Sighted woman trying to learn how to lead.(self.Blind)
submitted by twirlingparasol
My significant other lost his sight in an accident. He is not much used to the loss of that sense, and I can tell it makes him angry and frustrated. I'm not good at leading him, but I want to learn. What are the dos and don'ts of leading? It feels so upsetting when I don't do it right.
Carnegie8924 points3y ago
If he uses a cane, never ever grab the cane when he is walking. Describe things as it is without adding your personal flair to it, at least in the beginning. Don't do things for him unless he asks. Even if you do things out of the goodness of your heart, it still feels like we're helpless.
For walking outside, ask him if he wants to follow you or wants to hold on to your elbow. Describe all the turns you're taking, if there are stairs coming up or if there is any incline or decline. Describe what you see around you if that's what he wants.
Terry_Pie19 points3y ago
Firstly, make sure he is holding on to you, not the other way around. The side of you he is on is upto what works best for you guys, but I'd recommend he holds on with his off hand so that he can still have the use of a cane in his primary hand. Normally the blind/VI person will hold on to the guide's elbow, but if the person isn't too tall I prefer to hold on to their shoulder myself.
When guiding, you need to think of yourself as being twice as wide as normal. So you want to position yourself more to the centre of a walkway to allow them to fit in beside you. Where a walkway narrows, advise as such, and the guided can shift themselves into a position that's more behind you.
Finally you have the advice you need to provide. Most important thing is to keep it short and simple. Advise of upcoming obstacles (e.g. changes in elevantion, chairs or signs that are sticking out etc), and directions (e.g. right, slight/deviate right, straight on).
Just as something additional, when you're sat down for a meal you can detail where things are with descriptions using left/right, close/far, but you might find it better to treat their plate as a clock face and drescribe from their. E.g.: your glass is at 1 o'clock (for an item on the table near their plate), chips at 10, salad at 2, meat right in front at 6 (for describing where food is on the plate).
Hope you find that useful. And for clarity, being VI I both guide (those who're totally blind), and am guided (by those who're fully or more sighted) at various times.
twirlingparasol [OP]1 points3y ago
Your advice is absolutely very helpful. Thank you for the input! This is all very new to me and fairly new to him, really. I'm getting better but I still need to hear this kind of advice. Thank you.
CloudyBeep19 points3y ago
It's actually called "sighted guide". There are lots of videos on YouTube that demonstrate it.
Has your SO sought orientation and mobility training so that he can learn to travel independently with confidence?
twirlingparasol [OP]2 points3y ago
Unfortunately, no. I don't think he has a lot of people in his life trying to improve things for him. I'd like to be someone who is actively trying to improve things for him. I'd be more than happy to take any advice on who to talk to and how to approach that subject, etc. Also, thank you so much for the proper terminology. Honestly, I avoid saying things in general that point out his loss of vision, because I can just feel that he's still so upset about it. We have known each other for years; he was always a very prideful man. I think this has been a huge hit to his confidence, and anything that can bring some of that back would be a huge help. I just want to help.
CloudyBeep1 points3y ago
I can try to provide you with links to organisations that may be able to assist you. What country are you in?
twirlingparasol [OP]2 points3y ago
We live in Indiana in the United States. Thank you for your consideration and willingness to help. It really does mean a lot.
CloudyBeep2 points3y ago
I found this: https://www.bosma.org/How-We-Help
It is quite likely that your SO will be resistant to get training, especially if he hasn't come to accept his vision loss. Feel free to message me or post on r/blind if you have any questions about the support he should get so that he can regain his independence.
vwlsmssng10 points3y ago
I want to emphasise one point of advice from the others. Warn of hazards, especially kerbs and potholes and any other changes of surface and height underfoot.
I think we forget how unconsciously we'll see a kerb and step up or down or over without a second thought. A harsh trip or jarring drop happens so easily and so painfully.
While you are watching where your feet are, don't neglect head height hazards such as branches, overhanging hedges and street furniture.
