After my genetic marker was ID’ed, I asked my doctor this same question. He basically said there’s no way to know.
RP doesn’t necessarily manifest the same way as the parent - there are other genetic factors that affect the way the disease progresses.

Hey no RP is different for everyone. I got RP from my mom's side of the family. My mom has RP but hers is actually better than mine and has a slower progression. My RP has had a much quicker progression than hers. For example, she's in her 40s n can still see some colors and can read normal sized font. While me on the other hand, I read at an 18 sized font and I'm colorblind and use a cane. She also has more peripheral vision than I do. I'm also 23. It's different for each person.

While there are commonalities, just because one person loses their vision at 40 doesn't mean their child will. Some forms of RP are more aggressive than others, while others are less. Some siblings lose their vision earlier than others.

My grandmother was completely blind in her 20's. My dad, uncle and aunt all had milder conditions. As in they didn't approach complete blindness until their 60's. I am similar in that I'll likely have a few % left in my 60's if I'm lucky.

I'm the only person in my family with RP. I've been tested, and I got it from my dad. His mom was an optometrist, so she would've known.

My geneticist said it's up to a 50% chance that my son will inherit the gene, but whether it not it'll present or just lurk quietly in his DNA is unknown. They also won't test him for it until he's 18 unless I want to pay out of pocket.

I’m not in this situation but I’ve never heard of that being the case, now if someone says otherwise then they’re probably correct.

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