Technology specialist chiming in. You'll want to get an early start on feeling comfortable using your technology with limited to no vision. Every phone and computer has built in screen reading and accessibility features and the earlier you feel comfortable using them, the better. DM me if you'd like some specific advice or resources (or just to chat vision)!

Aside from that, it was a great idea to use this community as a resource. Definitely also contact your local vision organizations for specialist support because they might have long waiting lists, depending on where you are.

Definitely call and get registered for rehabilitation services. It is easier to start when you have more vision than later on. They can also make a number of suggestions that would make things easier for you.

Stargardt's has a fair bit of variability, but there are a few consistent things. Because of how it affects your central vision, you will find your visual accuity (fine detail) getting worse. That will also affect your colour vision (the cones are most densely packed in the center), so strong contrast may help make things more readable. Also check into a reading technique called eccentric viewing. It may help to see a little more detail. (https://www.rnib.org.uk/understanding-eccentric-viewing)

Bright lights and glare will likely become a factor, so getting sunglasses are important. There are ones with certain tints (red being a common one, but maybe other colours) that can help. You may also find lower light situations a little more comfortable.

There is also a product called eSight that may help (I believe it was originally designed for someone with Stargardt's), however there are a few big caveats.... the cost of the device is quite high. I believe it is about $10K right now. Second, sometimes the people selling them can be a little pushy and try to convince someone to buy it, even when it isn't appropriate (I've found it is sometimes an older person who isn't too familiar with technology). And third, you'll get a LOT of questions and stares. And fourth, it basically acts as a large digital magnifier you wear on your face..... so you wouldn't have any peripheral vision when using it. Some people think this would let them drive again, but it wouldn't be safe.

Orientation and mobility training is a good first step. Relearning how to get around known and unknown environments is key in navigating with your new loss. As for fun, as far as I know a lot of my coworkers have fun hobbies they still enjoy. I hope you find better answers for your boredom.

Register for adjustment to blindness services. Your employer can't terminate your employment because of your inability to drive; they'll have to find you another job you can perform.

I have Stargardt’s. also. Ive been living with it for a while. I was told it is very rare to lose all of your vision due to Stargardt’s, but a lot of people are legally blind.
So I’m part of a group for Blind/Low vision gamers on Facebook. Everyone is really nice and knowledgeable in how to keep gaming accessible and suggest games for each other. Feel free to join!
Losing my license is something I worry about a lot. I have to get evaluated regularly to see if I can keep it. My next evaluation is in March :0
Feel free to talk to me about anything! I’d love to help you however I can. Stargardt’s is not the end of the world! Do not give up! <3

I can’t offer anything different than what others have said in comments, but as somebody who also struggles with Stargarts and (tries to) play video games, I sympathize.

I game on a PC now since it allows me to sit pretty close to the screen. Also, you can adjust the screen resolution to enlarge things.

Welcome; I was diagnosed with stargardts last year (also 30) and omg yes it progresses fast and then stops and so forth. You will notice when you hit a lull and then be happy with it but always in the back of your mind is when it’s going to get worse.

My vision is not too bad up close so I still enjoy bullet journal and coloring. But I check a lot of what I’m doing with magnifiers. I also enjoy audio books, and watching movies. (I cant make out a lot but there is something relaxing at watching the smeared colors and listening to the dialogue. I have started to crochet as it can be done by feel but nothing fancy, just blankets, pot holders etc. (basically squares haha)

I honestly try to not look up because of how distorted it is so if you ever see me you will notice I look at the ground a lot. I have learned a lot of adapting and coping over the year. Also be prepared that you have a 50/50 chance of passing it on to your kids.

Everything will be different but you can still enjoy your life. Yes it’s different but it’s yours; so claim it and have fun!!

Hi, I think you have many opptions, but I recommend you go to a rehab training center for the blind as soon as possible. Don't wait until you are completely blind to start wondering how you'll be able to be independent. The fastest way to adapt will be to train in blindness core skills and fight depression by overcoming challenges that blindness will throw at you.
Check out LCB and CCB.

I’ve posted this elsewhere before but maybe look into getting into assistive technology advice/services as a provider.

Being a younger person with an interest in gaming (and presumably computers), you may find employment in assessing accessibility of websites, and possibly games. Changes to legislation mean that it’s a really sought after skill if you have the right skill set.

I did a quick search for "video games" here and found a few threads.. $1 $1 and $1

Someone recommended $1 .. maybe it'll be helpful.

Good luck!

That's so scary! I'm so sorry! I have stargardts too but luckily haven't noticed it advancing that fast. Definitely helps to get prescription sunglasses and wear a hat when you go in any sunlight. I also use a "night vision" app that turns my screen red.

I’ve heard about audio games, but i don’t know if they’re good or what’s good. I really like audiobooks and podcasts. I’m currently trying to find stuff to watch with audio descriptions. I also like writing and watching youtube.

I don't have a lot of advice, but I'm curious to hear your story and how you were diagnosed? I've had retinal bleeding (choroidal neovascularization) consistent with macular degeneration for the last 3 years and I get injections almost monthly now but I still don't have a diagnosis. I'm also relatively young, 29 (turning 30 this year) My understanding was Stargardts is diagnosed earlier in life so I assumed I don't have it, but looking for answers