Lastly, if your partner uses a cane then watch for it coming to a sudden halt when it catches in a pothole or large gap in the pavement stones. If the cane is in the hand closest to you, you really don't want to bang into the handle end which is usually a little below waist elevation.
tasareinspace5 points3y ago
then once you get used to it, you'll be out with your sighted friends and be like "step down" when you see a curb \*facepalm lol\*
TwistyTurret2 points3y ago
I grabbed my mom’s hand to guide her through the grocery store and she’s not blind! My boyfriend is blind and we always walk together. Sometimes I grab his hand to let him know where I am and what direction we are headed.
vwlsmssng1 points3y ago
True.
twirlingparasol [OP]2 points3y ago
The other night, I actually learned this by doing it. It was icy outside and I just did my best to tell him what was coming up and how the ground was going to feel under his feet. He is huge compared to me. He is well over 200 lbs and 6 ft, and I'm about 135 lbs and 5 ft. I want to be good at this because it would be a disaster if I caused him to fall or something and I would never forgive myself. Thank you so much for the advice.
vwlsmssng1 points3y ago
> He is huge compared to me
You need to take care of yourself too!
This is another reason why it is better to let the person being lead hold onto your arm. If one of you slips you are less likely to take the other with you.
DrillInstructorJan8 points3y ago
It made me angry and frustrated too, sometimes it still does, but it's amazing how okay it can be in the long term.
What I'm about to say is based on some experience mentoring people (three so far). Mostly they have been in a situation like the one I was in as a young woman, but I guess this stuff works for a lot of people.
First, it might not you doing it wrong, it's just that the situation is really tough and you are likely to be the target for some of the anger and frustration. Everyone shares the bad stuff in their lives with the people they're close to. I know I did that to the my other half. I probably still do and I'm sure he thought I was just being a bitch. In the long term, though, if you're going to get angry, and you will, make sure you're angry at the situation, not each other. You should not have to absorb it. You are probably putting up with enough stress as it is. Obviously you won't want to start arguments over this but we're working towards an ideal here.
Second, and this is the main thing, there are a lot of ways to guide people. When I am talking to new people I do quite a bit of work on how to be guided as you can definitely do it wrong, and if you do it wrong then you can make the sighted person who is guiding you feel like a loser. That's not great as it leads to the sighted person being terrified of blind people, and the last thing I need is to feel like even more of a leper. I'm almost always going to be more experienced at being guided than the guide is at guiding people, so it is up to me to make sure everything goes well. Nobody's expecting anyone to be awesome at this first time.
Practically, I tend to stay a bit behind the person who's guiding me. If it's a good buddy I will just take an arm like anyone would. If it's someone I know less well and I don't want to seem like we're a couple, or to give the wrong impression, I'll just put my hand on the back of their arm (some places teach this as proper technique.) Since you're a couple anyway that's easier. Usually that's my left hand as I want my right hand free for the cane, or my phone, or whatever else I'm holding. Either way it's up to me if and when I let go and stop. Usually I will have the cane out, pretty close in so it doesn't hit people but in front of my legs in a position some people call "diagonal guard." This literally prevents people walking me into stuff, which does happen, and means that I just stop and they go "ooh!" and we have a laugh, rather than having it end in pain and apologies and them feeling bad. There are only a couple of people on the planet who I trust enough not to have the cane out. But the real point is that I'm holding you, not the other way around, so I can stop when I want. You're not shoving or pulling me, I'm following you, and however you do it, make sure that's the case.
Hope that helps!
Envrin8 points3y ago
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Would like to reiterate what /u/DrillInstructorJan said. If he's being a dick right now after just recently going blind, please DO NOT take anything personally. I promise you he does not meant it against you personally, give him some time, be patient with him, and he will come around.
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Same as your guy, I suddenly went blind myself without any real heads up. During that first 6 months I was such a total asshole, I feel absolutely ashamed how I treated by BF at the time, and no idea why or how he stayed by my side. Going blind is REALLY frustrating though, it throws everything you've previously known up in the air, and you just have to give it time for that to settle again. He'll come around, I promise.
