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Blind and Visually Impaired Community

Full History - 2019 - 12 - 21 - ID#edxfa6
20
Looking for someone similar (self.Blind)
submitted by Only1lunatica
I'm visually impaired in a unique way.

my eyes can't, never have and never will move. to look around I move my head or entire body. I often explain it similar to putting blinders on a horse.

I'm born with this "production flaw" so for me it's just life and you with all your moving eyes are the weird ones :)

however I've never felt like I truly belong in the impaired world as no one was like me, (I might be the only one in my country who's born like this) and based only on how well I can see I'm right in middle of Visual Impaired and Person with lowered vision.

So I was just wondering if anyone knows of anyone with something similar?

if nothing else to have a spiderman meme moment or compare neck pains :)

otherwise I wish you all good end to the year
thatawkwardcosplayer 8 points 3y ago
Waves hand! I have very little side vision and have to do the same thing! I feel you on the neck pain soooo much. Do you have depth perception issues too?
Only1lunatica [OP] 2 points 3y ago
No I don't, how do you deal with that?
thatawkwardcosplayer 2 points 3y ago
Mostly by guessing, not gonna lie. I Ty to guess how far it is and then grab it, readjust as needed.
Only1lunatica [OP] 2 points 3y ago
Good thing that we’re adaptable :)
Just remembered that I did walk into a lamp post once, though I’m pretty sure it had to do with the alcohol I’d been drinking and not bad depth perception:)
intellectualnerd85 4 points 3y ago
I have no peripheral vision
Only1lunatica [OP] 2 points 3y ago
I've had almost none on my left eye until they lifted my left eyelid which helped.

Do you know what caused this for you?
DaaxD 3 points 3y ago
I don't have peripheral vision either and my FOV is less than 10° in my both eyes. In my case the cause is retinitis pigmentosa, ie. my retina is eroding away.
Only1lunatica [OP] 2 points 3y ago
Mine has to do with the muscles not developing right while I was a fetus and not fixable.
Can yours be fixed?
DaaxD 3 points 3y ago
Not with the current science. The CRISP technology seems promising, but it still might be decades away before its really "here".

Because RP is progressive it also means that what I described only applies to the present. My eyesight is on the clock so to speak.
intellectualnerd85 1 points 3y ago
Retinas pigmentosa
brainotomy 2 points 3y ago
I was born with nystagmus. It is basically that my eye shake constantly and I can’t stop E only cure is to remove the eye muscles, whcich was considered when I was an infant. Had they done this, I’d be in your club.
StrangerDimensions 3 points 3y ago
Same here!
brainotomy 3 points 3y ago
Can you imagine what life without being able to move your eyes must be like? I try to pretend every now and then and my neck gets sore pretty fast.
StrangerDimensions 2 points 3y ago
I can’t control the movement of my eyes very easily at all, yet they are constantly moving. It would hurt your neck like heck.
StrangerDimensions 1 points 3y ago
That must be so annoying and painful, I’m sorry you have to deal with that but I’m sure you are incredible. I have nastagmus so I’m at the opposite end my eyes are constantly moving making it very hard to focus. I can’t see small detail so I’m always hunching my neck to see so I can relatively relate to the neck pain
Only1lunatica [OP] 1 points 3y ago
you can't get a grant to see a chiropractor?
StrangerDimensions 1 points 3y ago
I probably could but I just, haven’t it’s not severe.
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