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Blind and Visually Impaired Community

Full History - 2019 - 11 - 06 - ID#dsdbsf
3
I am 20, Went to my optometrist for my yearly checkup to get more contacts and they casually told me im a glaucoma suspect (self.Blind)
submitted by [deleted]
[deleted]
codeplaysleep 3 points 3y ago
I would get a second opinion - find an ophthalmologist. Floaters and flashes don't really sound like glaucoma symptoms, at least none that I've had. Most of the damage from glaucoma is caused by an increase in intraocular pressure, which can cause optic nerve and retina damage if it gets high enough. That would certainly lead to floaters and flashes, but high IOP should be treated long before that.

Did your doctor actually check your eye pressure?

There are also multiple types of glaucoma. The most common is open-angle glaucoma, but there's also narrow/closed angle glaucoma (what I had), which can be more acute, but also more treatable.

Some actual early symptoms to look out for would be pain or a feeling of pressure in/around the eyes, brow and cheek pain, blurry vision, especially in the morning when you first wake up, more difficultly seeing in low-light, red/bloodshot eye(s), or halos around lights.

Of course you should take note of any floaters/flashes, too, but those aren't what I'd consider to be "early" symptoms of the disease and I'd personally treat them as a medical emergency.

All that said, it sounds like, right now, you do not have glaucoma - which is great! You're just more likely to develop it... which is a bummer, but it doesn't mean that you're guaranteed to have glaucoma in your future. Lots of people are at high risk for things that never develop.

It does mean, though, that you should find a doctor you trust, who will take time to explain things to you, and start monitoring your eye health more closely.

Glaucoma can be scary, but like any progressive disease, if it's caught early, it's a lot easier to manage and the disease progression can often be slowed.
thrivingnshit 3 points 3y ago
Let me start with saying that you are a glaucoma suspect you do not suffer with glycoma and that's a very big difference. You're not suffering with it. You should be glad that you've a heads up. My mother and your story matches a lot. I've 7 aunt's in my family and one of them is a optometrist when she was checking my mother's eye she suspected she might have glaucoma and she sent her to a glaucouma/eye specialist who said she had a initial stage glaucouma.
Yes we've heard about how glaucoma is the leading cause of blindness in people but there's different stages to it just like cancer has stage 1 to stage 5. Pretty much the same. Because my mother had initial stage of it they performed a small laser procedure on her which lasted hardly 10 minutes and then for a month or so she had meds/drops and she was totally fine.
Its a heredity in my mom's family so after one another aunt got checked and she realised she had a initial stage too. She went through a small laser procedure and she was fine too in month.

Yes, glaucoma seems scary but my mom's doc had said that if treated in the initial stages it goes away and doesn't cause any problems.

You don't glaucouma right now they said. You MIGHT get it. Is what they meant. So all you've to do is do regular check ups every 6 months. And if it's detected then in the initial stage it can be easily treated. Nothing to be scared of.
I'll suggest you also take opinions of different doctors. It's really helpful.
Sywedd 1 points 3y ago
Okay, thank you so much
Duriello 2 points 3y ago
Floaters and flashes of light are usually associated with retinal detachment, not glaucoma. Glaucoma is asymptomatic in most cases and you'll only know you have it once it starts causing irreversible damage to your optic nerve. The exception is angle closure glaucoma which causes pain and may cause blindness within just two days.

My biggest mistake, and one of the reasons I ended up going blind, was trusting my physicians too much and not seeking a second opinion before it was too late.

While I said that optic nerve damage is irreversible there is currently a drug called Cenegermin undergoing $1 that may reverse some of the damage caused by glaucoma.
Sywedd 1 points 3y ago
what is the best way to find a good and trustworthy physician?
Duriello 1 points 3y ago
Start by contacting a glaucoma specialist, and from there try to research online what your options are depending on the diagnosis. Don't shy away from asking questions and for a second opinion even if you are told that everything is fine, because in this case it's best to be safe than sorry. Unfortunately finding a good physician is a question of luck, but if two opinions match then you at least have a certain degree of certainty that the diagnosis and course of action is right.

In my case I was told that it was impossible to see through my permanently constricted pupils with an ophthalmoscope, and my symptom of loss of contrast perception was attributed to a cataract instead because my pressure was fine during the day. It wasn't until I lost my sight completely that I learned from another doctor that it was indeed possible to see through my constricted pupil through an optical coherence tomography and that my blindness could have probably been avoided.

From your description it doesn't seem like your case is as bad as mine though, so you will probably not run into problems like the one I described above, but you should contact a specialist in any case.
Sywedd 1 points 3y ago
Thank you so much for your help, I will look into contacting a glaucoma specialist because I want to make sure im okay early, also if you dont mind me asking, how do you use things like reddit etc when completely blind, i have always been curious
Duriello 1 points 3y ago
I use screen-reading software that uses a Siri-like speech synthesizer to tell me what's on the screen and allows me to navigate graphical user interfaces using the keyboard only. On the Mac and iPhone this software is built-in and is called VoiceOver; Windows also has a built-in screen-reader called Narrator, but I prefer to use NVDA on that platform since it's more feature reach, can be extended, and has more usable keyboard controls. These questions are answered in a sticky post on /r/blind.
razzretina 2 points 3y ago
If it's serious, your doctor will call you back in. Since they don't want to see you again for a year and you don't have glaucoma, it's just something that could happen, you're okay. It sounds scarier than it is most of the time. If you start feeling pain or your vision does weird things (flashing lights, floaters, blood spots), go see your eye doctor right away. But otherwise, it sounds like you're gonna be fine. :)
Sywedd 2 points 3y ago
Thank you
Bayarea-VS-Everybody 1 points 3y ago
It’s cuz you’re a bitch
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