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As for helping guide, nothing really. Have him hold you by the back of the elbow, as others have said, make sure to point out obstacles to him such as curbs or whatever. Honestly, it's more on him than it is you. You're just going to need to be patient, loving, supportive, and wait for him to get this figured out, and become comfortable with being blind.
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Oh, one point of advice though, when standing in queue for something, make sure you remember him. When it's your turn, don't get excited and just take off to the counter leaving leaving the blind dude standing there. haha, that still happens all the time...
twirlingparasol [OP]2 points3y ago
Thank you! I'll definitely remember the standing in line part, lol. I'm a naturally caring and empathetic person, so a lot of this advice is so so so helpful because I really will take it all to heart, which is why I asked in the first place. I appreciate you sharing some of your story and talking about the accompanying anger and frustration. That helps to hear.
twirlingparasol [OP]2 points3y ago
What a compassionate and helpful response. Thank you from the bottom of my heart. I will take your words with me and do my best to learn from them.
BlueRock9565 points3y ago
Have him take orientation and mobility instruction. You can expect him to because become an independent traveler.
twirlingparasol [OP]2 points3y ago
I'm definitely going to look into this; as I told someone above, I don't think anyone in his life is really concerned about him getting this kind of help. His sister, who is honestly my best friend, actually remarked that she thought he should be "over it" by now. She said it out of anger, but it still blew me away that anyone could think he'd be over it.
vwlsmssng2 points3y ago
> he should be "over it" by now
People will mourn the loss of their sight just as they would a loved a one. This can also happen in advance when loss is anticipated.
Mourning takes time.
BlueRock9562 points3y ago
He can overcome the challenges that blindness causes, its not easy, but with dedication to training on how to use the cane he will be successful.
twirlingparasol [OP]2 points3y ago
The human body, mind, and spirit can be truly incredible. Adaptation is something we do. Love to you.
gwynaweird3 points3y ago
As a frequent Sighted Guide, I won't add much. Everyone here is amazing. But I'm located in a colder climate, I don't know where you are so I'll just say this just in case.
Always be wary of any climate hazards, like ice, puddles, frost heaves and ect. Sighted people always avoid them naturally. Keep it short and sweet too. When I was first guiding I was telling my mom about the pretty bubbles but then she fell before I could say that they were under a sheet of ice we were on. (I was 14. Please forgive me.)
Also clothes, if you are wearing a big puffy coat, make sure they have a grip on you, not just the clothes. My mom recently missed a queue from me and tripped over an ottoman. She was fine, just embarrassed. Turns out she had been loosely holding my coat not my elbow and neither one of us noticed.
It'll take a lot of patience, from both of you. But you can do this.
twirlingparasol [OP]1 points3y ago
I sincerely appreciate your kind words of encouragement. The last thing I want to do is embarrass him or make him feel emasculated in any way. I want to help as much as I can. Thank you so much for the tips.
kateschmee2 points3y ago
I am often a sighted guide a couple of my friends who are married. The husband uses a cane most of the time but sometimes I guide him too. They taught me that when you go through a door, let them know what side the door is opening on. Also, if you find that you have to guide more than one blind person, they will usually make a train or "conga line" on your shoulders. If you have any other questions you can ask me if you want.
twirlingparasol [OP]1 points3y ago
Very useful information. Thank you so much.
Bachelor-pad-722 points3y ago
You sound like a great partner :) I say this as a blind man, do not Forget to take care of yourself and don’t be so hard on yourself, it is OK to get upset when you have difficulty guiding him but it’s not your fault you’re learning at the exact rate he is
twirlingparasol [OP]2 points3y ago
Your comment is super comforting to me. Thank you. I'm trying to be the best partner I can be, and I want to help as much as I can and just exercise as much compassion as I can... I really love him. ❤️
brass4442 points3y ago
My heart is with you both. My S/O lost his sight unexpectedly at age 50.
