the typing tutor programs, and go beyond the alphabet, help her learn the function and memorize all the other keys as well.

Most importantly, just continue to be loving and supportive. Patience and kindness will go far, as will a heaping helping of forgiveness. It will be a long journey, and your sister might not always remember how lucky she is to have you. Be strong, and she will find her way to independence and enjoying life. Good luck!

Im guessing she has uveitis (like me). Is she being seen by an actual uveitis specialist (that did a fellowship in uveitis)??

Create a vision bucket list while she has vision. That's what I'm doing!

Other than that just be there for her and understand she might not react well and get frustrated but it comes from a place of fear.

I couldn't sleep well for a few months after learning I was losing my vision because I was afraid of waking up completely blind.

I would recommend she goes to a rehabilitation center for the blind, if her health allows. She could obtain the training she needs in 6 to 9 months. The center would train her in Braille literacy, adaptive technology, cane travel, independent living skills.

Hi, I would recommend she goes to a rehab training center, if her health allows. Many people recieve training at home, but this takes a long time, and training is not comprehensive. By going to a center, the individual spends 6 to 9 months training in Braille literacy, adaptive technology, cane travel, independent living skills, and much more.

Nothing to do with blindness, but have you checked /r/carnivore ? Some people have reported great improvements with the diet. The most notorious one seems to be Mikhaila Peterson.