To echo what others have said, mobility training for him is an important place to start. Before my husband was trained, he was panicked if I left his side, even for a minute.
Second, the rest is a bit specific to the people involved. We started holding hands, but he felt like I was pulling him and squeezing his hand.
We moved toward him resting his hand on my shoulder (he’s taller than I am). He does NOT like a lot of directions (again a personal preference) because it’s overwhelming to him. I stop at curbs (up and down) and tell him when to duck or “hug me” (stay close), come in behind me (going between tables at a restaurant), or give me a “wide sweep” (with his white cane to clear crowds out of the way), “four wheel” (walking through grass or other uneven territory), “light cane” (for those pesky uneven sidewalks that catch canes and can jab users in the gut).
He’s with me now. He said to stress the importance of mobility training. We are both glad to talk to you two together or separately.
I guess we started off with me tucking my hand into his elbow because we were a couple and that's what we did anyway, but I say do whatever works. When I am working with other people they are often young women and I have a personal preference that they not actually do what I just described because it is too much like what a couple would do. I don't necessarily want to teach people to hold the arm of someone they don't know like a drunken prom date. I'm being picky here but I do encourage people to put their hand on the back of the guide's arm, or on a shoulder, just so we're not stepping out like a couple. I'm sure that's probably less awkward for two guys as well. It's a small thing but I think worthwhile.
JynxBJJ3 points3y ago
That’s so thoughtful!! I’m a middle aged woman and even for me it can be awkward holding a man’s arm like that. I use hand on shoulder with my firearm resting on the scapular, so I can feel their body movements better. (I’m 5’i”8” so I can do that on almost everyone. )
twirlingparasol [OP]2 points3y ago
Drunken prom date... 😂😂😂 I'm laughing so hard. Usually he holds onto my shoulders and follows me. He's at least a foot taller than I am and a good hundred pounds heavier.
twirlingparasol [OP]2 points3y ago
Great news!! He spent the night at my place last night and I finally got the courage to talk to him directly about it. A little background: we are both recovering addicts. I was a heroin addict. He lost his eyes in a meth lab fire. He then had old charges on top of stuff related to that, and went to prison for over six years. Of course he didn't go in immediately after the accident, but he still spent six years incarcerated while blind. Really messed up.
ANYWAY (and you're probably sitting there like, "where the hell is the good news?' lol.)-- so he told me that he had begun mobility training before, but wasn't able to complete it. I told him about you guys and your advice (everyone here has been SO wonderful, and because of you, I've already improved SO MUCH as a sighted guide). He said that he wants to go back and complete the program, and was talking really positively about it. I honestly think I might have reminded him that there's beauty in life and that love is a possibility and that some of us really care about him. So I really hope I can help make a positive impact on his life. Thank you so much for being here for me. ❤️
Envrin2 points3y ago
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Oh, different people hold their guides differently? I always thought it was a standard that blind folks hold their guide by the back of the elbow?
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I could be totally wrong, as I never had mobility training. Went blind in NE Thailand, and although they do have a "Christian School for the Blind" there funded by the church in Australia, the head of the school told me they couldn't provide any assistance basically because I'm too white and not Thai enough, and to go to the embassy. What the hell is the embassy going to do for me? There was even a dude there who was getting his Masters in Australia more than happy to help me get back online, but nope, not allowed.
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That still pisses me off. Never did write an e-mail to Melbourne about her, but I should have. Really, can't help me out a bit to get back online after I went blind, and go to the embassy? That's not very Christian like of you, now is it?
twirlingparasol [OP]2 points3y ago
It's actually refreshing to hear someone talk about NOT having mobility training... I'm not sure how readily available it is here, but I'm definitely going to look into it. I'm also apprehensive about broaching the subject.
I'm sorry about the insensitive treatment you got, though. That's really upsetting. I can't imagine how you must have felt.
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